My husband has just been diasnosed with LouGerhigs disease. Where do we get support for this expensive medicine Even after insurance it's 430.00 amonth just for ritulet?
Betmal

Hello,
I found this in the stickys up above- posted by BobbyB

Links and Tips For Free Medications
Partnership for Prescription Drugs
https://www.pparx.org/Intro.php

Individual Assistance Programs by drug/manufacturer
Brand Names
http://seniorliving.about.com/gi/dyn...Fwww.needymeds. com%2F

We very recently realized my father was also able to get free medication through the Veteran's Affairs because he is low income (and a veteran)...something he hadn't even considered orginally. Cost may vary dependent on income.
http://www.va.gov/healtheligibility/...dicareDFAQ.asp


http://www.themedicineprogram.com/

http://www.themedicineprogram.com/free-medicine.html


http://www.needymeds.com/newuser.tml

There is a PILE of helpful information as well as access to, and instructions for, applications for free meds.

(My) Dying Is Fun: A Comedy of Disabled Misadventures

by Christopher Day; Foreword by Dr Susan P Closs, FRCP, FRCPath, Ty-Olwen Hospice

170 pages; quality trade paperback (softcover); catalogue #06-2380; ISBN 1-4251-0622-6; US$19.99, C$22.99, EUR14.99, £9.99

Diagnosed with ALS/MND, my future seemed bleak, but increasingly disability brought unexpected side-splitting hilarity to life. This has transformed terminal illness and disability from a curse into a gift.


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About the Book
Can terminal illness ever be fun? At the peak of his career as an eco-architect, Christopher Day developed Motor Neurone (Lou Gehrig's) Disease. Initially, the future seemed bleak, but as the illness progressed, his attitude changed. The more things went wrong, the more hilarious life became. He began to appreciate the gifts illness has brought.

(my) Dying is Fun is for anyone, or anyone who knows anyone, who might one day die. Especially, it's for anyone who needs to laugh. This book transforms disability and dying into a testament for life.

"This is a unique work. Although suffering from one of the most severe of degenerative diseases, the fire of his creative spirit is very inspiring. His writing, laced with side-splitting humour, is as vivid as ever. So witty, acute in observation, and wise, that I still chortle while remembering scenes read from the first draft three years ago. It is also deeply poignant. A valuable book to share with others - a masterpiece."
Sarida Brown, Cadeceus

"When my father was diagnosed with Motor Neurone Disease, the devastating effects this terminal illness [has] arrived in our home. However, MND also seems to evoke the best in the human spirit in a positive way... This book is truly inspirational and fundamentally human in its words and spirit. As an observation on dying it is really a lesson in life and I can warmly recommend it."
Lembit Öpik, President, Motor Neurone Disease Association

"Christopher Day is able to maintain his positive outlook and a sense of humour in the depth of adversity. [He] has transformed the curse of his terminal illness into a spiritual gift. This is truly an inspiring book."
Satish Kumar, Resurgence

"Essential reading for all health and social care providers."
Dr. Susan Closs, Ty Olwen Hospice, Morriston Hospital



About the Author

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I used to work as an environmental architect and lecturer. At the height of my career as an eco-architecture pioneer, I developed Motor Neurone (Lou Gehrig's) Disease - prognosis- one year. Over nine years, I've become increasingly disabled. Though now wheelchair-bound and unable to talk, I continue to work internationally (albeit with difficulty!) - both challenging and rewarding.

Publishing history: One novel and six environmental books, five still in print, three with forewords by Prince Charles. Of these, Places of the Soul has sold around 35 000 (English) copies so far and is now in five language, and Spirit & Place is in two.

I never dreamed that peeing could be so fraught with peril for the disabled... This book, (my) Dying is Fun by Christopher Day, is not only hysterically funny, truthfully heartbreaking at times..it's also educational.

Thanks again BoobyB.

hi betmal, if you can afford 430 a month go for it.
if you cant that's ok to because you should save your money for other things you'll need.
if your husband has the slower als you will need money for the long haul.

i myself would not buy the drug.

bobbyb

betmal, if you have not joined patients like me please come check it out and join.
lots of good info for als.

http://www.patientslikeme.com