ALS For support and discussion of Amyotrophic lateral sclerosis (ALS), also referred to as "Lou Gehrig's Disease." In memory of BobbyB.

 
 
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Old 11-02-2006, 04:06 PM #26
lisag lisag is offline
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Join Date: Oct 2006
Posts: 186
15 yr Member
lisag lisag is offline
Member
 
Join Date: Oct 2006
Posts: 186
15 yr Member
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Tony ,,this will be my final response on this thread...

But, No ALS is not weakness , twitching and atrophy ...it is so much more... ALS is this...

http://www.wfnals.org/guidelines/199...98criteria.htm

Do you realize how much my husband and others here would "love " to be in your shoes...just to have a "qualified " doctor tell them they don't have ALS....it is something treatable ..or benign...or anxiety..
But, they can't ...why...because some can't breathe, some can't talk, some can't move....and there is nothing anyone can do except cope with the disease..and yet you are having a " crisis " over the thought of it and people are trying to comfort you... when a doctor has told you that what you suffer from is anxiety and "benign" fasicualation syndromes...seems backwards doesn't it...
No matter what we post , no matter what any doctor says, no matter what any test says...nothing is sinking in..it the fear that is out of control...and I posted the link to an anxiety forum in hopes that you would find help there,,,Lisa
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