ALS For support and discussion of Amyotrophic lateral sclerosis (ALS), also referred to as "Lou Gehrig's Disease." In memory of BobbyB.


advertisement
Reply
 
Thread Tools Display Modes
Old 06-30-2015, 11:06 AM #1
VHDude78 VHDude78 is offline
Junior Member
 
Join Date: May 2015
Posts: 32
8 yr Member
VHDude78 VHDude78 is offline
Junior Member
 
Join Date: May 2015
Posts: 32
8 yr Member
Default Does This Sound Like ALS?

Hey everyone. I have a long story but I'll try to keep it as short as possible. Back in April I experienced some trap/shoulder pain along with tingling and weakness of the right arm. My doctor ordered physical therapy. My symptoms seemed to improve with therapy. I stayed away from weights for a while. Every once in a while I would get tingling weakness in my right when I was active. It would usually go away. After about a month I was discharged from therapy. I would occasionally have issues with my right arm but symptoms would go away. During therapy I would frequently run the bleacher stairs at my high school. A few weeks after therapy I returned to my normal routine at the gym. On Mothers Day the new symptoms arrive. I began getting tightness in the back of my neck, dizziness, hand coordination was terrible, and I began getting heaviness in my right leg. It ached, was stiff, sometimes I could barely walk on it. It went back to my primary care doc and he blew me off. I went to an orthopedic surgeon. He did an MRI of my cervical spine thinking maybe I had a disk issue in my neck. MRI was normal. He referred me to a neurologist. The neuro did his examination and couldn't find any major issues. Maybe just some nerve irritation. He thought maybe I had an onset of MS and ordered an MRI of my brain.

MRI was clean. He said, "You're fine...you have nothing to worry about. Just take it easy." So I went back to my orthopedic doctor. My hand coordination/foogyness subsided a little. He realized my hamstrings were incredibly tight. He said, "This is the tightest I've ever seen." He realized my back muscles were very tight, too. He ordered physical therapy. I went back to the same therapist I went to in April. She was confused by my symptoms. She asked me ALS questions. "Are you having an issues buttoning up a shirt..opening doors..turning keys?" I answered no to them all. She did an exam herself. My leg reflexes were a little brisk. Had me stand on my toes, ECT. All fine. My range of neck has improved greatly with physical therapy. My leg and balance is still off. I went back to my primary doctor and told him what was going on. He seemed a little concerned. Wanted me to continue therapy and recommended me to see another neurologist. He also ordered blood. I'm going to see a neurologist tomorrow. Just recently I've been experiencing a problem with my right hand cramping a little and getting muscle twitches. I'm getting twitches in both legs that are visible. I'm getting twitching all over as well.. which is probably anxiety. I haven't been able to run in over a month because I feel like I might fall over. Walking feels a little awkward sometimes, too. Leg cramping is intermittent but it has felt weak for the most part. A lot of people tell me, "There's NO way you have ALS." They have not done an MRI of my lower spine yet. Does this sound like possible ALS?
VHDude78 is offline   Reply With QuoteReply With Quote

advertisement
Old 06-30-2015, 11:38 AM #2
Jomar's Avatar
Jomar Jomar is offline
Co-Administrator
Community Support Team
 
Join Date: Aug 2006
Posts: 27,673
15 yr Member
Jomar Jomar is offline
Co-Administrator
Community Support Team
Jomar's Avatar
 
Join Date: Aug 2006
Posts: 27,673
15 yr Member
Default

There is info in the sticky thread -
http://neurotalk.psychcentral.com/thread258.html
__________________
Search NT -
.
Jomar is offline   Reply With QuoteReply With Quote
Old 11-17-2015, 07:54 AM #3
Tb12 Tb12 is offline
Junior Member
 
Join Date: Sep 2015
Posts: 36
8 yr Member
Tb12 Tb12 is offline
Junior Member
 
Join Date: Sep 2015
Posts: 36
8 yr Member
Default

Any answers vhdude?
Tb12 is offline   Reply With QuoteReply With Quote
Reply

Thread Tools
Display Modes

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off


Similar Threads
Thread Thread Starter Forum Replies Last Post
Does this sound like MG? wesker17 Myasthenia Gravis 6 09-18-2014 02:51 AM
Does this sound like MG? michguy88 Myasthenia Gravis 5 08-22-2012 12:45 AM
Does this sound like RSD? 343v343 Reflex Sympathetic Dystrophy (RSD and CRPS) 3 01-07-2012 10:02 PM
Help! Does this sound like PCS? cnorma11 Traumatic Brain Injury and Post Concussion Syndrome 3 12-09-2011 08:47 PM
Please help, does this sound like TN? Tammy51978 Trigeminal Neuralgia 2 01-10-2011 11:34 PM


All times are GMT -5. The time now is 06:24 AM.

Powered by vBulletin • Copyright ©2000 - 2024, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise v2.7.1 (Lite) - vBulletin Mods & Addons Copyright © 2024 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.


Always consult your doctor before trying anything you read here.