You may have heard that I have just published my story: Losing My Voice! Living with motor neurone disease. See
http://www.losingmyvoice.com/ and
http://neurotalk.psychcentral.com/sh...ad.php?t=28759
My story covers the time from when I was diagnosed with ALS in late 2004 while living and working in Sydney, Australia and the next two and a half years when I travelled extensively for work and holidays while slowly losing my voice and my ability to eat.
My book is unique in describing, from a health professional's perspective (I'm a nurse and clinical research associate), my daily life whilst dealing with the progressively disabling bulbar symptoms of ALS. Other books I know of are written by or about people whose symptoms started in arms or legs. Feedback is that it's "riveting" and a "can't put down" story. Losing My Voice can be purchased on line
http://www.losingmyvoice.com/