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PALS / ALS Websites, Useful Links & info

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Old 04-21-2007, 02:44 PM   #21
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http://www.carolinasals.org/index2.asp
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Old 05-01-2007, 05:17 PM   #22
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Default ModelTalker Speech Synthesis System

ModelTalker Speech Synthesis System
http://www.modeltalker.com/mt.php


The ModelTalker Speech Synthesis System is a revolutionary software package designed to benefit people who are losing or who have already lost their ability to speak. It allows people with ALS or other conditions to use a synthetic version of their own voice for communication, or to choose a voice best suited to represent them.

The system uses representative segments of recorded speech (either from an individual who is losing the ability to speak or from a person chosen by someone who can no longer speak) to create a unique synthetic voice. This synthetic voice is virtually unlimited, meaning it can be used to express almost anything, including words and phrases not previously recorded. The voice "banking" process is guided by InvTool, our computer-assisted voice recording software. Once this process is finished, an individual will be able to create a synthetic voice by uploading their recordings to an automated voice generation site. The voice, when combined with our ModelTalker speech engine, can then be used with any communication system that is SAPI 5.0 compatible.

To illustrate the potential of this software, below is an interactive text-to-speech form that will demonstrate ModelTalker when used with a professionally recorded and edited female voice.



Please type in some sample text: hello bobby



Here are some additional samples from synthetic voices that have been created by the current beta version of ModelTalker. These synthetic voices were automatically generated from recordings in home or office environments with inexpensive microphones and sound cards. No human editing of the original speech waveforms was done.

Sample 1 (female)
Sample 2 (male)
Sample 3 (male)
Sample 4 (female)

Currently, the complete ModelTalker System is in the early stages of commercial development and we are actively seeking beta testers. If you are interested in participating, please contact us.
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Old 05-25-2007, 09:38 AM   #23
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Spring 2007 Newletter Online Now

5/22/2007


You can read this quarter's newsletter online by clicking on or pasting the following link in your browser: http://www.als.net/aboutus/newsletters/spring2007.pdf
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Old 06-27-2007, 07:23 PM   #24
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Purchase Mike Bougher Paintings for $75 to Benefit the ALSA


I am now selling archival, signed (fingerprinted), giclee prints of my
paintings <http://mikebougher.com/purchase_giclee_prints.htm> for $75
each. Every penny goes to the ALSA to pay for research and patient
services. Please consider forwarding this message to others who may be
interested in this art opportunity that supports the ALS cause.


Thanks,
Mike Bougher

[Age: 42] [Dx: July 1998] [Bi-Pap: Nov. 1998] [WC: Aug. 1999] [24/7
Bi-Pap: Nov. 2002], [Trach/Vent/PEG: Dec. 2004] [Happy/Going Strong:
Present]

http://mikebougher.com <http://mikebougher.com>
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Old 07-11-2007, 07:37 AM   #25
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Ribbon

The Team at MND Victoria
www.mnd.asn.au

Welcome to the Home Page and Web Site of the Motor Neurone Disease Association of Victoria, Australia (MNDAV).

In Australia, MND kills one person every day
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Old 07-18-2007, 03:48 PM   #26
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Help



http://www.nahc.org/


///////////////////////////////////////////////////////////////////////




http://www.independentliving.org/
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Old 07-31-2007, 06:57 PM   #27
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The IntegraMouse® is a mouse controlled by lip movements and sip and puff clicking. It is ideal for computer users with various physical challenges including total paralysis, amputees, muscular dystrophy, or multiple sclerosis.

If you have severe physical challenges using a computer is a powerful aid to independence. The computer today can offer so many benefits to the special needs user; facilitating communication and interaction, as well as providing access to a wealth of information. The computer is an empowerment tool, dramatically enhancing your quality of life.

Accessing the computer other than via a standard keyboard and mouse can present a number of problems. However the IntegraMouse® is a highly attractive solution for a large range of challenges. The IntegraMouse® is especially designed for users who are unable to operate a mouse with their hands.




IntegraMouse® has all the functions of a standard mouse enabling the user to control all functions of the computer by lip movements. The IntegraMouse offers a sensitive sip and puff solution that controls the range of mouse clicks (left click, right click, double click, drag&drop).

To operate, the user simply places the mouse between the lips and operates the cursor by applying pressure with the lips. Requiring as little as 0.1 mm of movement or 10g of pressure to control the mouse, the IntegraMouse enables the computer to be accessible to users with physical disabilities and limitations. Mouse-clicks are triggered by the user slightly sipping and puffing into the mouth piece.

David Hofer, director at LifeTool: „The essential advantage of IntegraMouse® is achieved through a membrane in the mouthpiece of the device which partially blocks the flow of air coming in. By breathing in and blowing out this membrane makes movements forwards and backwards. The underlying optical sensor take the movements of the membrane and change them into corresponding mouse signals.“

The IntegraMouse® differs from world-wide alternatively by several, innovative components:


certification as a medical device after the European medicine law because of high hygienic standards
registered patent
evaluated product and available in 23 countries all over the world
designed as a long life product under highest quality standards

simple installation through plug & play (USB)
no external power supply required
no drivers or installation of additional software needed
can be used by several persons by exchangeable mouthpiece
minimum physical expenditure for controlling the IntegraMouse® sufficiently
the possibility, to have a break or leave the computer without assictance
by using complementary soft & hardware the use of TV, radio, telephone, fax, email, SMS & environmental control in combination with the IntegraMouse® is possible
permanent and direct view to the screen is given
very elegant solved Design
no other attachment of control units at the body or head of the user necessarily
awarded as a innovative product in Austria, Germany, Spain, Czech Republic and Japan

http://www.lifetool.at/show_content.php?sid=218
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Old 08-02-2007, 11:31 AM   #28
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Cool The web's best ALS sites

The web's best ALS sites

May 22, 2007
You may know Amyotrophic Lateral Sclerosis (ALS) as Lou Gerhig's Disease, a progressive neurodegenerative disease that affects nerve cells in the brain and the spinal cord. About 15 Americans are diagnosed with the disease each day. If you or someone you know is battling ALS (or if you'd like to volunteer to support the search for a cure), these sites rank among the web's best resources on the topic. Print Email ALSA.org

http://www.alsa.org

For patients, their families and anyone who wants to help battle this disease, this website serves as an indispensable learning tool and outreach directory. Fiercely dedicated to leading the fight to cure and treat ALS, the Association's high-impact accomplishments include convincing Congress to waive the 24-month waiting period for Medicare coverage for people with ALS. Its site offers advice for patients and families (with a section dedicated to veterans), archives news and public policy issues, and details research and clinical trials. Go online to join in the national Walk to D'Feet ALS or to learn about volunteer opportunities.

Print Email March of Faces

http://www.march-of-faces.org

A grassroots organization managed and governed by ALS patients and caregivers, March of Faces is dedicated to spreading awareness about the disease. The site displays the poignant March of Faces banner, a photo display of men and women who have been stricken with ALS. The group's members use education, awareness, advocacy and fundraising events to inform the public and accelerate the search for a cure. Find free downloads of adaptive technologies like text-to-speech software, and donate to the cause via this website.

Print Email ALS Care

http://www.alscare.com

Nurse Mary Beth Geise has dedicated much of her 20-plus-year career to developing and creating better home care strategies that help ALS patients live more comfortably and productively. Patients, their families, and even drug companies have turned to her for help and expert advising on the topic of ALS care. The site is an invaluable resource, with links to other advocacy organizations and free downloads of documents and videos on care topics like methods for easing respiratory problems and coping mechanisms for caregivers. Phone consultations are available.

Print Email Project ALS

http://www.projectals.org

Patient Jenifer Estess, diagnosed with ALS at age 35, started Project ALS with help from her family in 1998. To date, the fundraising organization has raised more than $30 million, contributing 81 percent to research programs, and has encouraged scientists who were once competitors to work collaboratively toward a cure. Peruse this site for a well-organized tour of breaking news about ALS and new research, including quick blurbs and photos of the researchers supported by the Project.

Print Email Ride for Life

http://www.rideforlife.com

Established in 1998 by ALS patient Chris Pendergast, the organization's signature event, The Ride, is a 10-day tour completed by ALS patients in their electric wheelchairs to generate public awareness and raise funds for finding a cure. At least half of Ride for Life's income is donated to cure-focused research programs, while at least 40 percent is directed toward Ride's patient services. These include $1,500 grants for home care expenses and $750 grants for legal expenses, which ALS families can apply for via the site.

Print Email Les Turner Amyotrophic Lateral Sclerosis Foundation

http://www.lesturnerals.org

This Skokie-based nonprofit organization is the only Chicago-area non-profit devoted solely to the treatment and elimination of ALS. In 1986 funds from the Les Turner Foundation helped establish the Lois Insolia ALS Center, a facility at Northwestern Memorial Hospital in Chicago dedicated to the total care of people with ALS, from neurological exams to nutrition and social assistance. The site offers information about the latest research findings, as well as Chicago-area events like ALS Walk4Life and Lou Gehrig Day at Wrigley Field.

Print Email International Alliance of ALS/MND Associations

http://www.alsmndalliance.org

More than 50 patient support/advocacy groups from more than 40 countries participate in the International Alliance, founded in 1992 as a forum for the exchange of information between worldwide organizations battling ALS. Members discuss common issues like the inadequacy of health systems for dealing with this disease's demands and the challenge of attracting funds and volunteers to the cause. The Alliance has prepared and issued progressive documents such as a Baseline of Services for People Living With ALS/MND; full text of relevant documents, updated international news and contact information for ALS nonprofit organizations around the world are available on the site.

Print Email ALS Therapy Development Institute

http://www.als.net

When his brother Stephen was diagnosed with ALS in 1998, James Heywood, former director of technology development at the Neuroscience Institute, left his position to found the ALS Therapy Development Foundation, the world's first ALS-focused nonprofit biotechnology company. In January 2007, a grant from the Muscular Dystrophy Association allowed the company to partner with the MDA under a new name, ALS TDI. The Institute, based in Cambridge, Mass., is now the world's largest research program dedicated to discovering drugs to treat ALS. Related news, including research developments, nutrition findings, and public interest stories about ALS patients, is regularly posted to the website.

Print Email ALS Hope Foundation

http://www.alshopefoundation.org

The ALS Hope Foundation provides long-term support to researchers working toward a cure, clinics specializing in ALS care, support programs for patients and caregivers, and educational programs for physicians and patients. In addition to other projects, the Pennsylvania-based organization funds research and education at the MDA/ALS Center of Hope at Drexel University College of Medicine in Philadelphia. Read about the center's work and learn more about the disease and available therapies and aids, via easy links on this website. The foundation holds several annual fundraising events, and welcomes volunteers.
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Old 08-09-2007, 04:46 PM   #29
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Trophy Muscle Communicator



Testimonials



"In my searching, this is the most accurate
and reliable EMG switch available.
It was very easy and an excellent
access method.... When the technology is used as a switch there is not a better solution for the nearly locked-in."

David Jayne, on the Muscle Communicator
15 year ALS patient & EZ Keys user



Allows those with ALS and other near locked-in conditions the ability to navigate their computer with a mouse or communicate with synthetic speech simply by using any part of their body that still has controllable muscle movement, such as the jaw, eyebrow, or even the eyes. Needs only very minor muscle strength, even muscles whose movement is visibly undetectable.

EMG, EOG, piezo, and button press switches are available.

http://www.neuralsignals.com/index.htm
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Old 08-16-2007, 07:33 AM   #30
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Hands-Free Mousing
http://www.fentek-ind.com/nh-mouse.htm

Foot Controlled Hands Free Mouse
Avoid carpal tunnel syndrome and mouse induced Repetitive Stress Injury associated with desktop mice. Using the foot controlled mouse eliminates stress on the delicate hand-wrist area by moving mouse control to the feet. This prevents awkward wrist, elbow, and shoulder positioning before chronic pain develops. It also eliminates wasteful, repetitive "keyboard-to-mouse" hand movements increasing productivity. With the foot controlled mouse, you can have complete control of the cursor without having to take your hands off the keyboard, or your eyes off the monitor.

The foot controlled mouse is a two part system: one for cursor control ("slipper"), the other for mouse clicks and shortcuts (the "pedal"). The slipper shaped cursor controller is easy to use and efficient. With an elastic strap and velcro ends, it fits any size foot. The two-level pedal buttons mimic all regular mouse clicks but can also be programmed with any customized shortcuts (as many as 10 shortcuts for each program). It arrives preset with many popular shortcuts selected from widely used programs.

Features:
Two level ergonomic layout of control pedal
One pedal controls cursor movement. The other is for mouse clicks
Programmable buttons for defining any shortcuts/hotkeys
Window on monitor shows all button functions
Preset popular shortcuts for popular programs
Slipper shaped and efficient cursor controller
Powered by user-friendly Neuratron™ software
Compatible with Windows 98E, Me, 2K, XP, Vista; Apple Mac OS X 10.3 and later
Connection to computer is via USB Port
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