[deebee78]

Hi,
My sister is my best friend, my everything. Last Christmas we got the news she has ALS. It started low in her lower extremities and the disease is progressing slowly. Thank god. I am in pain. I just can't emagine my life without her. I am a nurse and I know what is to come. We have had the talks. I am strong for her infront of her, but falling apart when I am alone. I will be the one taking care of her. I wouldn't have it any other way, but I am falling apart. I am hoping that people that have gone through or is going through the same thing I am, I can find help, some advise, someone that understands this...Deb

[Bonny]

Hi Deb. Im writing this to let you know that you are not alone. My mum has recently just got diagnosed with bulbar palsy at christmas time.( however for know she is in great condition very little problems except slurred speech and minor muscle wasting). She to is my best friend to and cant imagine my life without her as i am only 18. I will be the one looking after her as i also feel this is my duty and is pleased to do so. Even though this is very hard and it breaks your heart please remember that you are not alone. feel free to email if you need any support ill be glad to be able to talk to someone to. Bonny

[JB63]

There is a very active forum, http://www.alsforums.com/forum/index.php. This is not to take away from Neurotalk which is absolutely wonderful, but this section is, thankfully, slow.