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PALS / ALS Websites, Useful Links & info

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Old 08-29-2006, 11:28 AM   #1
BobbyB
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Location: North Carolina
Posts: 4,609
Arrow PALS / ALS Websites, Useful Links & info

Welcome to the ALS/MND Registry
http://www.patientslikeme.com/registry


http://www.patientslikeme.com/user/login



ALS TDF
http://www.als.net/default.asp

Build-UK Chat Forums
http://www.magimedia.co.uk/buildforu...2f2b25b2148671

Ride for Life
http://www.rideforlife.com/

Living with ALS
http://health.groups.yahoo.com/group...h-als/messages


http://www.quackwatch.org/

The Irish MND association
http://www.imnda.ie/index.cfm/loc/1.htm

CareCure Forums
http://sci.rutgers.edu/forum/index.php

http://www.eurekalert.org/index.php


http://www.extrahands.org/
http://www.geocities.com/sweekes99/ALStitle.html

http://www.permobilusa.com/templates...ge.aspx?id=806
http://www.mattschallenge.com/
http://brainhell.blogspot.com/
http://als.mdausa.org/


http://www.packardcenter.org/

The Jazzy
indoor/outdoor Power Chair.
http://www.accessusaonline.com/davismobility/2.htm

http://www.whatisals.com/
http://www.alsaiowa.org/index.html
http://alsnetwork.com/
http://www.cagw.org/site/PageServer
http://www.chadscorner4pals.com/
http://www.als-options.com/als-links.html
http://www.indestructiblefilm.com/2/home.html
http://www.kylehahn.com/
http://www.leahymusic.com/theband/
http://www.alsmndalliance.org/directory/
http://www.curezone.com/forums/f.asp?f=482


http://march-of-faces.org/

http://www.alsa.org/policy/alsday.cfm
http://home.goulburn.net.au/~shack/
http://home.comcast.net/~mrsre/
http://tpals.org/meds.htm
http://www.enjoyyourlife.ch/kontakt.html
http://health.groups.yahoo.com/group...n-ALS/messages


http://www.projectals.org/

http://www.sanofi-aventis.us/live/us...9-EE05C6172519

http://www.wrongdiagnosis.com/a/amyo...osis/intro.htm
http://www.sammonspreston.com/
http://www.pat.org/classi.html
http://www.wheelchair-van.com/wheelchair_van.php
http://sanlab.kz.tsukuba.ac.jp/HAL/indexE.html
http://www.virtualblueridge.com/park.../overlooks.asp

http://www.disabilitynow.org.uk/time...ksex_feat1.htm
http://www.alscenter.org/
http://www.als-pls.org/Learn.htm


http://www.mndassociation.org/
http://www.alswarriorpoet.com/
http://www.survivingals.com/default.html
http://www.living-with-als.org/index.html
http://www.alsa.org/resources/magazine.cfm


http://www.cdc.gov/

http://als-net.gr/istorikouk.htm
http://www.alsalabama.org/
http://homepage.ntlworld.com/rob.shaz/
http://forums.braintalk2.org/forumdi...daysprune=&f=6
http://www.google.com/language_tools

http://www.iriscom.org/
http://rynomobility.com/RampTruckMedia.htm
https://als.clinicahealth.com/index.pl
http://www.petitiononline.com/create_petition.html
http://cnr.iop.kcl.ac.uk/recordings/...S/speechi.html
http://carlinalsfund.org/index.html
http://www.permobil.com/default.aspx?id=4
http://www.patrickobrienfoundation.org/

http://www.clinicaltrials.gov/ct/action/GetStudy

http://www.stemcellpals.com/mstory/storymy.htm
http://kildare.ie/Voluntary/irish-wh...tion/INDEX.HTM
http://racewilly.tripod.com/davespalspage/index.html
http://brewgrassfestival.com/
http://www.alsconnection.com/
http://www.alscharity.org/index.html
http://www.alsindependence.com/What's_Happening.htm
http://www.wayfaring.com/maps/show/14508
http://en.wikipedia.org/wiki/Main_Page
http://www.gatesfoundation.org/Globa...rantmaking.htm

MDA/ALS Research Centers

These 37 facilities at major medical institutions have been designated MDA/ALS Research Centers, indicating that they’re focal points of MDA’s ALS program. However, excellent care for ALS is available at all of MDA’s 235 clinics. For an appointment, please contact your local MDA office; for further information about the centers see www.mda.org/clinics/alsserv.html.


http://www.alsaco.org/index.cfm?content=blog
http://all.jurkat.biz/phpBB2/viewforum.php?f=1
http://www.eyeresponse.com/Disabilities/
http://www.gloryinweakness.com/forums/index.php
http://www.stemcell.no/
http://livingwithals.net/index.html
http://www.mobilityconcepts.org/index2.html
http://spaces.msn.com/steveayse/
http://www.israls.org/israls_english.htm
http://forum.als-net.gr/viewtopic.php?t=107
http://alsnetwork.com/useful.htm
http://www.march-of-faces.org/aboutus/
http://www.alsa.org/exchange/article.cfm?id=804#5
http://www.sambush.com/



http://www.alslinks.com/

http://www.amsvans.com/index.asp
http://www.braunlift.com/
http://www.assistivetech.com/prod-index.htm
http://www.lakefolks.org/cnt/
http://www.etriloquist.com/index.html
http://www.vestil.com/wc/extreme4x4.htm

http://eyeresponse.com/


http://www.focusonals.com/index.htm

http://www.govbenefits.gov/govbenefits_en.portal
http://www.immly.org/
http://www.magitek.com/
http://www.massgeneral.org/neurology/index.asp
http://www.ninds.nih.gov/disorders/a...lsclerosis.htm

http://www.quackwatch.org/
http://www.easypivot.com./
http://www.directory.net/Society/Dis...Hand-Controls/
http://www.sciencemag.org/feature/data/als/
http://www.discountwheelchair.com/di...lchair_001.htm

http://www.myskeletonkey.com/

http://www.angletechcycles.com/bikes...eeds_bikes.htm
http://www.educational-software-dire...special-needs/
http://www.gusinc.com/

http://www.blvd.com/
http://www.eyegaze.com/2Products/Dis...bilitymain.htm
http://tpals.org/ftube.htm
http://tpals.org/index.htm
http://www.viewpointmobility.com/
http://www.neospeech.com/

ALS Links

www.alsa.org[/url]
www.projectals.org[/url]

www.lesturnerals.org[/url]
www.rideforlife.com
www.ericiswinning.com
http://alstherapy.info

red wrist bands.
www.nevergiveup4pals.org
United Kingdom ALS Support
www.build-uk.net
Spanish ALS Association
www.advernet.es/adela
German ALS Support
www.als-site.de
Scandinavian ALS Web Site
www.sasdx.com
Belgian ALS Support Group
www.ALS-MND.be
Google Language Tools
http://www.google.com/language_tools


http://www.etriloquist.com/

E-triloquisttm is a PC-based communication aid for a speech impaired person.
It serves as an electronic voice for those who can't speak on their own.
__________________

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ALS/MND Registry

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Last edited by BobbyB; 01-27-2007 at 09:34 AM.
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Old 08-31-2006, 10:14 AM   #2
BobbyB
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Join Date: Aug 2006
Location: North Carolina
Posts: 4,609
Default


http://www.wheelchairjunkie.com/



http://www.usatechguide.org/
USA TechGuide
Empowerment by Choice
A Web-Guide To Wheelchairs & Assistive Technology Choices
Peer to Peer Wheelchair Reviews & Assistive Technology Resources

Read or Post Look For Think About
Wheelchair Reviews by Users Equipment & Devices Wheelchair Diffusion
Cushion Reviews by Users
Wheelchair Rec. & Sports, Wheelchair Wisdom
Scooter Reviews by Users Accessible Travel Wheelchair Lemon Laws
Stander Reviews by Users Wheelchair Accessible Vans Canes To Wheelchairs:
Considering Mobility Devices



http://www.magimedia.co.uk/buildforu...2f2b25b2148671

Choosing a Powered Wheelchair
http://www.assistireland.ie/index.as...181&docID=6557

The Happy Hutter
http://thehappyhutter.blogspot.com/

Austria http://als.themenplattform.com/128291.1/
Belgium www.ALS-MND.be
Croacia mailto: marija.sostarko@zg.tel.hr
Denmark www.muskelsvindfonden.dk
Finland www.lihastautiliitto.fi
France www.ars.asso.fr/

www.multimania.com/als/
Germany www.dgm.org
Ireland www.iol.ie/~killeen/stevemnd/imndesc.htm
Island www.mnd.is
Israel mailto:vdrory@post.tau.ac.il
Italy www.aisla.it
Netherland www.vsn.nl

www.als-centrum.nl
Norway http://www.alsweb.no/
www.geocities.com/HotSprings/Spa/9932/

Poland
http://www.idn.org.pl/szczecin/tzchm...strony/sla.htm
http://www.fundacja-sm.malopolska.pl...y/kolo_sla.htm

Scotland www.scotmnd.org.uk
Spain www.adelaweb.com
Sweden http://www.sos.se/smkh/1998-29-078/1998-29-078.HTM
Switzerland ALS -Ratgeber für Betroffene & Angehörige: http://www.neurohelp.ch/als.htm
other CH languages : http://www.hon.ch/HONselect/RareDise...8.854.139.html

Turkey mailto:Coskunoz@superonline.com
UnitedKingdom www.mndassociation.org



Strike Out ALS Wristbands
Now you can help us spread the word about ALS with these fashionable silicone awareness bands. These bracelets are a great way for you to show your dedication to Striking Out ALS.

Donate online now and start spreading awareness! Each bag costs $20.00 and includes 10 bracelets (they are not available individually at this time). From there, it's up to you! You can sell them to your friends and family at our suggested price, or give them away. They also make great Walk Team fundraisers. A flat shipping and handling cost of $2.00 will be applied to each order.

If you prefer to order your wristbands by mail, click here for a printable order form. Mail your form and donation to:

The ALS Association - Jim "Catfish" Hunter Chapter
Strike Out ALS Wristbands
120-101 Penmarc Drive
Raleigh, NC 27603

If you want to order more than 100 Strike Out ALS Wristbands, you can either do multiple transactions online or you can call Mandy toll free at 1-877-568-4347 to make your order by phone.

Buy your Strike Out ALS Wristbands NOW!
http://www.catfishchapter.org/help/Wristbands.html



http://www.dreamfoundation.org/

Packard Center for ALS Research at Johns Hopkins University

www.hopkinsmedicine.org/alscenter

The ALS Therapy Development Foundation
www.als.net

ALS Association's Jim "Catfish" Hunter Chapter

www.catfishchapter.org
www.alsa.org

The ALS Center of Wake Forest University Baptist Medical Center
www.wfubmc.edu/neurology/als/




Helpful Sites for PALS and CALS

ALSlinks.com "An Internet Portal for the ALS Community"
www.alslinks.com

The ALS Survival Guide
www.alssurvivalguide.com

ALS and Associated Websites (a comprehensive collection of ALS resources)

http://www.geocities.com/sweekes99/ALStitle.html



Other ALS Non-Profit'S

Ride for Life
www.rideforlife.com

Project ALS
www.projectals.org

Hope for ALS
www.hopeforals.com

Les Turner ALS Foundation
www.lesturnerals.org

March of Faces
www.march-of-faces.org

The Fran Delaney Foundation
www.frandelaney.org

The Muscular Dystrophy Association
http://www.mdausa.org

MDA's ALS Newsletter
http://www.mdausa.org/publications/als/index.html

The ALS Association
http://alsa.org/

Ride for Life Online
http://www.rideforlife.com

Project ALS
http://www.projectals.org

ALS Links - Internet Portal for the ALS Community
http://www.alslinks.com

International ALS Clinics and Research Centers
http://www.alslinks.com/clinicsinternational.htm

International Alliance of ALS/MND Associations
http://www.alsmndalliance.org

The ALS Society of Canada
http://www.als.ca

Focus on ALS - site created by a PALS for PALS
http://www.focusonals.com/



Coalition for the Advancement of Medical Research
http://www.camradvocacy.org/

Stem Cell Information - the official NIH resource
http://stemcells.nih.gov/index.asp

Stem Cell Action
http://www.stemcellaction.org/

Laboratory for ALS Research, San Diego
http://ludwig.ucsd.edu/ClevelandLabCMM/ALSgroup.html

ALS Digest (online newsletter). Archive is available at http://www.alslinks.com/alsdigestarchives.htm.
CLINICAL TRIALS

MUSCULAR DYSTROPHY ASSOCIATION
http://www.mdausa.org/research/ctrials.cfm

ALS ASSOCIATION
http://www.alsa.org/research/drugdev.cfm

NATIONAL INSTITUTES OF HEALTH
http://www.clinicaltrials.gov/

ALS Association (USA):
http://www.alsa.org/

ALS Association, Greater Philadelphia Chapter
http://www.als-phila.org/

Motor Neurone Disease Association (UK)
http://www.businessconnections.com/mnd/mnd.htm

Irish Motor Neurone Disease Association
http://www.iol.ie/~killeen/stevemnd/imndesc.htm

Deutsche Gesellschaft f r Muskelkranke
http://weka.rpr-cologne.de/

ADELA (Association Espanola de Esclerosis Lateral Amiotrofica)
http://www.seker.es/adela

AMELA (Asociacion Madrilena de ELA)
http://www.servicom.es/amela/0 AMELA.HTM

ALS Advocacy
http://pages.prodigy.com/ALSPROD/



Medical/Scientific/Commercial

The John Bevan MND Research Unit:
http://http1.brunel.ac.uk:8080/~hssr...g/als_rsrc.htm

Cleveland Clinic Foundation:
http://www.ccf.org/ed/pated/events/als.htm

Baylor College of Medicine, Department of Neurology MDA/ALS CLINIC
http://www.bcm.tmc.edu/neurol/struct/als/als1.html

Washington University School of Medicine (St. Louis, MO); Neuromuscular Disease Center
http://www.neuro.wustl.edu/neuromuscular/

Neurosciences / United States:
http://www.lm.com/~nab/

Neurosciences / United Kingdom:
http://www.genetics.gla.ac.uk/neil/index.html

Neurosciences / Germany:
http://ilsebill.biologie.uni-freibur...ror/index.html

Drug InfoNet; ALS:
http://www.druginfonet.com/lougerig.htm

PLS Consulting: ALS Doctor's Guide to the Internet:
http://www.pslgroup.com/ALS.HTM

The Glaxo Neurologic Centre
http://www.connect.org.uk/merseyworld/glaxo/

American Academy of Neurology:
http://www.aan.com/public/bals.html

The Birmingham Neuroscience WWW pages
http://medweb.bham.ac.uk/clin_neuro.html

Neuroscience Resources: A component of The World-Wide Web Virtual Library; Cornell University Medical College Department of Neurology and Neuroscience
http://neuro.med.cornell.edu/


http://www.aavans.com/
__________________

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ALS/MND Registry

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Last edited by BobbyB; 11-03-2006 at 09:10 AM.
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Old 09-01-2006, 08:03 AM   #3
BobbyB
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Join Date: Aug 2006
Location: North Carolina
Posts: 4,609
Default Pals Websites

pals Websites

ADD YOUR SITE OR IF YOU KNOW OF ONE PLEASE.

///////////////////////////////////////////////////////////////

http://www.chadscorner4pals.com/
http://www.indestructiblefilm.com/2/home.html


http://www.kylehahn.com/

http://home.comcast.net/~mrsre/
http://tpals.org/index.htm
http://als-net.gr/istorikouk.htm
http://homepage.ntlworld.com/rob.shaz/
http://steveayse.spaces.live.com/
http://www.alslinks.com/
http://www.scnature.com/
http://www.siteone.com/health/woodard/index.html
http://home20.inet.tele.dk/heaven/en/index.htm


Jeannie
My blog http://jeannie-world.blogspot.com/
My website http://uk.geocities.com/jeannie_25als@btinternet.com/

ALS/MND CHATROOM http://client1.sigmachat.com/sc.pl?id=144320
http://uk.geocities.com/jeannie_25als@btinternet.com/
http://groups.msn.com/duckiesbitofmsn/_homepage.msnw
http://www.geocities.com/mannco74/
http://www.onefivenine.info/johnclose.htm
http://www.als-gruppen-vestjylland.dk/
http://www.geocities.com/crafttmk/countryside.html
http://lindenwoods.tripod.com/
http://www.wheelsworld.co.uk/
http://www.justgiving.com/franceslowe
http://www.alsalternative.com/
http://www.als-project.com/
http://walk.catfishchapter.org/site/...0&team_id=7240
http://robertmnd.blogspot.com/
http://www.justgiving.com/granmac

http://home.goulburn.net.au/~shack/
http://brainhell.blogspot.com/
http://home.earthlink.net/~leonpeek/
http://www.johnsjourney.org/
http://www.patrickobrienfoundation.org/
http://hometown.aol.com/abe11/Davesindex.html
Serge J Vincent
http://www.als.ca/events/mysite.aspx...83&AdminMenu=1


http://home.goulburn.net.au/~shack/

Kramer Family Homepage
http://home.pacbell.net/ranger-1/

Joel Cutler's Website
http://www.als.ca/events/mysite.aspx?fid=561



alswarriorpoet.com/als.html

Alive and Kicking with ALS
http://www.karalynn.net/index.html
__________________

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ALS/MND Registry

.

Last edited by BobbyB; 11-16-2006 at 08:09 PM.
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Old 09-08-2006, 09:03 PM   #4
BobbyB
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Join Date: Aug 2006
Location: North Carolina
Posts: 4,609
Smile

Dont get lost.............

PALS / CALS – PERSONAL WEB SITES:
Note: Names in bold are PALS / CALS Web Sites that have been in existence for more than five years.Compiled By: Steve Weekes ( sweekes99@yahoo.com )

(Listed Alphabetically by First Name)
Al Pickens’ Web Site: http://www.alslinks.com/ (“Al’s ALS Links”)
Alfred Butler’s Web Site: http://www.albutler.com/
Alfred Caffiero’s Web Site: http://www.alfredcaffierofoundation.org/ (“Alfred Caffiero Foundation”)
Angelo Sciulli’s Web Site: http://www.scnature.com

Bert Woodard’s Home Page: http://www.siteone.com/health/woodard/ (“An ALS Manual”)
Bill Quinn Jr.’s Web Site: http://www.alstasteoffame.com/ (“ALS Taste of Fame”)
Brenda Cupelli’s Home Page: http://www.geocities.com/story_als/ (“A Story Of Spirit”)
Brent Fendley’s Home Page: http://members.tripod.com/brentsplace/ (“Brent’s Place”)

Cheryl Mathews-Prock’s Web Site: http://alsnetwork.com/ (“ALS Network”)
Chuck Hollenbach’s Home Page: http://members.aol.com/alspinpoint/index.html (“ALS PINpoint”)
Claire Culver’s Web Site: http://www.alssupport.org/ (“The ALS Support Network of Appalachia”)
Connie Zol’s Home Page: http://members.aol.com/zol588/
Craig Samples’ Home Page: http://members.aol.com/jcsam3/ (“Craig’s Place In Cyber Space”)

David Abell’s Home Page: http://hometown.aol.com/abe11/Davesindex.html
David Huff’s Home Page: http://communities.msn.com/PALSPeoplewithALS
Dean Chioles’ Home Page: http://www.shoptown.com/dean/Default.htm
Debbie Tope’s Web Site: http://www.focusonals.com/ (“Focus On ALS”)
Deliamc’s Home Page: http://www.geocities.com/HotSprings/2130/
Desmond Schulemann’s Home Page: http://www.fascinatinglife.com/ajournal.html (“An ALS Journal”)
Diane Huberty’s Home Page: http://home.att.net/~liveletdie5/ALS/ (“Nursing Tips for Living with ALS”)
Don Moore’s Home Page: http://members.aol.com/pjungles/PjunglesBegin.html
Donna Bohm’s Web Site: http://www.donnasjourneywithals.com/ (“Donna’s Journey With ALS”)
Doug Eshleman’s Web Site: http://www.lougehrigsdisease.net/ (“ALS Survival Guide”)
Doug Jacobson’s Home Page: http://home.earthlink.net/~jakesan/ (“Doug’s Beat ALS”)
Doug Satterlund’s Home Page: http://www.geocities.com/satterlu/

Edward Holmes’ Home Page: http://artists.mp3s.com/artists/129/....html?lang=eng

Gary Nicklas’ Home Page: http://www.netset.com/~gnicklas/
George Breedloves’ Home Page: http://home.rochester.rr.com/breedlove/george/index.htm
Grant Nicholas’ Web Site: http://www.glnicholas.com/ (“ALS Digest” Archives)
Greg Hicok’s Home Page: http://hometown.aol.com/palsfl41/home.htm (“Ride Across Michigan”)

Heidi Vance’s Web Site: http://www.als-curtisvancefoundation.org/ (“Curtis R. Vance Foundation”)
Henry Billen’s Web Site: http://www.nick-billen-alslougehrigs...oundation.org/
Holly Hufmeyer’s Home Page: http://members.aol.com/HollyHoffy/

Irene Poindexter’s Home Page: http://home.earthlink.net/~irenepoindexter/

Jason Becker’s Web Site: http://www.jasonbecker.com/
Jason Davis’ Web Site: http://www.death-dying.com/jason/ (“Jason’s Story”)
Jeff Pines’ Home Page: http://www.enteract.com/~jmp/index.html
Jerry Bergen’s Home Page: http://www.geocities.com/HotSprings/Falls/9451/ OR
http://www.55jer.com/home.htm
Joan Diez’s Home Page: http://www.geocities.com/SoHo/Opening/9238/
Joe Harris’ Web Site: http://www.joesalsadvocacy.com/ (“Joe’s Advocacy For PALS”)
John McDaniel’s Home Page: http://johnztown.tripod.com/johnstown/ (“John’s Town”)
Jon Phillips’s Home Page: http://members.aol.com/jphill1492/page/index.htm
Joyce Edelstein’s Web Site: http://www.helpjoycelive.com/ (“Help Joyce Live”)
Judy Repass’ Home Page: http://members.aol.com/mrsre/index.html

Karl Boyken’s Home Page: http://www.avalon.net/~kboyken/als.html (“ALS Information”)
Katherine Stickney-Klaus’s Home Page: http://www.geocities.com/HotSprings/4340/ (“Picturesque PALS”)
Ken Stone’s Home Page: http://www.geocities.com/Heartland/Plains/1641/
Kenny Fullington’s Home Page: http://members.tripod.com/~kendeb/ (“The Life of a Firefighter”)
Kyle Hahn’s Web Site: http://www.kylehahn.com/ (“ALS Infobahn”)

Lane Jolliff’s Web Site: http://www.ljolliff.com (“Lanie’s Place”)
Leroy Kramer’s Home Page: http://home.pacbell.net/ranger-1/
Luther Conant’s Web Site: http://www.lutheroutloud.com/

Marcy Payne’s Web Site: http://www.everydayisprecious.com (“Everyday Is Precious”)
Mark Reiman’s Web Site: http://www.incrediblepeople.com/ (“Incredible People Magazine”)
Michael Zaslow’s Web Site: http://www.michaelzaslow.com/ (“Michael Zaslow’s ZazAngels”)
Michele Cornell’s Web Site: http://www.meetmyfriend.com/ (“Meet My Friend”)
Mikki Lawson’s Web Site: http://www.alstalk.org/ (“ALS Talk…”)

Paul Vineburg’s Home Page: http://www.users.bigpond.com/paulfran/Contents.htm (“Paul’s MND Pages”)

Richard Caughie’s Home Page: http://pweb.netcom.com/~rcaughie/pag..._home_page.htm
Rick Clark’s Home Page: http://home.earthlink.net/~clark524/ (“Rick Clark’s World”)
Robb Thompson’s Home Page:
http://www.voiceforjoanie.org/homepa.../thompson.html (“ALS Informer”)
Ron Crane’s Family Home Page: http://pta6000.pld.com/cranefam/ (“A Spiritual Resource”)
Ronnie Love’s Home Page: http://members.aol.com/Tlove607/index1.html (“Ron’s Place”)
Rose McKinley’s Web Pages: http://rosemck1.tripod.com/index-2.html OR
http://rosemck1.tripod.com/als.html

Sherry Ketzbeau’s Home Page: http://lindenwoods.tripod.com/index.html (“Lindenwood Acres”)
Steve Fowler’s Web Site: http://www.emdbd.com/stevefowler/
Steve Hutchins’ Home Page: http://www.angelfire.com/oh3/koolhutch/
Steve Weekes’ Home Page: http://www.geocities.com/sweekes99/ALStitle.html (“ALS & Associated Web Sites")
Steven Graham’s Home Page: http://members.tripod.com/~StevenGraham/

Tony Fuselier’s Home Page: http://www.geocities.com/tbear777000/index.html (“Tbear: Hunting ALS”)

Wayne Phillips’ Web Site: http://tpals.org/ (“Turning Points In ALS”)
William Kibbie’s Web Site: http://alsisnotfatal.com/ (“ALS Is Not Fatal”)


International PALS / CALS Personal Web Sites:

(Listed Alphabetically by Country)
Christine Magee’s Home Page: http://homepages.ihug.com.au/~magees/ (“Small’s Getaway” – Australia)
David Mackenzie’s Web Site: http://www.comingtolife.biz/ (Australia)
Jackie Williams’ Home Page: http://55jer.com/jackies%20page.htm (Birchip, Victoria, Australia)
John Graham’s Home Page: http://au.geocities.com/grahamjnjt/ (Sydney, Australia)
Keith Sunbeam’s Home Page: http://www.petrie.hotkey.net.au/~sunbeams/ (Australia)
Margit’s Internet Corner: http://mic.iinet.net.au (“Tools for the Motor Disabled” – Australia)
Robin Balsdon’s Home Page: http://www.users.bigpond.com/rbalsdon/index.html (“Enjoying Life” - Australia)
Stephen ("Mutley") Brown’s Home Page: http://members.tripod.com/~MNDMutley/index.html (Australia)
Steven Shackel’s Web Site: http://www.goulburn.net.au/~shack/ (Goulburn, Australia)

Irene Coutinho’s Home Page: http://www.webspace.com.br/acm/ (Brazil)

Chris Mann’s Home Page: http://ranger03.com/ALS.html (Calgary, Alberta, Canada)
George Goodwin’s Web Site: http://www.alsindependence.com/ (“ALS Independence” – Ontario, Canada)
Roger Poulin’s Home Page: http://pages.infinit.net/gagnonr/ (Quebec, Canada)

Birger Bergmann Jeppesen’s Home Page: http://home5.inet.tele.dk/bbj/als.htm (Odense, Denmark)
Jens Harhoff’s Home Page: http://home19.inet.tele.dk/joh_als/ (Denmark)
Tommy Pedersen’s Web Site: http://www.als-gruppen-vestjylland.dk/ (Denmark)

Jeannie Harrison’s Home Page:
http://uk.geocities.com/jeannie_25als@btinternet.com/ (“Jeannie’s Place” – England)

Jean-Marie Quiquempois’ Home Page: http://www.geocities.com/BourbonStreet/Delta/3573/ (France)

Renate Winke’s Home Page: http://pweb.de.uu.net/winke.ki/ (Germany)

Steve Killeen’s Home Page: http://www.iol.ie/~killeen/stevemnd/stevehom.htm (“IMNDA” – Ireland)
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Old 09-08-2006, 09:04 PM   #5
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Moshe Zeevi’s Home Page: http://www.als-mnd-zeevi60minutesfilm.net/ (Israel)

Hitosi Nisio’s Home Page: http://www.horae.dti.ne.jp/~hnals/ALSweb/ (Japan)
Kaznao Mimaki’s Home Page: http://www2.ocn.ne.jp/~kazm/ (Japan)
Takeshi-Kamata’s Home Page: http://www.isn.ne.jp/~kamata/english/index.html (Japan)

Jeanet Vlist Kroft’s Home Page: http://home01.wxs.nl/~vlist008/frameset.html (Netherlands)

Aase Samsonsen’s Home Page: http://home.online.no/~aasamson/index.htm (Norway)
Per-Ivar Pettersen’s Home Page: http://www.sasdx.com (Norway)

Billy Currie’s Home Page: http://homepage.dtn.ntl.com/william.currie1/ (Glasgow, Scotland)
John Patterson’s Web Site: http://www.dochasfund.com/ (“The Dochas Fund” – Scotland)

Javier Ruiz Gimenez’s Home Page: http://bbs.seker.es/~adela (“ADELA” – Spain)

Rob Marshall’s Home Page:
http://homepage.ntlworld.com/rob.shaz/ (“Rob & Shaz’s Place” – Nottinghamshire, U.K.)



The following group of PALS / CALS Web Sites were in existence at one time, but now are
no longer valid. If you have any updated information on the following Web Sites, please
E-mail me at: sweekes99@yahoo.com

(Listed Alphabetically)
**ALS Trail Guide: http://pages.prodigy.net/dnd/ (Invalid)
**Barbara Keenan’s Home Page: http://homepages.which.net/~b.keenan/.html (Invalid)
**Bob Lee’s Web Site: http://aridewithareason.org/ (“A Ride With A Reason” – Invalid)
**Bob Perron’s Home Page: http://www.idir.net/~rlperron/als.htm (“ALS Magazine” – Invalid)
**Brent Dewar’s Home Page: http://www.cadvision.com/bdewar/ (Invalid)
**Dr. Charles Deevers’ Home Page: http://www.lifevictories.com/deevers/ (Invalid)
**Chris Davis’ Home Page: http://www.sfo.com/~hulaman/als.html (Invalid)
**Dave Mace’s Home Page: http://community-2.webtv.net/jdcane/MyHomePage/ (Invalid)
**David Mackenzie’s Home Page: http://www.iniaccess.net.au/~davidmac/ (Invalid)
**Deanna Hammond’s Web Site: http://www.beading4als.com/szw (“Beading 4 ALS” – Invalid)
**Diana’s Home Page: http://www.geocities.com/RainForest/2055/index.html (Invalid)
**Don Altier’s Home Page: http://home.earthlink.net/~alsfighter/index.html (Invalid)
**Jack Norton’s Home Page: http://pages.prodigy.com/ALSPROD/ (“ALS Advocacy” – Invalid)
(Note: Jack lost his battle with ALS in 1997)
**Jean Green’s Home Page: http://www.geocities.com/teamals/index.htm (“Team ALS” – Invalid)
(Note: Jean’s husband, Dave, lost his battle with ALS in July of 2002)
**Jim Compton’s Home Page: http://faculty-staff.ou.edu/C/Jimmie.D.Compton-1/ (Invalid)
**Jim Ritton’s Home Page: http://www.borg.com/~nlf/als/ (Invalid)
**Joe’s Home Page: http://www.homestead.com/joseph20000/front.html (Invalid)
**John McMullen’s Home Page: http://www.mindspring.com/~jmcmulln/als.html (Invalid)
**John Paterson’s Home Page: http://users.colloquium.co.uk/~ktravers/home_1.html (Invalid)
**Larry Carlson’s Home Page: http://home.talkcity.com/WorkoutPl/sunshines23/ (Invalid)
Pam’s Page: http://www0.delphi.com/family/pamals.html (Invalid)
Pam Carlson: http://members.delphi.com/pscarlson (Invalid)
**Leonard (Lenny) Brunner’s Home Page: http://home.talkcity.com/KarmaWay/leo-11/ (Invalid)
(Note: Lenny lost his battle with ALS on September 20, 2002)
Vicki’s Tribute to Lenny: http://expage.com/page/vickiscorner (Invalid)
**Lou Gehrig Tribute: http://msnhomepages.talkcity.com/Stu...oe/index1.html (Invalid)
**Marc Levison’s Home Page: http://home.talkcity.com/beanieblvd/ml60/ (Invalid)
**Marc Reynolds’ Home Page: http://www.execulink.com/~rreynold/ (Invalid)
**Marion Lippert’s Web Site: http://www.ldeem.com/ (Invalid)
**Mark Baird’s Home Page: http://www.cadvision.com/mbaird/ (Calgary, Alberta, Canada – Invalid)
(Note: Mark lost his battle with ALS in March of 2003)
**Merv Vindy’s Home Page: http://expage.com/THEmeger (Invalid)
**Mingo Montellano’s Home Page: http://home.talkcity.com/CarpoolLn/mingo4/index-3.html (Invalid)
**Paul’s Home Page: http://msnhomepages.talkcity.com/Sup...shimbleshanks/ (Invalid)
**Paul Johnson’s Home Page: http://home.earthlink.net/~alsalert/index.html (“ALS Alert” – Invalid)
(Note: Paul lost his battle with Lung Cancer on July 24, 2002)
**Richard Gelinas’ Home Page: http://home1.gte.net/cappanut/index.htm (Invalid)
**Robyn Bunce’s Web Site: http://www.robynsrace.com/Page_1x.htm (“Robyn’s Race 4 ALS” – Invalid)
**Roy Smith’s Home Page: http://www.iinet.com/users/royden/ (“The Mercury Connection” – Invalid)
**Russ Gamble’s Home Page: http://home.earthlink.net/~russgamble/ (“Lean On Jesus” – Invalid)
**Scott Dawson’s Home Page: http://www.interlog.com/~srdawson/alsintro.htm (Invalid)
**Stan Smith’s Home Page: http://www.scv.net/~stan/ (Invalid)
**Steve Holly’s Web Site: http://www.als-mnd.com OR (Invalid)
http://www.steveholly.com/ (Invalid)
(Note: Steve shutdown his Web Site in June of 2002 due to lack of funding)
**Sue Tufty’s Home Page: http://www.gothweb.co.uk/Tufty (Invalid)
**Tim Hawkins’ Home Page: http://timhawkins.homestead.com/untitled1.html (Invalid)
**Tom Brooks’ Web Site: http://www.tlbrooks.com/ (Invalid)
(Note: Tom lost his battle with ALS in July of 2004)


Eric Edney does not have a website yet, but he has managed to control the symptoms of his ALS.
For information about his progress and regimen you can E-mail him at:
GREDNEY@aol.com

Peter Ganzel’s Home Page – “A Potential Cause of ALS”
http://members.aol.com/pganzel/my.html
"A Potential Cause of ALS” by Peter Ganzel is worth reading.
Some of the ideas may initially appear unorthodox, but the article is well presented and
the results achieved by Peter are extremely impressive.
The E-mail address for Peter is:
Pganzel@aol.com


Compiled By: Steve Weekes ( sweekes99@yahoo.com )
http://www.geocities.com/sweekes99/ALS6.html
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Old 09-12-2006, 10:33 AM   #6
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the Vietnam era in music
http://chu65nang67.us/nam/vietnam.html

like it say's travel back in time
click on a playlist



/////////////////////////////////////////////////////////////////////////


http://www.wfnals.org/

///////////////////////////////////////////////////////////////////////

Seats Incorporated
A World Class Leader in Seating Products
http://www.seatsinc.com/ngp/!slmenu_template.main
/////////////////////////////////////////////////////////////////////


http://www.clinicaltrials.gov/ct/action/GetStudy
//////////////////////////////////////////////////////////////////////////

Clinton Foundation
http://www.clintonfoundation.org/index.htm

///////////////////////////////////////////////////////////////////////


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Old 09-15-2006, 05:54 PM   #7
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http://www.rollxvans.com/newvans.htm

Minivans are our most-popular seller. Compact, sporty and efficient. Easy to maneuver and fun to drive. At the press of a button your door slides open, a ramp is smoothly deployed, and the van gently lowers to make for the easiest possible access for scooter and wheelchair users. Rollx allows drivers the ability to roll in behind the steering wheel, automatically secure the wheelchair and drive away.


Full-size Vans are roomy, luxurious and outfitted with state of the art equipment. The touring must-have for larger needs. Stylish conversions allow for flexibility and total mobility for driver or passenger. Our lowered floors or raised roofs give ample headroom and visibility in center, driver and passenger positions. We offer most major brand wheelchair lifts, adaptive equipment and recommend the best product for your specific needs

////////////////////////////////////////////////////////////////////////////////


Possible Areas Affected
1. Arm muscle
2. Tongue
3. UPPER MOTOR NEURONES
4. BRAINSTEM (BULBAR) LOWER MOTOR NEURONES
5. Axon bundles (nerves)
6. Rib muscles involved in breathing
7. SPINAL LOWER MOTOR NEURONS
8. Leg muscle
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Last edited by BobbyB; 11-21-2006 at 09:06 AM.
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Old 09-15-2006, 06:20 PM   #8
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Default Products: Wheelchairs, Scooters and Components

Products: Wheelchairs, Scooters and Components
http://www.wheelchairnet.org/WCN_Pro.../mobility.html

Wheelchair and Seating Evaluations
http://www.wheelchairnet.org/WCN_Pro...valuation.html

Products: Wheelchair Access Products
http://www.wheelchairnet.org/WCN_Pro...ts/access.html

www.daessy.com/dms/indexm.html

Products: Assistive Technology Devices
http://www.wheelchairnet.org/WCN_Pro...herATprod.html

//////////////////////////////////////////////////////////////////////




http://www.alswarriorpoet.com/
/////////////////////////////////////////////////////////////////////////


QUEST PRODUCTS & SERVICES
Access EZ Lift www.ezliftaccess.com
Advanstar Communications www.abilitiesexpo.com
Altimate Medical
www.easystand.com
AMS Vans www.amsvans.com
Assistive Technology Industry Association www.atia.org
Automobility www.handcontrolscorp.com
Canes Galore www.canesgalore.com
Caraleasing www.caraleasing.com
Chattervox (Asyst Communications) www.chattervox.com
Clark Medical www.clarkmedical.com
Clean Butt www.cleanbutt.com
Clever Products www.ez-doesit.net
Convaid www.convaid.com
Daimler Chrysler dc-automobility.com
Deming Designs www.beachwheelchair.com
Disabled Dealer www.disableddealer.com
DS Medical/CCS Medical www.libertypouch.us
Duralife www.duralife-usa.com
Dynavox Systems www.dynavoxsys.com
Easy Mobility www.easymobilityco.com
Endless Pools www.endlesspools.com
Ford www.mobilitymotoringprogram.com
Freedom Motors www.freedommotors.com
Healthy Life and Times www.healthylifeandtimes.com
Hertz Supply www.hertzsupply.com
Independent Tool Solutions www.pocketdresser.com
Innovation In Motion (Vestil) www.vestil.com/wc
In Touch Systems www.magicwandkeyboard.com
Island Dolphin Care www.islanddolphincare.org
J.H. Emerson www.jhemerson.com
Johnson & Johnson iBOT www.indepencenow.com/ibot
Kantor & Kantor, LLP www.kantorlaw.net
Liberty Motor Co. www.libertymotorco.com
LiftVest USA www.liftvest.com
Loveseatz www.loveseatz.com
Mobility Independent Transportation Systems, Inc. www.wheelchair-van.com
Mobility Research litegait.com
Natural Access www.landeez.com
NMEDA www.nmeda.org
NuProdx www.nuprodx.com
Open Sesame www.opensesamedoor.com
Permobil www.permobil.com
Prairie View www.pviramps.com/index.php
R.D. Equipment www.rdequipment.com
Rand-Scot www.randscot.com
Redbarn www.redbarn-enter.com
Redman www.redmanpowerchair.com
Roll-A-Ramp www.rollaramp.com
Rollx Vans www.rollxvans.com
Showerbuddy www.sisusonline.com/quest
Special Needs Alliance www.specialneedsalliance.com
Stand Aid of Iowa www.stand-aid.com
SureHands www.surehands.com
Thomas Fetterman www.fetterman-crutches.com
Touch Turner www.touchturner.com
Viewpoint Mobility www.viewpointmobility.com
Wheelchair Getaways www.wheelchairgetaways.com
Words+ www.words-plus.com
X-Strap www.x-strap.com
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Last edited by BobbyB; 11-28-2006 at 08:40 PM.
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Old 11-07-2006, 09:21 AM   #9
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Thumbs up Eric Lowen and Dan Navarro,




Eric Lowen and Dan Navarro,

listen to them.
http://www.myspace.com/lownav

website
http://www.lownav.com/index.html
http://www.lownav.com/perfsong.html



https://secure2.convio.net/alsa/site...upqnx51.app24b

Musical Duo Sees Opportunities in Working with ALSA
By Stephanie Dufner, ALSA Communications Coordinator
The performers and recording artists Lowen and Navarro, who held a web cast concert that benefited ALSA’s Greater Los Angeles Chapter in April 2004 after one of the group’s performers Eric Lowen was diagnosed with ALS, are doing more to help ALSA.



During their recent visit to the National Office of ALSA, (right) Eric Lowen and Dan Navarro (aka Lowen and Navarro) discussed how Lowen’s ALS has affected their personal and professional lives.

During their touring schedule, which runs through July 2006, the musical duo encourages ALSA chapters to host information tables in venues where the band will hold concerts. “It feels very fitting to be able to talk about it (ALS) on stage and have somebody out in the lobby to answer the questions that are going to come up,“ Lowen said. “I really like that.”

The web cast raised nearly $8,000, including $5,200 from the sale of a $50 DVD set. Fans across the country and around the world viewed the live web cast where the two singer-songwriters reunited with members of their original band with whom they had not played in 12 years. To date, the event has raised almost $13,000.

“We wanted to do something directly for the L.A. Chapter because they were directly helping me,” explained Lowen, of the neo-folk band.

Through the Greater Los Angeles Chapter, Lowen has had access to a scooter and a scooter lift, a walker and a wheelchair. A tall musician with long flaxen hair, he has worked with case manager Pedro Loza at the chapter; Loza gave the singer-songwriter the phone number of the chapter’s executive director, Fred Fisher.

“The chapter has a tradition of engaging families in the fight against ALS,” Fisher said. “Each family finds their own way to participate, make an important difference. Dan (Navarro) and Eric use their musical talent to increase awareness and raise funds to support the chapter’s patient services programs as well as search for a cure.”

Lowen and Navarro have played in more than 90 cities internationally during the past 16 years; some locations have included Washington, D.C; Minneapolis; Chicago; Oslo; Stockholm; and Cannes, France.

Recently, Lowen and Preston Sturges penned a song titled, Learning to Fall, a tune that explores Lowen’s reactions to having the disease. The song appears on an album the band will release.

Lowen believes that his diagnosis has affected his working on stage in front of live audiences. “I feel more of immediacy when I’m performing. I feel more of an emotional connection.” He uses a walker when he’s on stage, and their road manager must carry him up steps to the stage.

Navarro agreed with Lowen’s assessment about his performance abilities. “Guitar playing has deepened with Eric. He’s coming from a more spiritual place in terms of what he’s doing.”

To read Lowen and Navarro’s concert schedule through 2006, visit http://www.lownav.com/shows/index.html.

To purchase the band’s DVD that benefits the Greater Los Angeles Chapter, e-mail one of the following addresses: tonya@alsla.org or gretchen@alsla.org. Note you would like to order Lowen & Navarro’s – Live at Kulak’s Woodshed.




Upcoming Shows
For Eric Lowen and Dan Navarro, the road is home, the stage is the runway and the studio the garden. Songs of loss and change, hope and acceptance, fear and deliverance color their six studio albums. Voices locked in synchro-step weaving in and out of the flow, telling stories of real lives in the balance. The connections between singer and song, between audience and stage melt into a rich brew that brings them deeper into the heart of the matter and that much closer to the fire in the hearts of their people. There is no road too long that their people don't travel far and wide to see and hear them. As it has been for nearly twenty years, it still is today.
website
http://www.lownav.com/index.html

Life has a way of turning on a dime and a matter of a few hours or a few days or even a few minutes everything can seemingly come unglued. On March 17th, 2004, I was diagnosed with Amytrophic Lateral Sclerosis or more popularly “Lou Gehrig’s Disease”.
From the June, 2006 issue of Performing Songwriter Magazine

Survival, Success and the End Of The Road
by Eric Lowen

I count myself among the lucky ones. Although my partner Dan Navarro and I have never had the kind of across-the-board success we may have hoped for when we started out, we have made our livings at music for a long, long time. We finally got an opportunity to make our own record in 1990 after a few years of having some success as songwriters and many more years before that of laboring away in nearly total obscurity. It was the chance of a lifetime and we were pretty convinced that it was going to be “once in a lifetime”. The fact that it turned out not to be so and that we would go on to make many more records and tour for the last 16 years, still leaves me black and blue from pinching myself. We are journeymen, working hard for a relatively small return, but it has been the most satisfying and rewarding experience I could ever hope for. We have, through luck and persistence and a commitment to our long-running motto, “we try not to suck”, connected with a remarkable group of fans and friends who have kept come to see us, bought our records. and supported us in every way. If they are to be believed, we have made a difference to many of them through proposals, marriages, divorces, child rearing and even the loss of a child. That is a kind of success that would have been hard for me to imagine, but has been ultimately so much more meaningful than all the money we never made.

Life has a way of turning on a dime and a matter of a few hours or a few days or even a few minutes everything can seemingly come unglued. On March 17th, 2004, I was diagnosed with Amytrophic Lateral Sclerosis or more popularly “Lou Gehrig’s Disease”. ALS is a neuro-muscular disease involving the brain cells that control the voluntary muscles. The brain cells die, the muscles atrophy and you are left paralyzed with very little or no muscle control in a matter of months or a few years. Stephen Hawking, the famous physicist is a well known survivor of the effects of the disease, having been diagnosed in 1964. He is the longest known survivor, but he has assisted speech, a ventilator for breathing and a feeding tube. In my mind, I saw the familiar image of him hunched over in his powered wheelchair when the doctor gave me my diagnosis on that St. Patrick's Day morning.

It had only been the day before that I had returned from Northern Virginia where Dan and I were recording our ninth Lowen & Navarro record. We were working with a great cast of musicians and a fine producer, John Whynot, and the creative juices were flowing. The studio was up a flight of stairs which already was quite difficult for me to climb, but is is a far cry from where I am now, barely able to take a few small steps while holding on to something. During the sessions we had recorded a song by Dave Moore called, “All the Time In the World”. It was rare for us to record a song we did not write, but it was for a planned future record of all cover tunes and besides, the meaning of the song hit me very hard because for about a year I had noticed changes in my body and I knew that something was horribly wrong. During the rest of the recording, my sickness became the “600 pound gorilla” hanging over us.

For me it was a time of decisions and some confusion about how to proceed with my life. I was engaged to be married and the family that was going to be created would include five ten year olds (her triplets, my twins, three days apart). There was a school of thought that I should immediately quit my nutty job as singer-songwriter touring musician. There were also some questions directed at my wife in the nature of “ are you still going to get married?” Well, she did still marry me, I have lots of 12 year olds now AND I kept my crazy job in spite of becoming disabled. It became really obvious to me that what I have spent my life doing is much more than just a job, it’s more of a “calling” as my clergyman father would have referred to it. Music has huge elements of something magical in it and it has the power to reach people in ways that nothing else can. I don’t want to paint it that I have continued out of some sense of responsibility to the audience, although I do feel one, I want to do what I am doing, and in the twenty-odd years I have been pursuing it, it has become a large part of who I am. My partnership with Dan Navarro has been a very long one too and with the many musicians and writers we collaborate with. They make up a musical community that has been a huge support for me through these tough times.

What has happened for me is that the experience of being a performer and a songwriter has deepened in ways I could never have foreseen. Dan and I have always tried to make sure that we wrote about issues that mattered to us. In some cases it may have hurt us (on one release we had not one, but two songs with the word “middle-aged” in them . . . not a wise move for getting radio play). We have written plenty about relationships and growing up. While that never got us a mainstream audience it did resonate with the amazingly loyal fans we did connect with. Now I have a new sort of viewpoint to add with the addition of a serious illness. I have written a few songs that deal with it directly, but what strikes me is that the things I am facing and the lessons I am learning really apply to all of us, we all face inevitable physical decline at some point and of course we all die. A dear friend of mine gave me a good perspective on it at the time of my diagnosis when she said “ we are all on a journey. . . you just have a better map.”

A songwriter named Michael Smotherman once told me “in this business, survival is success.” I have survived and I actually feel successful, although some might not agree if they checked my tax returns. Now I am facing the end of all that in the uncertain future dictated by a serious illness. Eventually, I will no longer be able to make my guitar speak, that friend who got me through puberty and still comforts me today. Finally my voice will be mute as the disease takes its inevitable course. That will be harder than I can express, and I am sure that well before then, I will have had to stop flying around the country doing gigs. Right now though, I am thrilled to still be able to do what I truly love and feel I was born to do. I am able to educate audiences about ALS and still able to make a connection that matters, both to me and hopefully to them. If there is distaste on their part watching me be hoisted on the stage and placed in a chair, they don’t show it. They don’t even mind that my fingers can’t do all they once did on the fingerboard, what seems to matter is tht the music is still doing the magic that music does and that the connection still happens.

This job is not a chosen one, it chooses one. It has never been easy and it is getting harder now, but I would never trade the experience for anything. The mysterious and magical thrill of writing a song, the charge of being in front of an audience, and also the exhilaration of speaking in the language of music with other musicians. It will end for me, but the songs will go on and the memories are mine forever. I think I really understand what Lou Gehrig meant in his famous retirement speech when he said, “Today I feel like the luckiest man on the face of the earth.”
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Old 11-15-2006, 11:49 AM   #10
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Kyle Thompson
About "FROM THE FIELDS"

It started with GLORY ROAD. I had just finished reading Bruce Catton’s civil war trilogy and was so inspired by his poetic imagery and ability to tell the history of the war in short order that I penned GLORY ROAD. The song is a thumb print, a boot mark in the mud, a button off a long moldered uniform, left behind by the Army of the Potomac and the Army of Northern Virginia and it sings of the carnage left in the wake from the clashes between the two.

Around the same time that I wrote GLORY ROAD, I began to experience what were the emerging symptoms of ALS, also known as Lou Gehrig’s disease, a debilitating and fatal disease with no known cause or cure. I was told to get my affairs in order and make the most of whatever time I had left. Most people with the disease don’t survive more than 5 years after being diagnosed. So, that being the case, I decided to go see the places I had always wanted to see, and being a civil war buff, this naturally included battlefields galore.



"From The Fields."
Kyle Thompson:


Welcome! And thank you for visiting my web site. I am currently featuring the songs, music and liner notes from my 2005 CD "From The Fields." The music was recorded on Civil War Battlefields from Mississippi to Pennsylvainia and is dedicated to the protection and preservation of those hallowed places and to those who fought and died in the War Between The States. Please use the links I have provided to purchase a copy of "From The Fields" or to download the music to your computer,ipod or MP3 player. Please take time to sign the guest book and come back again for news and updates...
http://www.kylethompsonmusic.com/home.html

Kyle & Traci Thompson....finish line 2003 LA Marathon...pushed 26 miles in a wheelchair by friends to raise awareness about ALS.


please check out kyle's photo page.
http://www.kylethompsonmusic.com/photos.html

http://www.kylethompsonmusic.com/home.html

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