ALS For support and discussion of Amyotrophic lateral sclerosis (ALS), also referred to as "Lou Gehrig's Disease." In memory of BobbyB.


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Old 07-06-2012, 12:36 AM #1
TMKLB TMKLB is offline
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Join Date: Jul 2012
Posts: 1
10 yr Member
TMKLB TMKLB is offline
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Join Date: Jul 2012
Posts: 1
10 yr Member
Default 19 years old progressive als diagnosis

hi im here because i have questions regarding my diagnosis. let me tell you my story first.

This past year i was a senior in high school. last september, while i was typing i realized a slight change in my left pinky. it felt weak. i didn't think it was something major so i thought nothing of it.

over time i began having trouble buttoning pants,turning keys. finally i see doctors and they can't find the problem so they recommended me to a neurologist. he can't find issue either.

so in february, i saw another neurologist. he does emg and muscle biopsy. he says my upper neurons are fine but lower, not so much. he diagnosis me with PMA.

i decide to travel to texas for a second diagnosis. they do the same tests but also include lyme and spinal tap. given same dx.

for my age this is rare, and PMA is rarest form of als. so im questioning it.
My dog would always come in house with ticks on him, and i would be the one to take them off. should i ask for a trial of antibiotics even though the lyme test came back negative?
I've done my research and found other lower neuron diseases. i found out about MMN. the possibility of it being this hasn't been mentioned.
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