How to Make A Donation
Call 1-800-Brain Bank

Request a Brochure



DONATION OPTIONS AND ELIGIBILITY
For comparative neurobiological investigations brain tissue is being collected from:

normal individuals with no neurological or neuropsychiatric disorders
individuals diagnosed with a neurobiological disorder
individuals diagnosed with schizophrenia or manic depressive illness
parents, siblings and offspring of individuals diagnosed with schizophrenia or manic depressive illness
individuals who have no blood-line familial diagnosis with a neurobiological disorder
Becoming a prospective tissue donor is easy. Any person 18 years of age or older can simply complete the "Brain Donation Questionnaire" and send it off to the Brain Bank. The next most important thing to do after signing up is to inform your family that you are pre-registered for brain donation at the Harvard Brain Tissue Resource Center. Often a brain donation is a last minute decision on the part of the family. Generally, however, it is better if the family has already openly discussed the idea of donation in order to avoid misunderstandings and to facilitate the donation process. At the time of death of the donor, the surviving family members will need to be available to verify the donor's intent-to-donate, and to offer authorization to the Brain Bank to acquire all medical records. At the time of death, an individual's body becomes the property of the spouse, or if there is no spouse, then the adult children or parent. Although an individual can make a personal request to donate his/her brain, ultimately it is the surviving family members who have the privilege and responsibility of deciding whether this unique and valuable gift will be made.

VARIOUS TYPES OF DONATION
There are different categories of tissue donation:

The "body donor" donates the entire body for medical education; however, the brain must remain with the body and cannot be used for research.
The "organ donor" donates organs for transplantation; however, the brain begins to decay immediately at death, and brain donation is generally not compatible with organ donation. However, each case is assessed individually at death.
The "brain donor" donates the brain for medical research and if interested, also has the option of donating eyes, skin, blood or bone tissue.
Please note that although these 3 options for donation are generally not compatible with one another, each case is handled and assessed individually.
AT THE TIME OF DEATH
In order to initiate the process of brain donation, Contact the Brain Bank at the time of impending death or immediately after the death of the donor. The Brain Bank associate will need the name and location of the donor and will work directly with the pathologist in charge. Most often, the brain should be removed and shipped to the Harvard Brain Tissue Resource Center within hours following the death of the donor. Only the donor's brain will be sent to The Brain Bank, so the donor's body will not be transported away from your local area. When questionable circumstances surround a death, a state medical examiner/coroner may be responsible for a postmortem investigation involving the brain tissue. However, the remainder of the brain which is not required for their evaluations may be donated to The Brain Bank upon request by the family. Generally, medical examiners will cooperate with the family's decision for brain donation. When an investigation by the medical examiner is not required, a pathologist in a nearby hospital can perform the brain removal using a protocol supplied by The Brain Bank.
THINGS YOU SHOULD KNOW
In all cases, the identity of each donor and potential donor will remain strictly confidential.
Brain donation does not conflict with most religious perspectives and will not interfere with an open casket or other traditional funeral arrangements (call 1-800-Brain Bank for a brochure outlining Religious Perspectives).
A diagnostic neuropathological report will be sent to the family and pathologist involved with the case.
Limited funds are available to cover the cost of brain removal for donors with schizophrenia or manic depressive illness, and the parents, siblings and offspring of individuals with these diagnoses.
FORMING A BRAIN DONATION NETWORK

Brain donation for research is not a widely publicized subject, so many physicians and pathologists are not familiar with brain banking. Contacting the pathologists at your local hospital and identifying the professionals in your area who are sensitive to the need for brain donation can greatly facilitate the donation process. If your are having trouble identifying a cooperative pathologist, feel free to call the National Alliance for the Mentally Ill at 1-800-950-NAMI (1-800-950-6264) to obtain phone numbers for State and Local chapters of the Alliance for the Mentally Ill in your community. You can also access
NAMI's Web Page. These individuals may be helpful in identifying a cooperative pathologist in your state.


STEPS TOWARD A SUCCESSFUL BRAIN DONATION
If you are interested in brain donation, we recommend the following steps:
Have a family discussion about brain donation, and inform your physicians of your decision.
Complete and return the attached "Brain Donation Questionnaire," registering the potential donor(s).
Upon receipt of your "Brain Donation Questionnaire", we will send a wallet-sized "Donor Card." Carrying this card is not necessary but may facilitate the donation process.
At the time of impending death or at death, call 1-800-BRAINBANK (1-800-272-4622) and provide the following information:
* complete name and current location of donor
* date of birth of donor
* time and cause of death (if known)
* name and address of legal next-of-kin
* neurological or psychiatric diagnosis (if applicable)
After the death of the donor, a "Postmortem Confirmation of Consent" form for donation must be signed by the next-of-kin. This form will be provided at the time of autopsy by the medical examiner, coroner or pathologist (if one has been identified) which authorizes the brain removal.
Those of us at the Brain Bank genuinely appreciate your interest and contribution to postmortem brain research into.


There are Several Ways to Get your Donation Process Started:
Contact Us By:
Calling 1-800-BRAIN BANK (1-800-272-4622)
Requesting a Brochure

E-Mailing Us
Our Address: Harvard Brain Tissue Resource Center
McLean Hospital
115 Mill Street
Belmont, MA 02478


Back to the HBTRC Home Page!!!
http://www.brainbank.mclean.org/Donate.html
///////////////////////////////////////////////////////////////////////

http://www.parkinsonstissuebank.org....t/ncurrent.htm

Top 4 Myths About Brain Tissue Donation
From Mary Kugler,
Your Guide to Rare / Orphan Diseases.
FREE Newsletter. Sign Up Now!

Medical researchers have a great need for brain tissue to conduct studies of neurological disorders like Parkinson’s disease, amyotrophic lateral sclerosis (Lou Gehrig’s disease), lissencephaly, and many others. So why does brain donation cause so many people to say, “Ewww!”? Perhaps it’s because people believe the Top Myths About Brain Donation.

1) Researchers only need the brains of people with brain disorders.
Not true. Researchers need brain tissue from both healthy people and those with neurological disorders. The healthy brain tissue can be studied to see why it stayed healthy, and diseased tissue can be compared to it.

2) You can’t have an open casket funeral if you donate your brain.
Not true. The pathologist (physician) makes an incision at the back of the head at the hairline, and the brain is removed. The skull remains, so the person is not disfigured in any way, and you can’t tell the brain has been removed.

3) Brain tissue donation is the same as other organ donation.
Not true. When someone dies, the brain tissue needs to be donated within 12 hours for it to be useful to researchers. The brain can’t be kept alive with machines the way the heart can for donation. And brain tissue isn’t used for a transplant like the heart or kidney—its tissue is for research only.

4) You have the final say on whether you’re a brain donor or not.
Not true. When you die, your body becomes the property of your next of kin. It goes to your surviving spouse; if you have no spouse, then your adult children; if no surviving adult children, then your parents; if no surviving parents, then your siblings. Whoever has responsibility for your body will have the final say in whether or not you are a brain donor. Therefore, if you want to be a brain donor, you have to talk to your family and make your wishes known.

http://rarediseases.about.com/od/bra...indonation.htm