for that which will make this disease fade away from mankind. Yet we still have the interests and desires to maintain contact with our friends and neighbors that we have come to know and like and even dislike over the years of the internet.

When we had Braintalk we spoke and argued and even left the site and came back over and over again because we had all become in some sense friends. Now we are all scattered over many sites and have none of our own.

Why is this you may ask. Well for one reason it is only us and no other that know what this disease entails. Bobby once told me that as long as I could type I could be of use to someone. didn't matter who even, just keep it up. Well even I lost hope in doing even that.

I argued against everything that made it so hard for us to get words on the monitor and how long it took for just a few sentences to be produced and then deleted in a nanosecond.

But somewhere I lost the fact that by not posting and letting the chips fall I was helping to close the doors to that little avenue of contact that so many of us had with the outside world.

So then what if we take advantage of what is left and use it to maintain what really is the most valuable asset to having this place and make the effort to stay in touch and let it be known we are still alive and we count.

My name is Thelma and I have Non Hodgkins Lymphoma stage 5. I lost my brother to alcohol and Als and my grandson to alcohol, drugs and Als and my Father to Al.

If I know you, Hi there how are you, If i don't know you, Hi there how are you,

If you know me tell me how you are and how you are doing.

To #$%# with how angry you are and how hard it is. This is a way to communicate so

LET'S DO IT

Thelma I remember you,you wont remember me,I was diagnosed ,with Pd over six years ago,I went to braintalk you posted there ,I remember well.I was weak vulnerable,looked and listened but made no real contribution.it helped a great deal just to come here was enough to sustain me.Im stronger happier and healthier than I was irony PD IS WORSE,irony [I am determined to live well using all the resources available to me,I am not afraid of this illness any more.If I can help one person then I have succeeded
My views are my own and subject to change as new information and knowledge is acquired. Barriers and blame obstruct wellness litter lifes path there called challenges.Man doesnt always choose to follow extreme philosophical systems ,hes often born in to them and they are followed blindly

My belief has one truth we live we die how a life is lived is what matters.
Blame cuture consummerism and greed causes obstruction to research
There is a well known rule of conduct, that can be found in many doctrines "Do not do to others what you would not wish to suffer yourself."It implies respect for other individuals, respect for other views, and if we followed it would reduce violence in the world. When a major disaster strikes people from all corners of the earth feel the urge to help, financially or practically, Perhaps one day a future will be born of spontaneous actions like those following world isasters when many people instantly feel the urge to act. The future already has more possibilities for like-minded people to communicate, to strengthen their bonds of friendship, and to cooperate no matter what country or illness .
Thelma hit the keys speak your words Im hearing what your saying







QUOTE=Thelma;699231]for that which will make this disease fade away from mankind. Yet we still have the interests and desires to maintain contact with our friends and neighbors that we have come to know and like and even dislike over the years of the internet.

When we had Braintalk we spoke and argued and even left the site and came back over and over again because we had all become in some sense friends. Now we are all scattered over many sites and have none of our own.

Why is this you may ask. Well for one reason it is only us and no other that know what this disease entails. Bobby once told me that as long as I could type I could be of use to someone. didn't matter who even, just keep it up. Well even I lost hope in doing even that.

I argued against everything that made it so hard for us to get words on the monitor and how long it took for just a few sentences to be produced and then deleted in a nanosecond.

But somewhere I lost the fact that by not posting and letting the chips fall I was helping to close the doors to that little avenue of contact that so many of us had with the outside world.

So then what if we take advantage of what is left and use it to maintain what really is the most valuable asset to having this place and make the effort to stay in touch and let it be known we are still alive and we count.

My name is Thelma and I have Non Hodgkins Lymphoma stage 5. I lost my brother to alcohol and Als and my grandson to alcohol, drugs and Als and my Father to Al.

If I know you, Hi there how are you, If i don't know you, Hi there how are you,

If you know me tell me how you are and how you are doing.

To #$%# with how angry you are and how hard it is. This is a way to communicate so

LET'S DO IT[/QUOTE]

Welcome aboard once again

This train Neurotalk can take us to our imaginations or to the harshest realities of life or it can take us to a place of just ralaxation and friendship.

This train can go anywhere we want it to go.

I remember your name Breeze and sorry not your life story. That is such a great name. Close your eyes and just feel the Breeze. now that's cool.

It takes a lot of hard work to live with Als and Parkinson's and while Cancer is no picnic I can imagine what the Dx could do to one's ability to accept it.

There is some interesting work being done here in Vancouver Canada by Dr Neil Cashman at the University of British Columbia in the field of Protein research and in particular the area of misfolding proteins.

I have one piece that was sent to me but there is no url to go to and I don't know if I can put it in. It's not that long but I know it is Dr Cashman even though it doesn't say so on it. Maybe someone will tell me. If you remember me from so long ago you will remember my mouth and it has me in the hot seat here too, lol. I have to wait for approval before I can post.

But a site for us is not to be easily gotten and so take advantage of what we have here and so what if I sometimes don't agree with the rules take it from me it is worth it.

So stay here and keep me company and maybe, just maybe we will hear from those friends from the past. I hope so.

Rulu, so you remember him, used to tell me,and he and his wife were psychologist's, or at least she was, he was a Psychiatrist, well he said to try and not talk so much maybe just listen ...............to him preferably lol

Wish he was here Wish many were here But we are here and this is a good place to remember him and them.

so once again Welcome aboard

Hi Thelma I wasnt Breeze,I am laughing at the discriptive of calm,Im totally bloody minded and determined,I was wobl in those days,dumped the name,because I dont wobl anymore.,intresting times are ahead.Live as well as you can with the contstraints of your illnesss