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ALS For support and discussion of Amyotrophic lateral sclerosis (ALS), also referred to as "Lou Gehrig's Disease." In memory of BobbyB. |
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In Remembrance
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Welcome to the ALS/MND Registry
http://www.patientslikeme.com/registry 520+ pals from 38+ countries This is the registry for Amyotrophic Lateral Sclerosis (Lou Gehrig's Disease, or ALS) patients. I originally started it as a mailing list and it is now being maintained on the PatientsLikeMe site. If you are a Person with ALS (PALS), you can add your name by signing up for a PatientsLikeMe account and filling out your profile. I am excited about what we can do with the ALS/MND Registry at the new PatientsLikeMe it will be more then just a registry for pals, you can have you own detailed profile page. If you have any questions email PatientsLikeMe at support@patientslikeme.com. I think this is going to be great. It is a registry that has detailed information from the patients who want to share it. Plus you can come back as often as you want and update your info, so it is as current as possible, plus see what other pals are doing and how they are doing it, what they are taking. You can help by passing this info on to other PALS. http://www.patientslikeme.com/registry Thanks, Bobby Brannigan (PALS, diagnosed 1994) robertb@mitchell.main.nc.us ALS IS NOT PREJUDICE WHERE EVER, WHEN EVER, WHO EVER PatientsLikeMe A new system of medical care by patients, for patients a.. Discover better ways to manage your disease. b.. Benefit and learn from shared experiences. c.. Connect to those making a difference in your disease. d.. http://www.patientslikeme.com/
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. ALS/MND Registry . |
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