ALS News & Research For postings of news or research links and articles related to ALS


advertisement
Reply
 
Thread Tools Display Modes
Old 04-14-2009, 09:34 PM #1
BobbyB's Avatar
BobbyB BobbyB is offline
In Remembrance
 
Join Date: Aug 2006
Location: North Carolina
Posts: 4,609
15 yr Member
BobbyB BobbyB is offline
In Remembrance
BobbyB's Avatar
 
Join Date: Aug 2006
Location: North Carolina
Posts: 4,609
15 yr Member
Post WHCC PatientsLikeMe doesn’t like mobile

WHCC PatientsLikeMe doesn’t like mobile

Tuesday - April 14th, 2009 - 02:03pm EST by Brian Dolan

During a panel discussion here at the World Health Care Congress in Washington D.C., PatientsLikeMe Co-Founder, President and Director Benjamin Heywood briefly described his social networking site’s growing popularity and aims. Heywood also noted that he’s still fascinated that PatientsLikeMe is thrown into the Health 2.0 bucket even though most users of his site are not young “technorati” but those with diseases that typically skew older, like Parkinson’s and ALS. Patients have been drawn to the site, Heywood said, because they cannot get the information they need from other sources. The information vacuum for these patients is remarkable, he said.

During the Q&A period I asked Heywood what his mobile strategy for accessing PatientsLikeMe was. While some mood-related applications may see some mobile related innovations with text messaging, on the whole, Heywood said his users aren’t interested in the mobile platform.

“We are not doing anything directly in mobile right now,” Heywood said. “We have something in our mood community, called InstaMood, which is a very quick thing that we do over email, sort of a ‘How are you right now?’ that layers on top of a very detailed patient-reported mood map that they edit via the Web. We definitely will move that to SMS very quickly and that will be applicable to other diseases; you can imagine that for epilepsy or other things.”

“As I said before, we’re not really a ‘technorati’ platform, so it’s not like our patients are clamoring for an iPhone app,” Heywood said. “These are people dealing with fundamentally life-changing illnesses. It’s not like oh fun let’s play with this. While there is immense value in that platform and obviously the whole world is going to be moving to mobile platforms eventually, we don’t feel the need to be a leader in that space.”

When asked, Heywood also weighed in on the potential of PatientsLikeMe to interface with PHRs like Google Health or Microsoft HealthVault.

“The answer is similar to the one I gave about mobile,” Heywood said. “We have no inclination to be a leader in interfacing with personal health records (PHRs) like Google Health. Many of our users do not uses PHRs…. For more on that, read the recent Boston Globe article on ePatientDave’s blog post about pulling his medical history… into Google Health. It’s a good read.”



http://mobihealthnews.com/1370/whcc-...t-like-mobile/
__________________

.

ALS/MND Registry

.
BobbyB is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
Bobbi (04-15-2009)

advertisement
Old 04-15-2009, 12:07 AM #2
Bobbi's Avatar
Bobbi Bobbi is offline
Senior Member
 
Join Date: Aug 2006
Posts: 1,851
15 yr Member
Bobbi Bobbi is offline
Senior Member
Bobbi's Avatar
 
Join Date: Aug 2006
Posts: 1,851
15 yr Member
Default

After reading your post, Bobby, I will definitely also read at the site to which you've linked.
__________________
".... This world wasn't built for people in wheelchairs ...."

.
Bobbi is offline   Reply With QuoteReply With Quote
Reply


Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off


Similar Threads
Thread Thread Starter Forum Replies Last Post
McMechen Woman With A.L.S. Needs Help To Stay Mobile BobbyB ALS News & Research 0 07-25-2008 09:15 AM
Mobile phone radiation and health clouds z Social Chat 3 02-25-2008 12:22 AM
E & mobile phones use with buzzing in ears jenD Epilepsy 3 07-08-2007 04:22 PM
Mobile Women K*L*D Women's Health 0 09-26-2006 08:04 AM


All times are GMT -5. The time now is 06:19 PM.

Powered by vBulletin • Copyright ©2000 - 2024, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise v2.7.1 (Lite) - vBulletin Mods & Addons Copyright © 2024 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.


Always consult your doctor before trying anything you read here.