ALS For support and discussion of Amyotrophic lateral sclerosis (ALS), also referred to as "Lou Gehrig's Disease." In memory of BobbyB.


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Old 10-14-2006, 01:08 PM #1
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BobbyB BobbyB is offline
In Remembrance
 
Join Date: Aug 2006
Location: North Carolina
Posts: 4,609
15 yr Member
BobbyB BobbyB is offline
In Remembrance
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Join Date: Aug 2006
Location: North Carolina
Posts: 4,609
15 yr Member
Thumbs up Alternative or experimental treatments that do not work

Alternative or experimental treatments that do not work

i copied this from obt and posted it here, agios started this so please share with us your alternative or experimental treatments if you have any.
thanks
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Newly diagnosed PALS can benefit from veteran PALS who have tried alternative or experimental treatments without beneficial results and are willing to speak out about their experiences.

For example, I tried Buo Nao Gao or BNG tea without any benefit and stopped using it. I even considered going to China for Dr. Huang's fetal tissue implant proceedure, but after reading about other brave PALS that had gone before me and experienced no benefit and were thankfully willing to inform their fellow PALS, I decided to forego Dr. Huang's proceedure.

Because of PALS that were willing to speak up I was able to take the money that I would have spent on a trip to China and instead spent it on a communication device, a ceiling lift, handicap van, ramps, etc.

This is an area that we veteran PALS can make a difference!

Peace, Love and Energy,

Agios

Last edited by BobbyB; 10-14-2006 at 01:18 PM.
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