ALS For support and discussion of Amyotrophic lateral sclerosis (ALS), also referred to as "Lou Gehrig's Disease." In memory of BobbyB.


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Old 10-16-2006, 06:58 AM #1
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Smile Pals In The News

Wayne's Real World - by Peter Carter
10/16/2006

Between the time I started working at this magazine a few years back and today, I've become a far more interesting guy to drive down the highway with.
For one thing, the other people in whatever vehicle I'm piloting get full-length, in-depth feature tales about the various fleets of trucks that we pass.

"Hey look," I might announce when I see that familiar TransForce swoosh. "Did I ever tell you that the biggest truck company in this country started with a man delivering cheese on a bicycle?" It's true. Fifty-two years ago this month, the Saputo family started making and delivering cheese and eventually went on to hugeness.

I also have quite a few trucker tales that I gather from interviewing people across Canada.

Recently, in fact, I was telling my family and a neighbor/ passenger about a fellow I met who hauled fish guts from a processing plant on Vancouver Island to a waste site on the mainland.

But just before I got to the part about how the vast majority of his run was spent sitting on the ferry from Nanaimo to Horseshoe Bay, I noticed that the truck we were passing at that moment was from a place called Cardigan, P.E.I.

"Cardigan!" I said, "I know somebody from Cardigan."

Well, rather, I don't really know them. But I'd like to. And here's why. A couple of weeks back, I took a phone call at work. It was from a Cardigan-based hauler named George Van Denbroek. He wanted to know if I could mail a few copies of Today's Trucking to his friend Wayne Johnston.

Wayne's a trucker too, and a long-time pal of just about everybody involved in trucking on P.E.I., it seems. This past year, he was felled by ALS, also known as Lou Gehrig's Disease.

So Wayne, in his mid-50s, has been forced to hang up the keys. Not that he wants to. In fact he still likes to visit his old gear-jammin' grounds and see how his colleagues are doing and offer observations such as whether enough of them are driving Kenworths. (His personal favorite.)

But ALS is a unforgiving illness -- you wouldn't curse your worst enemy with it. He can still drive a car, but sometimes it's easier if one of the family chauffeurs him around. "Not working is killing Wayne as much as anything," George told me. "He's just as fine a man as you'd ever meet."

Wayne and his wife Thelma have three daughters, Tammy, Jill and Paula, as well as four grandkids and a dog, Jack.

With ALS sidelining him, Wayne's fellow truckers and friends figured money might get a bit tight, so they organized a benefit concert.

Wayne's friend Tracy Maclean, whose husband Kevin still drives at Kings County Construction, where Wayne put in 26 years, estimates that more than 800 people showed up at Cardigan Consolidated School for the event. A whole bunch of local musicians performed and and the organizers -- comprised primarily of folks from the trucking business -- raised about $12,000.

Not bad, eh?

George said that the important thing wasn't the money so much as it was the recognition "that this is one fine man."

By the way, I didn't interview Wayne for this story. It'll be a bit of a surprise for him, just like the benefit concert was.

I hope he's okay with the fact that we snuck around behind his back to get this picture and the facts about the situation. I did it for two reasons.

One was to get word out to anybody else who might know Wayne but didn't have a chance to attend the benefit. (George Van Denbroek at 902/583-3152, would be thrilled to pass along any donations.)

The second? To remind everybody else that Canadian trucking teems with community-minded leaders. Some have huge companies and industry associations to run. In that category, I'm thinking of the late John Cyopeck, who headed up the Canadian Trucking Alliance and Canpar Transport. He raised more than a million bucks for a new MRI machine months before he died this past April.

Then you have others -- good hard-working down-to-red-PEI-earth folks like Wayne Johnston, George Van Denbroek and Tracy Maclean, and everybody else who helps out around Cardigan. And that thing I mentioned earlier about me being a far more interesting person? I take it back. It's not me that's interesting.

It's the people in this business.


http://www.todaystrucking.com/editor...intDocID=16822
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Old 10-16-2006, 07:02 AM #2
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Smile Leo Greene

LEO S STORY
Walk to D'feet ALS gets strong support
Article Launched:10/16/2006 12:00:00 AM PDT

Inland Valley Daily Bulletin reporter and videographer Leo Greene joined nearly 2,000 walkers Sunday, Oct. 15 2006 at the 5th annual Walk to D'feet ALS on the USC campus.
Greene was diagnosed with the nearly always fatal illness, also known as Lou Gehrig's disease, in August.

Proceeds from the ALS Association Los Angeles Chapter walk go toward providing services for those with ALS and toward research for a cure.

Photo Gallery: Walk to D'feet ALS, 10/15
New Video: Walk to D'feet ALS 10/15
Visit our special section: Leo's Story


http://www.dailybulletin.com/news/ci_4497835
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Old 10-16-2006, 07:11 AM #3
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Dream expert in a nightmare battle

By Wesley Morgan
Princetonian Contributor

Charles McPhee '85's life, at least until last June, could have been described as a dream come true.

McPhee — who knew as a freshman that he wanted to write his senior thesis on dreams — managed to parlay that early interest into a career, spending the past 20 years treating sleep disorders and revealing the method behind the seeming madness of dreams.

Drawing on an online database of a half-million dreams, he is one of the field's most respected and innovative figures.

Last spring, though, McPhee experienced what can best be described as a nightmare: he was diagnosed with amyotrophic lateral sclerosis (ALS) — better known as Lou Gehrig's disease — an almost invariably fatal neurological condition for which there is no cure.

"I feel locked out, in a way. I haven't grown tired of the story yet," he said.

McPhee, 44, is best known as the host of the nationally syndicated radio program "The Dream Doctor Show," where he answers the public's questions about the meanings of their dreams. For weeks before the diagnosis, listeners noticed a difference in his voice.

"You can hear it whenever I talk," said McPhee, whose slow and careful speech makes him sound older than he actually is. "It's more difficult, and I was noticing slurring."

Eventually, those afflicted with ALS lose their capacity to speak and move entirely. It was not until August that McPhee decided to explain his condition to listeners.
The main reason for the delay was McPhee's hope that he could continue the show with voice-replication technology.

"It was just more of an effort to speak clearly for a while," he said. With therapy reducing some of his symptoms, McPhee thought that he might be able to continue his radio show for a while longer. The technologies that he used to replicate his voice, though, did not end up providing a solution, requiring too much time and money. "It just wasn't realistic in the end," he said.

Instead, McPhee has chosen to focus his energy on his treatment, his family and his writing. The nephew of writer and Princeton professor John McPhee '53, Charles is married and has a 17-year-old daughter.

"The Dream Doctor Show" has been running old shows and will have its last broadcast this Saturday. He is not giving up his work, however. With his mind as sharp as ever and his dexterity as yet unaffected, McPhee is drawing on his vast stores of data and his own experiences to continue writing about dreams. If his treatment continues at its current pace, he said, "I've got plans for four more books."

A dream realized

From the beginning, McPhee has been much more than a radio personality. "To interpret dreams," he said, "it's very helpful to know the physiology of sleep and sleep disorders. Without that background, you wouldn't be able to tell, say, the difference between recurring nightmares that should be treated psychologically and night terrors, which are actually a parasomnia and have a fairly simple solution: keeping a light on at night."

Several times a month, callers on the show describe dreams where something is stuck in their throat. From years of treating these exact dreams at the Sleep Disorders Center of Santa Barbara, McPhee knows that this is a symptom of sleep apnea, not a simple nightmare.

Generally, though, dreams, not sleep disorders, are what McPhee deals with on his show and website. "The Web is an amazing tool not just for seeking but gathering information," he said. When he first requested that his readers submit interesting dreams, in the Internet's infancy, he received 700 dreams immediately, and more recently has been interpreting upward of 6,000 listeners' and readers' dreams per year.

Before starting his radio show, McPhee studied dreams not only in Santa Barbara but also at the National Institute of Mental Health. It all began at Princeton, though.

"It's not an easy subject to study at a place like Princeton — you might get an hour or two about dreams in a psych lab, but that's it — so I knew freshman year that to really get into it, I'd have to do independent work," he explained.

By majoring in sociology, McPhee hoped he would have a better chance of doing innovative research on the subject. Even there, though, it wasn't easy. His thesis adviser, Marvin Bressler, steered him away from studying dreams directly to fit the thesis better into the field of sociology. Instead, he studied ways of teaching general audiences about dreams. "It's ironic," McPhee noted, "because that's exactly what I've done and loved doing: teaching people about dreams using mass media."

"There's a lot of bad information about dreams out there," McPhee conceded, admitting that "most of the dream info you find on the Internet is bad."

His key message is that "dreams don't come from Mars or Pluto. Every one of them means something. There's post-traumatic dreams, like what rape victims may have, or soldiers back from Iraq or 9/11 survivors."

The dreams that fascinate McPhee most are the ones he wrote his thesis about, lucid dreams, in which the sleeper knows he is dreaming and can affect the outcome of the dream, sometimes providing greater insight. "What I would love to know is what percentage of Princeton students have lucid dreams," he said. "It's about 50 percent in the general population, but I bet it's more like 75 or 80 percent there. Intelligence has a big effect on your awareness of your dreams."

The other main category is worry-related dreams, which McPhee said are hints about what people need to address in their waking lives. "Princeton students have all kinds of worry-related dreams," he said. "You might have dreams where you're chased or trapped, and those can be clues that you're dealing with an unhealthy romantic relationship. And parents have endless accident dreams, but those don't mean their toddler is going to have an accident; it just has to do with fear of what's out of your control."

So how have the Dream Doctor's own dreams changed since his diagnosis? "I've had a lot of practice studying and being aware of my dreams, so I'm able to have a pretty good impact on them," he said. "I haven't had any nightmare dreams. They've remained very positive, just as I have. I've had a lot of dreams about building bridges, bridges under construction, which are typically symbols of transition." Even now, as he prepares to leave his radio show, McPhee continues to study the subject that fascinated him at Princeton: he is collecting his recent dreams for a book about his diagnosis, his dreams and the effects of major illness on the subconscious.

"I set out to learn the language of dreams, and I've really done it," McPhee said.

http://www.dailyprincetonian.com/arc...ws/16213.shtml
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Old 10-16-2006, 04:54 PM #4
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On the Campaign Trail
Bill Clinton's phone call thrills stem-cell advocateThere was a trademark voice - slightly hoarse, with a mid-South accent - on the Oppenheimers' home voice mail Wednesday.

"Shelbie, this is Bill Clinton," the voice said. "I'm thinking of you. ... I hope you're doing well."

The former president was in Bristol Borough to headline a campaign rally for Democratic congressional candidate Patrick Murphy. Knowing that Shelbie Oppenheimer was a big fan, Murphy handed his cell phone to Clinton so he could place the call.

"We've saved it forever," Jeff Oppenheimer said Friday. "We were able to call our relatives and friends and call ourselves Friends of Bill."

Shelbie Oppenheimer, 39, suffers from Lou Gehrig's disease and, as a passionate supporter of embryonic stem-cell research, has become a powerful symbol in the campaign between Murphy and Republican Rep. Mike Fitzpatrick. Murphy made a Web ad featuring Oppenheimer, with Jeff talking about the couple's hope for the research.

Fitzpatrick opposes federal funding of the research because it involves the destruction of viable human embryos and voted to uphold President Bush's veto of a funding bill earlier this year.

It turns out that Shelbie Oppenheimer had met Clinton before, at the signing ceremony for FDA-modernization legislation in 1997. She had worked with former Rep. Jim Greenwood (R., Pa.) on the bill and got an invitation to the ceremony.

Unfortunately, she wasn't home when Clinton called, Jeff Oppenheimer said. She was out testing a computer with adaptive features to help her communicate on the Web. "Of all the days... " Jeff Oppenheimer said.

http://www.philly.com/mld/inquirer/n...tgomery_county
////////////////////////////////////////////////////////////////////////

Shelbie Oppenheimer
http://www.alsa.org/news/article.cfm...FTOKEN=9822869
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Last edited by BobbyB; 10-16-2006 at 05:07 PM.
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