ALS For support and discussion of Amyotrophic lateral sclerosis (ALS), also referred to as "Lou Gehrig's Disease." In memory of BobbyB.


advertisement
Reply
 
Thread Tools Display Modes
Old 10-07-2006, 11:29 AM #1
lisag lisag is offline
Member
 
Join Date: Oct 2006
Posts: 186
15 yr Member
lisag lisag is offline
Member
 
Join Date: Oct 2006
Posts: 186
15 yr Member
Default Question about rules here

I've been try ing to catch up a little...and from what I have read the original Braintalk was down for quite sometime..so this forum was created..as a backup by a different administrator..but now it will remain its own community with its own set of rules..
I get the jest of the majority of rules..many are the same as the old Braintalk..no threats, name-calling,sexual innuendos, porn,etc..basic civility...
But some other rules appear to be much different..first here there is identification and acknowledgement of Mods..
As a member now of both communities ..without trying to bash one or the other..I am trying to figure out all other differences as to what is acceptable here vs. there..
For instance correct me I misinterpreted something but it appears we can question mods decisions..and that we can talk about bannings openly..
Here is another I have questions about :
Political discussions that are medically related are they in or out ? Lisa

Last edited by lisag; 10-07-2006 at 11:42 AM.
lisag is offline   Reply With QuoteReply With Quote

advertisement
Old 10-07-2006, 11:50 AM #2
BobbyB's Avatar
BobbyB BobbyB is offline
In Remembrance
 
Join Date: Aug 2006
Location: North Carolina
Posts: 4,609
15 yr Member
BobbyB BobbyB is offline
In Remembrance
BobbyB's Avatar
 
Join Date: Aug 2006
Location: North Carolina
Posts: 4,609
15 yr Member
Lightbulb

hi lisa, this is from one of the mods here at bt2 so i quote,

I think the best, meeting in the middle, suggestion would be that if a post might be crossing the political guideline but you feel it's important for those living with ALS to hear about, you could post simply the link.

For example, the post on stem cell research...I so see important information re: awareness there. However, it had a very strong political tone. In a case like that, you could make a post entitled "stem cell research" then go to the body and make the statement, "Good information to know, but strong political content is included. Because of that I'm posting the link only," then post only the link. Of course, you'd want to do that using your own words.

How does that work? It would be limited discussion. That way a reader will make their own decisions as to whether or not they want to get involved with, or be subjected to, an article with strong political content. Most importantly, though, you will be getting the information here for those who feel the need as you're obviously a source of massive information and awareness.

////////////////////////////////////////////////////

lisa hope this helps

bb
__________________

.

ALS/MND Registry

.
BobbyB is offline   Reply With QuoteReply With Quote
Old 10-07-2006, 12:30 PM #3
Jeannie's Avatar
Jeannie Jeannie is offline
Junior Member
 
Join Date: Aug 2006
Posts: 39
15 yr Member
Jeannie Jeannie is offline
Junior Member
Jeannie's Avatar
 
Join Date: Aug 2006
Posts: 39
15 yr Member
Default

I & many others feel at home here, we are not going to abuse the system...well I'm not anyway......its good to be treated like adults and not dyslexic children.

welcome aboard Lisa
__________________
Jeannie age 29, ALS onset June 2000 dxed July 2001, living & loving everyday regardless of ALS.
Jeannie is offline   Reply With QuoteReply With Quote
Old 10-07-2006, 12:45 PM #4
Curious Curious is offline
Yappiest Elder Member
 
Join Date: Aug 2006
Location: Texas
Posts: 13,418
15 yr Member
Curious Curious is offline
Yappiest Elder Member
 
Join Date: Aug 2006
Location: Texas
Posts: 13,418
15 yr Member
Default

popping in here to say hello and welcome you lisag.

in a nut shell...a bit more lenient than some forums. discussions can keep going as long as no flaming or attacking. each forum has it's own flow. some like it to stay on topic all the time..others...the social aspect is part of it.

bobbyb covered the politacal stuff.

if in doubt..pm a mod. we are never hidden when we are online. little green light will be on.

oh...hopefully we won't have banning issues.
Curious is offline   Reply With QuoteReply With Quote
Old 10-07-2006, 04:18 PM #5
lisag lisag is offline
Member
 
Join Date: Oct 2006
Posts: 186
15 yr Member
lisag lisag is offline
Member
 
Join Date: Oct 2006
Posts: 186
15 yr Member
Smile

Thank -you all so much for answering my question,,
I think what Bobby recommended about posting...
And e-mailing a post to the mods before posting if I feel it is questionable as far as the rules go ...is a great idea..that way I don't accidently cross over the boundaries..on issues like stem cell legislation , healthcare reform etc..Lisa

Last edited by lisag; 10-07-2006 at 04:55 PM.
lisag is offline   Reply With QuoteReply With Quote
Old 10-07-2006, 09:04 PM #6
wallyw1 wallyw1 is offline
Junior Member
 
Join Date: Sep 2006
Location: NE New York
Posts: 20
15 yr Member
wallyw1 wallyw1 is offline
Junior Member
 
Join Date: Sep 2006
Location: NE New York
Posts: 20
15 yr Member
Default

Lisa--I missed you, so glad to have news of you and Gary.

I don't quite understand everything that is going on here, but so glad to have BT2.

Wally's Mom
wallyw1 is offline   Reply With QuoteReply With Quote
Old 10-07-2006, 09:36 PM #7
lisag lisag is offline
Member
 
Join Date: Oct 2006
Posts: 186
15 yr Member
lisag lisag is offline
Member
 
Join Date: Oct 2006
Posts: 186
15 yr Member
Smile

Wally's Mom,
How is Wally doing? Good to see you posting here as well...

I guess will learn more together...
It has been about a year since I was on the original braintalk..I left for a variety of reasons which I posted at the old braintalk before I left.., then came back for a short time, then my computer crashed..and stayed down for months..and unfortunately I left with out notice..lost my old e-mail account as things bounced because I could not get in..which was the only place that contained you guessed it some Braintalk members phone numbers..all the ones I had anyway..
Then life happened..and you know Murphy's law..what can go wrong will go wrong at the worst possible moment...
Anyway..best I can figure Braintalk suffered a couple of major crashes.apparently this last time being the worst..
People here..entirely new administrators set up a temporary safehaven..which they have now decided to make permament..
This forum has different guidlines concerning mods and bannings..but most of the other rules are the same....also we know who the Mods are here...
These differences are the best I can figure out anyway..
I can say this the MODs here were very timely in responding to my questions..so if you have any questions ..I wouldn't hesitate posting or private messaging them..
Anyway some people from old Braintalk are poting here..some have chosen to stay here..others like me will probably be posting at both...
People I feel have some very legitimate concerns at old Braintalk...but personally for me I'd rather discuss them there if allowed..Lisa

Last edited by lisag; 10-07-2006 at 09:42 PM.
lisag is offline   Reply With QuoteReply With Quote
Old 10-07-2006, 10:23 PM #8
wallyw1 wallyw1 is offline
Junior Member
 
Join Date: Sep 2006
Location: NE New York
Posts: 20
15 yr Member
wallyw1 wallyw1 is offline
Junior Member
 
Join Date: Sep 2006
Location: NE New York
Posts: 20
15 yr Member
Default

Thanks, Lisa. Wally is doing well considering. Arms and legs not working, eating pureed food, using bi-pap and oxygen concentrator. Since using the bi-pap and enemeez for severe constipation he is much improved--really much more comfortable than he was a year ago. He has been using the computer for long periods and asked his Dad to take him to the ocean. His Dad spent the entire summer modifying our 20 year old camper and we went to Schoodic in Maine for about 10 days--actually traveling took 5 days. He seemed very content and happy to be there and see the ocean. Wally probably started with ALS symptoms (hands) around 1997/98 and was dx'd in September 2002. I suppose that he is somewhat a slow progressor.
wallyw1 is offline   Reply With QuoteReply With Quote
Old 10-08-2006, 03:48 AM #9
fotios fotios is offline
Junior Member
 
Join Date: Sep 2006
Location: Greece
Posts: 43
15 yr Member
fotios fotios is offline
Junior Member
 
Join Date: Sep 2006
Location: Greece
Posts: 43
15 yr Member
Default

http://forum.als-net.gr/viewtopic.php?t=74
I agree with Rama 100%.
This was and is JL forum.
Fotios
fotios is offline   Reply With QuoteReply With Quote
Old 10-08-2006, 10:33 AM #10
lisag lisag is offline
Member
 
Join Date: Oct 2006
Posts: 186
15 yr Member
lisag lisag is offline
Member
 
Join Date: Oct 2006
Posts: 186
15 yr Member
Default

Fotios..
I really don't know what to say..actually there is alot I wish I could say over at the old braintalk..but we are not allowed to discuss bannings there...
To me personally ..I feel it would be more appropriate..to talk about an incidence ...where an incident occured..but if we are not allowed to ...then I do understand the frustratiion of members needs to vent elsewhere..
I left and posted a response at old Braintalk the first time ..in protest to this incidence...(the second time it was for other reasons my computer failed and alot of very unfortunate events occured afterwards)...
But, the way I look at it is there are very good people over there as well..
JL is very busy and I just don't know if he has the time to look at things as closely as he did years ago..
I do thank him for alot of things.. for one...without old braintalk I would have never met any of you guys..without you guys I would have been lost and more than likely my husband would not be here..
So for that reason I choose to post on both forums..but if the kitchen gets to hot for me to handle at times..I need to leave for awhile..before I type something I'm surely going to regret..
Moderators anywhere are just human..they sometimes make mistakes..but I do feel on the whole they try there best..the question is how are forums going to handle things when members do feel as if a mistake has been made..or a moderater only saw part of the picture,..
The answer at this forum is clear...the answer at old braintalk remains to be seen..
But, bottomline wherever I go..I'm a guest..and although I have my own sense of fairness..everyone is entitled to their own as well.. we are all different people..ultimately it is the administrators sense of fairnesss that does and should prevail...as the site belongs to them..
I don't want to come here to bash old braintalk..there are alot of people I care about over there...I just want to make sure I am clear on the rules anywhere I go..if I can't agree with them or how they are enforced ..I need to leave at least for awhile...until I feel I can comply .so far at this site here..I do not perceive any potential problems in that area...Lisa

Last edited by lisag; 10-08-2006 at 01:30 PM.
lisag is offline   Reply With QuoteReply With Quote
Reply


Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off



All times are GMT -5. The time now is 08:22 PM.

Powered by vBulletin • Copyright ©2000 - 2024, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise v2.7.1 (Lite) - vBulletin Mods & Addons Copyright © 2024 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.


Always consult your doctor before trying anything you read here.