ALS For support and discussion of Amyotrophic lateral sclerosis (ALS), also referred to as "Lou Gehrig's Disease." In memory of BobbyB.


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Old 10-05-2006, 09:39 AM #1
SteveS's Avatar
SteveS SteveS is offline
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Join Date: Oct 2006
Location: Boston
Posts: 14
15 yr Member
SteveS SteveS is offline
Junior Member
SteveS's Avatar
 
Join Date: Oct 2006
Location: Boston
Posts: 14
15 yr Member
Question How to plan for ALS?

I am newly diagnosed and have learned a lot through forums like this one. Currently, my symptoms are limited to loss of strength/dexterity in my left hand (not yet debilitating) and difficulty speaking (slow but still clear). I am all to aware that this will change in time and am looking for advise as to what I might do now while I am able that will help me when I am less so. For example, I have recently heard about voice banking...

I sense that mine will be a slow progression and I will dearly appreciate any advise out there that will help me take care of myself longer.

Thanks a million,
SteveS

ps - thanks for the link Jeannie x
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