ALS For support and discussion of Amyotrophic lateral sclerosis (ALS), also referred to as "Lou Gehrig's Disease." In memory of BobbyB.


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Old 01-05-2007, 01:31 PM #1
Agios Agios is offline
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Thumbs up BobbyB! You are Kick-***!

Bobby,

I just want to thank you for your incredible dedication and commitment to our community. It is unfortunate that Brain Talk, what was once a vibrant forum, has suffered and has become insignificant, for many reasons that go beyond the "crash". But your forum has filled the void!

You are awesome!

Peace, Love and Energy,

Agios
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Old 01-05-2007, 02:07 PM #2
John John is offline
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Bobby, ditto Agios' remarks. Your postings are the only reason I visit Braintalk now.
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Old 01-05-2007, 03:10 PM #3
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BobbyB BobbyB is offline
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thank you guy's maybe pals will come back.
i dont say much i just cut,copy and paste everything i find hoping it might help someone. how are yall doing ?
hope you had a good new years.

please check out patients like me to the forum is busy there and new pals joining in everyday.
http://www.patientslikeme.com/

plus i email all the reporters whos news storys i post here for awareness.
give it a try now n then

BB
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Old 01-05-2007, 03:23 PM #4
Agios Agios is offline
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Your welcome Bobby. I am well. My family and I just celebrated on January 3rd my 1-year anniversary on the vent. I continue to be active for the Angel Fund which benefits Dr. Robert Brown's ALS research. I am currently trying to organize a rock concert in Boston to benefit ALS.
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Old 01-06-2007, 11:45 AM #5
John John is offline
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I'm doing well Bobby. This month is the 6 year anniversary of my final and official diagnosis. Not moving very fast these days except on New Years eve when I chased my dog around the table on my scooter, flipped it over and was thrown back-first into a window ledge. I'm now recovering from a cracked and bruised rib. Ouuuch. Otherwise still working, talking quietly and breathing unassisted. I will work as long as I can. Happy New Year's to you.
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