FAQ/Help |
Calendar |
Search |
Today's Posts |
![]() |
|
ALS For support and discussion of Amyotrophic lateral sclerosis (ALS), also referred to as "Lou Gehrig's Disease." In memory of BobbyB. |
Reply |
|
Thread Tools | Display Modes |
![]() |
#1 | |||
|
||||
In Remembrance
|
we need to get ken patterson on tv for awareness.
with this http://www.wftv.com/video/15958318/index.html this http://www.digtriad.com/news/local_s...3&catid=57 and this http://www.youtube.com/watch?v=nmmU5NTHk7I to do this ![]() http://www.rolloverals.org/ we have to do this for ken and glenda. awareness. we need the first 2 videos on youtube. we all need to email shows giving them the video links to view plus news stories , ken website and he story. we owe this to ken, glenda. so please do it TODAY PEOPLE. this is BIG NEWS and it's our job to DO IT. thank you __________________ ALS/MND Registry http://www.patientslikeme.com/registry NeuroTalk ALS/MND http://neurotalk.psychcentral.com/forumdisplay.php?f=6
__________________
. ALS/MND Registry . |
|||
![]() |
![]() |
![]() |
#2 | |||
|
||||
In Remembrance
|
Need Inspiration
The Ormsby Girls traveled from California along with their Dad to read this speech on Capitol Hill despite losing their Mom less than 2 months ago. A beautiful family we will never forget. video http://www.youtube.com/watch?v=uwxpWjVF-oY Michele MySpace URL: http://www.myspace.com/stopals
__________________
. ALS/MND Registry . |
|||
![]() |
![]() |
![]() |
#3 | |||
|
||||
In Remembrance
|
My Sister and I went to DC for advocacy week to see what we could do to help. The people we met and the experience of seeing such an amazing community of advocates was beyond inspiring. We posted a video of Ken and Glenda Patterson arriving at the Tomb of the Unknown soldier as they lay a wreath in honor of those who lost their battle with ALS. They made this long and stressful trip to bring attention to anyone who might see them and I would hope that everyone would take a moment to send them a thank you. What they stand for is an inspiration and they have dedicated their lives to making a difference. We are so honored we got to meet them, that we were able to be there and we are more dedicated than ever in exposing this disease to the world and helping to fund a cure. Their web site is www.rolloverals.org
We have a site at www.myspace.com/stopals and you can see their video at this link http://www.youtube.com/watch?v=nmmU5NTHk7I as well as another of the Ormsby Girls who traveled from California to read their speech on Capitol Hill. Stay tough.fight hard stopals
__________________
. ALS/MND Registry . |
|||
![]() |
![]() |
"Thanks for this!" says: | Twinkletoes (05-15-2008) |
Reply |
|
|
![]() |
||||
Thread | Forum | |||
Ken Patterson [Video] Drives Wheelchair From Florida To DC | ALS | |||
ALS Awareness | ALS | |||
Ken Patterson reaches Washington D.C.,,PALS In The News | ALS | |||
A James Patterson Book/on TV tonight | Bipolar Disorder | |||
CD Awareness Campaign from NIH | Gluten Sensitivity / Celiac Disease |