[boomer]

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Hi, y'all ,

I went to the Doc yesterday for my reg check and it appears that my breathing,breathlessness and related symptoms have deterioated.
Up to now I have suffered bi lateral ft drop, left hand arm weakness, neck drop and choking when eating..........

I have noticed getting breathless a lot more even at rest in bed...
I am awaiting a appointment at the pulmonary specialist......to be tested for a bipap...........what is it like??? what are the options ??? how out of breath are you guys ?? who uses bipap ??? all day??? nightime??

lots of questions , huh, 3 yrs in and this is a new realm for me??? I cope very well with limb probs .........but breathing ......thats serious s**t !

Is it correct that bipap,not only helps your breathing , but can be used at the earliest stages to preserve muscle function?

I have health insurance .........but it is basically crap and will have to pay for most of the costs related to the machine and subsequent ongoing costs, so what machines are out there that are being used and their advantages, particuarly as the breathing deterioates (WHICH ITS NOT!!)

thanxs for the replies in advance

a somewhat sad Boomer today !!
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MND:
"FREE AS A BIRD IN OUR MINDS, BUT NOT IN OUR BODIES"