ALS For support and discussion of Amyotrophic lateral sclerosis (ALS), also referred to as "Lou Gehrig's Disease." In memory of BobbyB.


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Old 09-27-2010, 01:35 PM #1
Thelma's Avatar
Thelma Thelma is offline
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Join Date: Aug 2006
Location: Burnaby British Columbia
Posts: 795
15 yr Member
Thelma Thelma is offline
Member
Thelma's Avatar
 
Join Date: Aug 2006
Location: Burnaby British Columbia
Posts: 795
15 yr Member
Default So many seeking and looking

for that which will make this disease fade away from mankind. Yet we still have the interests and desires to maintain contact with our friends and neighbors that we have come to know and like and even dislike over the years of the internet.

When we had Braintalk we spoke and argued and even left the site and came back over and over again because we had all become in some sense friends. Now we are all scattered over many sites and have none of our own.

Why is this you may ask. Well for one reason it is only us and no other that know what this disease entails. Bobby once told me that as long as I could type I could be of use to someone. didn't matter who even, just keep it up. Well even I lost hope in doing even that.

I argued against everything that made it so hard for us to get words on the monitor and how long it took for just a few sentences to be produced and then deleted in a nanosecond.

But somewhere I lost the fact that by not posting and letting the chips fall I was helping to close the doors to that little avenue of contact that so many of us had with the outside world.

So then what if we take advantage of what is left and use it to maintain what really is the most valuable asset to having this place and make the effort to stay in touch and let it be known we are still alive and we count.

My name is Thelma and I have Non Hodgkins Lymphoma stage 5. I lost my brother to alcohol and Als and my grandson to alcohol, drugs and Als and my Father to Al.

If I know you, Hi there how are you, If i don't know you, Hi there how are you,

If you know me tell me how you are and how you are doing.

To #$%# with how angry you are and how hard it is. This is a way to communicate so

LET'S DO IT
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Alffe (09-28-2010), Chemar (09-27-2010), Koala77 (09-27-2010)
 


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