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PALS / ALS Websites, Useful Links & info

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Old 05-11-2008, 10:05 AM   #51
BobbyB
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Ribbon Help for Children of Families with ALS

Help for Children of Families with ALS
http://shelbie.org/

Welcome to Shelbie.org !
Our mission is to help provide funding for the extracurricular activities for the children of families afflicted with ALS through fund raising events and campaigns. To help ease the pain and stress of the tough decisions that are made due to the financial strain of managing ALS. To help ensure that all ALS families can afford the opportunity for their children to have constructive outlets for their interests, creativity, and abilities.

http://shelbie.org/


Shelbie.org
c/o Shelbie Oppenheimer
113 Equestrian Drive
New Hope, PA 18938

shelbieorg@gmail.com
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Old 05-16-2008, 08:54 PM   #52
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Fox Trotters
http://ericjfox.blogspot.com/2008/05...home-safe.html

Thank you for checking out our website/blog. By journaling and updating this website we will attempt to keep friends and family up to date on what is going on inside our lives. Living with a terminal illness (ALS) and demonstrating how God is working in our lives to bring Him glory during this trial. Be sure to click on and sign the BUDDYMAP and let us know where your viewing from. We appreciate your gracious prayers and support during this season of our lives! We Love You All So Much!
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Old 07-01-2008, 12:11 PM   #53
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Link The new eye gaze accessory for the DynaVox Vmax (EyeMax)

The new eye gaze accessory for the DynaVox Vmax (EyeMax)
From Dyna Vox Site

With a simple blink, click of a switch or by dwelling on the desired area of the screen an augmented communicator will be able to access all of the current capabilities and content of the DynaVox Vmax. The new EyeMax accessory can be added to any Vmax that has either 512MB or 1GB RAM and can be removed as needed for evaluations.

http://www.dynavoxtech.com/products/eyemax.aspx
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Old 11-01-2008, 10:04 PM   #54
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Old 12-11-2008, 07:40 AM   #55
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NORML Website

New Research Link
Check the left sidebar. As you scroll down, you’ll see the links I collect as I work on these stories. Heard about a movie on the Stash? Its website is down there. Heard an interview with an activist? Their website is down there. Now I’ve added a new category, Research, with all the links to scientific research and government statistics I use in my rants. Enjoy!

http://stash.norml.org/2008/12/10/new-research-link/
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Old 02-08-2009, 12:14 PM   #56
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Today's Front Pages from newspapers around the world. [fun and may even be a bit useful.]


The below link is kind of fun and may even be a bit useful.







Just put your mouse on a city anywhere in the world and the newspaper headlines pop up. Double click and the page gets larger. Then you can either read the pdf version or click through to the paper itself in the upper right corner.



http://www.newseum.org/todaysfrontpages/flash/

Also, if you look at the European papers, the far left side of Germany will pop up as The Stars & Stripes (European edition). AND, this site changes every day with the publication of new editions of the paper.
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Old 04-24-2015, 10:31 PM   #57
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What is ALS? - The ALS Association
www.alsa.org/about-als/what-is-als.html

ALS Association
Amyotrophic lateral sclerosis (ALS), often referred to as Lou Gehrig\'s Disease, is a progressive neurodegenerative disease that affects nerve cells in the brain ...
‎Symptoms - ‎Stories of Hope - ‎Facts You Should Know - ‎Year End 2014
ALS Association: Homepage
www.alsa.org/

NINDS Amyotrophic Lateral Sclerosis (ALS) Information Page
http://www.ninds.nih.gov/disorders/a...erosis/ALS.htm
National Institute of Neurological Disorders and Stroke
Symptoms, diagnosis, treatment, and research on ALS, motor neuron disease, or Lou Gehrig's disease from the National Institute of Neurological Disorders and ...

Amyotrophic lateral sclerosis (ALS) - Mayo Clinic
http://www.mayoclinic.org/diseases-c..../con-20024397
Mayo Clinic
ALS is often called Lou Gehrig's disease, after the famous baseball player who was diagnosed with it. ALS is a type of motor neuron disease that causes nerve ...
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Old 10-14-2015, 07:28 PM   #58
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Default PALS Websites and Useful Links

I am updating the research I began more than ten years ago and discovered the following new 'textbooks' published subsequently:

Amyotrophic Lateral Sclerosis: A patient care guide for clinicians
Bedlack and Mitsumoto
Published in 2013
WE 550 A531 2013

Respiratory Management of ALS: Amyotrophic Lateral Sclerosis
Guion, Lee
Published in 2010
WE 550 G964r 2010

My Imaginary Illness: A Journey into Uncertainty and Prejudice in Medical Diagnosis (The Culture and Politics of Health Care Work)
Atkins, Chloë G. K.
Published 2010
WE 555 A873m 2010

Neuromuscular Disease
Benatar
Published in 2006
WE 550 B456n 2006
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