ALS For support and discussion of Amyotrophic lateral sclerosis (ALS), also referred to as "Lou Gehrig's Disease." In memory of BobbyB.


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Old 02-01-2007, 12:30 PM #1
magnus magnus is offline
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Default New member with some questions

Well I am a 23 year old male and I have been having real bad muscle spasms, cramps in my legs sometimes arms. The spasms feel like they are fluttering; like when you hold a ballon at the end and let air out a little at a time. I also notice when I am writing my forearm and hand get tired and cramp up at times and my hand will shake. There are also stinging type cramps in my jaw and neck some days. My ankles and places where there seems to be a lot of muscles/tendons feel and sound like they are popping/tearing when I move; like if I rotate my ankles and wrist in a circular motion or when I flex I hear a grinding/crackling noise and feel it
I am also real tired a lot lately, especially when I walk;my thighs, calves and knees feel as if I just walked 5 miles, sometimes its painful not sharp pain but a dull pain; like a 5 out of 10.
I have also realized that my muscles seem to be shrinking; but my strength as far as I can tell has not been affected that much. I have lost about 22 pounds; without changing diet and cant tell if its fat loss or muscle.
I go in for an EEG Feb. 9. Would this exam show abnormal nerve activity?
I had a blood test done a few weeks ago and got the results the tests are
Vitamin b12 306
folate 15.6
TSH 1.29
Renin 0.6
serum aldosterone 4.9
I think they were checking for some sign of Peripheral Neuroapthy...
Does ALS have any effect on blood tests?
What are the muscle symptoms of ALS? Can it effect all the limbs within 3months? All this started in my legs around that time and in both legs at the same time, not just one then the other.....any advice would be appreciated.

Thanks in advance

Last edited by magnus; 02-08-2007 at 12:49 PM.
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Old 02-01-2007, 01:10 PM #2
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you need to goto an ALS clinic and let them check you to.
it takes time to get a dx.
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Old 02-01-2007, 04:26 PM #3
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Would I need a referal or could I just go there and ask?
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Old 02-01-2007, 09:10 PM #4
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here is the link to the als association look there To locate all the affiliates in your area, search first by state then by zip code. get the email and ask them.
http://www.alsa.org/

sorry i cant help you more. after a neuro dx me i went to 2 different clinics for a 2 and 3rd dx. lots of test and emg's.

but most of all go have fun now.
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Old 02-01-2007, 09:19 PM #5
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Thanks Bobby
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Old 02-04-2007, 08:35 PM #6
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Default als is very rare for your age.

Magnus, before you start thinking AlS, for the time being you should wait on tests results. There are many things that could be causing your problems. Have you had a tick bite or a pervious injury. Als is very rare for your age so I would suggest that you wait and let the doctors take more tests before you think AlS. Good luck and God Bless.
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Old 02-07-2007, 03:41 PM #7
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I havent had a tick bite nor injury...still worried
ATM they are testing to see if I am having seizures. The muscle cramp and spasms are painful and irritating
Is ALS really that rare in younger adults? I have heard of people dying from it even younger than me...

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Old 02-07-2007, 04:04 PM #8
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out of 838 pals at plm there are 19 under the age of 30.
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Old 02-07-2007, 11:57 PM #9
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Magnus, ALS is pretty rare for someone your age. From what I could count there were only four cases in the ALs/Mnd registry that were near your age. It is hard not to be worried when something goes wrong with your body and symptoms can actually become worse with anxiety. Thinking about ALS would worry anyone and that is why I am suggesting that you wait for all of your test results to come in.
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Old 02-08-2007, 12:50 PM #10
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The only test I am getting is an EEG which is to see if my reasons for changes in consciouness at times. My insurance is not that good and I fear my doctor does not want to give me tests to see what the problem is.
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