ALS For support and discussion of Amyotrophic lateral sclerosis (ALS), also referred to as "Lou Gehrig's Disease." In memory of BobbyB.


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Old 02-18-2008, 08:53 AM #1
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Kitty Kitty is offline
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Kitty Kitty is offline
Wisest Elder Ever
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Join Date: Jan 2008
Location: Deep South
Posts: 21,576
15 yr Member
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Hi 39 Woody. I usually stay on the MS forum for the most part but occasionally venture out to other areas.

I work with a man who was dx with ALS last year. He is the same age as me - 47. He is my only source of information about ALS as I knew no one with it before him.

He's doing pretty good - mornings are his "good" time and that's the time of day he will call to talk, etc. because as the day progresses his voice gets softer and more slurred.

He keeps up with all the new advances made for ALS and is participating in some sort of trial right now. I'll have to ask him what it's for as I can't remember even though he's told me several times!

He still has a great sense of humor and teases me about my memory problems and I tease him about his tremors (all in good fun). He jokes that when we go out to lunch or something it's a wonder that we ever get to eat - what with me getting lost and him taking so long to get seated! He doesn't mean any disrespect with it - and I'm happy he can see the humor in our situatons. However small it may be.

I hope you get some help with your house - I can only imagine how hard it is having to work full time and then having to care for the house, too. There is a classified forum where people advertise items they have to sell or swap - you might look there for the van and chair.

I'll keep you and your husband in my prayers.
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