Go Back   NeuroTalk Support Groups > >

ALS For support and discussion of Amyotrophic lateral sclerosis (ALS), also referred to as "Lou Gehrig's Disease." In memory of BobbyB.

Does this sound like ALS?Bulbar

Thread Tools Display Modes
Old 10-09-2015, 07:44 PM   #1
Newly Joined
Join Date: Oct 2015
Posts: 2
Default Does this sound like ALS?Bulbar

My problems started January 3rd and i made the classic mistake of googling symptoms. I was feeling weak with trembling/twitching. I saw a Neurologist, she did the Physical and for my peace of mind order an EMG. It was normal. EMG was done by an doctor with 40 plus years of experience. EMG was done on both legs and arms mid january

long story short i saw another 10 plus Neurologist. Some in USA and some in Pakistan. So in Pakistan a Neurologist said let's do another EMG. he did and said i have both als/bulbar at the same time. I was scared so i sent in my report to USA doctor. I was told that in January EMG i had no spontaneous activity and the 2nd EMG done in may also show no spontaneous activity. My usa doctor was Baffled that how a neurologist can Diagnose me when the most important thing he said we look at is the spontaneous activity when we insert the needle. 2nd emg was done on both arms and legs along with Bulbar region and back and no spontaneous activity

so this brings me to present. I came back to USA september 7th and saw 2 of my old Neurologist and both did complete clinical and said i am fine. Combined both had over 60 years of experience in neurology field

so my thing is self testing. I self test my strength on right side of the body

I self test my jaw jerk and hyper activity in muscles

but the biggest is checking my tongue at rest inside my mouth in front of a mirror. So i been checking my tongue for few weeks. My tongue feels weird 24/7 on the left side

so today when i check my tongue i saw it trembling/twitching at rest inside my mouth. especially the left side that has been feeling weird, kind of sore like

My thing is could all these doctors have missed something? and does bulbar only affect one side of the tongue? and both my emg's show no spontaneous activity so do i have anything to worry about?

is it normal for tongue to twitch/tremble at rest? am i putting too much stress on my tongue muscles by keep looking at them?

and from January 2015 to october 2015 wouldn't something had progressed if i had something to worry about? also can i get 10-15 normal clinical exams and still have something like this?

Thank you so much for your help. I am just really worried
mohsenali786 is offline   Reply With Quote
Old 10-09-2015, 10:26 PM   #2
Community Support Team
Jo*mar's Avatar
Join Date: Aug 2006
Location: USA
Posts: 25,825
My Mood: Does this sound like ALS?Bulbar

Did you find the useful sticky threads above the main ALS page?
here is one of them-
These forums are for mutual support and information sharing only. The forums are not a substitute for medical advice, diagnosis or treatment provided by a qualified health care provider. Always consult your doctor before trying anything you read here.
Jo*mar is offline   Reply With Quote
Old 10-10-2015, 12:59 AM   #3
Thelma's Avatar
Join Date: Aug 2006
Location: Burnaby British Columbia
Posts: 795

These sites are all taken near and far from all over the internet and there is no relavance to today and the horrors of ALS. There is no treatment for this hiddeous disease and you will drive yourself crazy by reading on the net.

See a doctor and see as many as you can if you need to feel assured it is not ALS.

No one has the answer save a doctor. Good luck and come back and tell us what you find out. All the best i hope,
Thelma is offline   Reply With Quote

Thread Tools
Display Modes

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off

Similar Threads
Thread Thread Starter Forum Replies Last Post
Bulbar ALS and phlegm? BillO ALS 5 02-20-2014 03:32 PM
ALs bulbar samson77 ALS 4 02-20-2014 03:25 PM
bulbar als worries? samson77 New Member Introductions 3 01-11-2012 04:36 PM
als bulbar jeffrey pate New Member Introductions 5 06-30-2010 05:28 AM
Re. Bulbar symptoms Nicknerd Myasthenia Gravis 17 07-14-2009 10:30 PM

All times are GMT -5. The time now is 07:26 PM.
Brought to you by the fine folks who publish mental health and psychology information at Psych Central Mental Health Forums

The material on this site is for informational purposes only, and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider. Always consult your doctor before trying anything you read here.

Powered by vBulletin • Copyright ©2000 - 2019, Jelsoft Enterprises Ltd.
Search Engine Optimisation provided by DragonByte SEO v2.0.31 (Lite) - vBulletin Mods & Addons Copyright © 2019 DragonByte Technologies Ltd.

All posts copyright their original authors Community Guidelines Terms of Use Privacy Policy