ALS For support and discussion of Amyotrophic lateral sclerosis (ALS), also referred to as "Lou Gehrig's Disease." In memory of BobbyB.


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Old 10-18-2006, 03:02 PM #11
arrigoar arrigoar is offline
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So in other words. I can trust my GP...and will get some reassurance from my neuro that I don't have ***. Correct?
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Old 10-18-2006, 04:01 PM #12
Alison P Alison P is offline
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Correct!!!
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Old 10-20-2006, 11:58 AM #13
arrigoar arrigoar is offline
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My symptoms have been going on for about almost 2 months now. My main complaint is perceived weakness in my right arm, although I can still do everything, this just feel heavier.

If I had ALS, wouldn't I have seen some more progression?
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Old 10-20-2006, 12:14 PM #14
lisag lisag is offline
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Tony..
You said yourself that you are suffering from hypochondria....please seek counseling for this problem...
Paul, Jeff. Alison and I have tried to reassure you...but it does not seem to be sinking in...
I just really don't know what else we can say...please follow your doctors advice and please look into counseling to help get control of your fears..Lisa

Last edited by lisag; 10-20-2006 at 12:27 PM.
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Old 10-20-2006, 06:00 PM #15
arrigoar arrigoar is offline
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I am on anti-depressants now. And I am taking klonopin until they kick in. The one thing that I am worry about is atrophy in my thumb pad (thenar muscle). I had my GP look at it and he said it is not atrophy. But I am still doubting him. If it was true atrophy, my thumb would be pretty weak wouldn't it? Especially after a month and a half?????? Also, my arm would be pretty weak too, correct?

Sorry, I am just really scared! Looking for some reassurance.

Neuro appointment next Friday.
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Old 10-30-2006, 05:15 PM #16
arrigoar arrigoar is offline
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Default Neuro Appt.

I had my neuro appt. on Friday. He did all the strength tests and reflex tests. He says I have BFS. He wants to do an EMG for piece of mind though, since I have been worrying about ALS.

Can I trust the neuro? I find myself second guessing him.
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Old 10-30-2006, 06:19 PM #17
DaveWv DaveWv is offline
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Maybe arrigar just needs to be a part of something and he stumbled on to ALS first.
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Old 10-30-2006, 09:43 PM #18
lisag lisag is offline
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Tony,
Over the years many people from the Neuromuscular forum at OBT..went through many of the "same " fears as you are having..but many came to realize they did not have ALS...some sought professional counseling...some had other "treatable " physical things going on...
You can look- up any symptom on the internet and it can fit almost anything..every headache is not a brain tumor..and every twitch is not ALS...self- diagnosing and second guessing your doctor is not a good idea...
My concern is even if you have an EMG...will it ease your mind? Or will you question that test as well ?
None of us here are docs, we can't see you,even if we could we are not qualiified to diagnos you...but everyone who has responded to this thread...has told you nothing you have mentioned "sounds" like ALS..
Please again consider seeking professional help for your anxiety problems...as living in constant fear...will destroy any happiness you have...let your doctors know how your "constant" fears are affecting your life...and see if they can refer you to a qualified counselor..Lisa

Last edited by lisag; 10-31-2006 at 09:06 AM.
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Old 11-01-2006, 09:05 AM #19
arrigoar arrigoar is offline
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Lisa,

I am going to seek counseling for my health anxiety. I am just doubting my neuro, who said he is 99% sure I don't have ALS and said he thinks I have BFS. He ordered the EMG because he thinks it will be therapudic for me. To have some closure.

My question is...do you think deep in your heart, that I can trust my neuro? Is 99% as good as it gets?

I am getting an EMG next Thursday, and am worried he may have missed something.

Please provide some input...sorry to be a bother...just real scared!

Thanks,

Tony
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Old 11-01-2006, 09:38 AM #20
lisag lisag is offline
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Tony,
Please calm down and try to put things into perspective...
You passed a test on reflexes with flying colors performed by a qualified physician,you have no "profound " weakness, you are completely functional and can even lift weights...What do you honestly think your chances for having ALS are?
Sure there is a "chance " I could get struck by lightening today...but I'm not going to spend my day worry about it..as the odds are strongly in my favor that I will not...And even if I do get struck by lightening what good would worrying about it do ?
Do you really think any of us here are qualified to second guess your docs...and diagnos you over the internet?
I hope the EMG will give you closure ..all I can advise in the mean time is for you to remember the reason the doc ordered the EMG in the first place ....to give you piece of mind.. Lisa

Last edited by lisag; 11-01-2006 at 09:43 AM.
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