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| ALS For support and discussion of Amyotrophic lateral sclerosis (ALS), also referred to as "Lou Gehrig's Disease." In memory of BobbyB. |
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03-01-2007, 01:13 PM
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My son Jason(16) became paralyzed after colliding with another soccer player when he was just 7 years old. ( a bloodclot developed in the basilar artery)
He became locked-in. The only movement left was the blinking of the eyes. ALS is also known to lead to Locked-In Syndrome, so that's why I am posting in this forum. |
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03-01-2007, 05:22 PM
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((((((Faye)))))),
I've pulled together a few URLs into my online bookmarks. You might want to take a look: http://public.murl.com/moose53/HEALT...ED-IN_SYNDROME Interestingly, there was just an article in the news recently about using Viagra for locked-in syndrome stroke patients to see if they will/can grow new nerve and blood connections: http://www.wzzm13.com/news/news_arti...?storyid=71287 You might also want to read about Hero Joy Nightingale http://www.robotwisdom.com/jorn/hojoy/. She's got major **ATTITUDE**  Hugs. And welcome to NeuroTalk. Barb |
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03-01-2007, 07:07 PM
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Hi Faye,
Welcome, I have ALS but I read and follow your posts with great interest on Care Cure. You are a true warrior advocate and I truly believe that Kerr's and Kerstead's research as well as a few other's will benefit both ALS and SCI. Also contact the MGH ALS Clinic http://www.massgeneral.org/pubaffair...6ALSclinic.htm contact Matt Bellanich, NP, at (617) 726-8741. Good luck! Last edited by Curious; 03-01-2007 at 09:34 PM. Reason: links against NeuroTalk Guidlines |
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03-05-2007, 11:07 AM
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Quote:
There were a few others who responded, ....... unfortunately I cannot remember their names and don't see their posts anymore,.........but thank you also! I appreciate the welcome, compliment and info. |
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Locked In Syndrome
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