ALS For support and discussion of Amyotrophic lateral sclerosis (ALS), also referred to as "Lou Gehrig's Disease." In memory of BobbyB.


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Old 09-08-2013, 01:23 AM #1
jenng jenng is offline
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Join Date: May 2013
Posts: 135
10 yr Member
jenng jenng is offline
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Join Date: May 2013
Posts: 135
10 yr Member
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As far as accuracy of EMG's, I would recommend that your follow-up/future EMG's be at the same center with the same doctor/technician. EMG's/NCS vary widely between providers, so the only way to be more certain about changes is to see the same provider.

I am surprised they didn't mention BFS, also surprised they threw out "possible ALS." Sure, with unequal reflexes they may want to monitor you over time since you are young. But really, unless you start developing weakness then what's the point worrying you prematurely?

I've dealt with benign fasiculation for almost 5 years, and worried myself with the fear of ALS. I have brisk knee reflexes, but they are equal bilaterally. I have chronic denervation in my left foot, which may be related to some lumbar/sacral issues I have. My point, I guess, is I know how anxiety can get to you about this. I've struggled, and finally gotten (mostly!) to the place that I can't worry about something that hasn't shown up yet. ALS shows its face and progresses in a fairly predictable pattern, or so I'm told. Keep an eye on your symptoms, but it doesn't seem clear that it's what you have.
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Idiopathic Sensorimotor Polyneuropathy
Atypical Migraine
Chiari 1 malformation 7 mm
PLIF L5-S1 Sept. 2013

Lumbar MRI March 2013: degenerative changes from L3 to S1. L3 and L4 have tiny annular tears with disc bulge. L5-S1 bilateral pars defects anterolisthesis (spondylosis/spondylithesis?) I have an annular tear here too, along with a conjoined left L5-S1 nerve root. Mild effacement of the thecal sac at the origins of the bilateral S1 nerve roots, left greater than right. Mild bilateral Neural foraminal stenosis.
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