ALS For support and discussion of Amyotrophic lateral sclerosis (ALS), also referred to as "Lou Gehrig's Disease." In memory of BobbyB.


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Old 11-02-2006, 02:11 PM #41
Wayne Wayne is offline
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Jeff,

I thought your first post was funny. What do you mean "hurts like hell"? There are some guys that pay good money for that kind of treatment!
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Old 11-02-2006, 02:46 PM #42
arrigoar arrigoar is offline
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Wayne…I did think his comment was okay. I had an EMG two years ago, when I went through the same type of ALS scare. I was dx’d with BFS back then. The thing that is scary about this time, is that I am noticing weakness on my right side. It is weakness that I noticed, but the doctors don’t.

That is why I am so terrified. I don’t care about the twitches, the weakness is what concerns me…even though my GP and Neuro both say they cannot find any.

Do I need to worry, even though I haven’t had my EMG yet. They surely would have noticed something on the clinical exam, wouldn’t they?

Any input is much appreciated…I am a nervous wreck…and thank you all for your feedback!

Tony
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Old 11-02-2006, 02:55 PM #43
lisag lisag is offline
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http://forums.psychcentral.com/postl...&Board=anxiety
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Old 11-02-2006, 03:05 PM #44
arrigoar arrigoar is offline
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Lisa,

I do not appreciate the subtle reminder that I have anxiety issues. I am looking for honest opinions from people who are close to, or are afflicted with ALS.

I know my anxiety is a problem...I am dealing with it. It is going to take time. Flat out...from you...or anyone else....DO I HAVE ALS??????
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Old 11-02-2006, 03:10 PM #45
lisag lisag is offline
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http://www.wfnals.org/guidelines/199...98criteria.htm
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Old 11-02-2006, 03:10 PM #46
Curious Curious is offline
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tony,

the members here can not give you a dx. they can offer you support and information. they are not dr's. ( if a dr does post they are not giving a dx, just advise)

lisa's link was to offer you support that the als forum can't give you.

asking for a dx from people who are suffering or caregivers will get you no where. you will get your dx from your own dr.

we all hope that you do not get a dx of als. if you do, i am sure that the als forum will be here for support.

Curious
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Old 11-02-2006, 03:35 PM #47
Alison P Alison P is offline
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Tony,
There is not 1 person here that believes you have ALS....not 1. You didn't have it 2 years ago....you don't have it now. Funny thing is everyone here tells you their opinion and you still don't believe. For your sake, let it go. Get on with your life.
Alison
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Old 11-02-2006, 03:48 PM #48
arrigoar arrigoar is offline
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No one on here believes I have ALS. And I thank you for your opinions. My GP and Neuro also say I don't have it as well. I have doubt...just for the pure simple fact that I didn't have the EMG yet.

That is where all of my doubt is coming from. Plus, I am constantly examining my right hand, which feels weak...and see possible signs of atrophy.

My understanding is that atrophy occurs after muscle weakness, and twitching. Sort of at the end stage. The atrophy occurs mostly from muscle disuse.

Is that correct?
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Old 11-02-2006, 03:52 PM #49
lisag lisag is offline
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Wayne…I did think his comment was okay. I had an EMG two years ago,
when I went through the same type of ALS scare. I was dx’d with BFS back then.
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Old 11-02-2006, 03:55 PM #50
arrigoar arrigoar is offline
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Lisa,

But what's not to say that my BFS dx back then is totally unrelated to the symptoms I am having now?

Check out my post before Lisa posted.

ALS...is it weakness, twitching, then atrophy???
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