ALS For support and discussion of Amyotrophic lateral sclerosis (ALS), also referred to as "Lou Gehrig's Disease." In memory of BobbyB.


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Old 09-19-2006, 07:26 PM #1
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BobbyB BobbyB is offline
In Remembrance
 
Join Date: Aug 2006
Location: North Carolina
Posts: 4,609
15 yr Member
BobbyB BobbyB is offline
In Remembrance
BobbyB's Avatar
 
Join Date: Aug 2006
Location: North Carolina
Posts: 4,609
15 yr Member
Thumbs up Welcome to the ALS/MND Registry

ALS - Brain Talk 2 Communities
http://forums.braintalk2.org/forumdi...daysprune=&f=6


please check it out

hello, my name is Bobby Brannigan, im a pals dx/94, im trying to build up this als/mnd registry with pals from around the world. bringing pals together to stand up a be counted and show the world we are here waiting for a cure.
so please come sign on with us.

Welcome to the ALS Registry
http://www.patientslikeme.com/registry

PatientsLikeMe members: want to see your name listed here? Just set your registry permission and fill out your first and last names on the Account Info page!

Welcome to the ALS Registry
http://www.patientslikeme.com/registry
This is the registry for Amyotrophic Lateral Sclerosis (Lou Gehrig's Disease, or ALS) patients. I originally started it as a mailing list and it is now being maintained on the PatientsLikeMe site. If you are a Person with ALS (PALS), you can add your name by signing up for a PatientsLikeMe account and filling out your profile.

I am excited about what we can do with the ALS/MND Registry at the new PatientsLikeMe it will be more then just a registry for pals, you can have you own detailed profile page. If you have any questions email PatientsLikeMe at support@patientslikeme.com. I think this is going to be great. It is a registry that has detailed information from the patients who want to share it. Plus you can come back as often as you want and update your info, so it is as current as possible, plus see what other pals are doing and how they are doing it, what they are taking.

You can help by passing this info on to other PALS.

http://www.patientslikeme.com/registry

Thanks,
Bobby Brannigan (PALS, diagnosed 1994)

robertb@mitchell.main.nc.us

ALS IS NOT PREJUDICE
WHERE EVER, WHEN EVER, WHO EVER

PatientsLikeMe
A new system of medical care by patients, for patients
a.. Discover better ways to manage your disease.
b.. Benefit and learn from shared experiences.
c.. Connect to those making a difference in your disease.
d.. http://www.patientslikeme.com/
__________________

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ALS/MND Registry

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