Hello,
Not sure how this works, would just like to talk to others that know what is going on. He was diagnosed 1/07, but probably had ALS for a while b4 that, and was in denial. His father and Aunt had it too. All that was b4 I knew him. Getting pretty weak now and has some problems with everyday things like being able to get dressed alone. We are married 20 years in March.
Just feel a little overwhelmed sometimes. I am working full time so we have insurance for meds and doctor visits, and yes we are getting medicare coverage too. My brother checks on him throughout the day and I call whenever I get a minute at work, about 3-4 times a day just to check in. We are traveling to Mayo clinic for the only ALS approved site in our area.
Its hard to watch what is happening to him, I try to keep a for him, but when I am alone I cry alot. Our house is going to ____, b/c I just can't keep up. We are in the process of trying to get a handicap van and a chair, which will have to be XL b/c he is 6'10" tall. Not sure if this is what this site is for, but here goes........39woody (Woody was our favorite dog who died due to a coral snake)