Jeannie age 28
Limb Onset June 2000
Dxed July 2001
UK

My blog http://jeannie-world.blogspot.com/

My website http://uk.geocities.com/jeannie_25als@btinternet.com/

ALS/MND CHATROOM http://client1.sigmachat.com/sc.pl?id=144320

DannyD
Leander, TX
47 y/o
Bulbar onset, slow progression, still walking & driving:
Mainly Upper Motor Neuron; Spasticity and No Balance
Symptoms 3/97; Dx 12/00; Cane 1/03; BiPAP 9/03 AFO 4/05; Walker 5/05;

"Strength does not come from physical capacity. It comes from indomitable will." Gandhi

Dave, Los Angeles CA
Limb onset (hands), Symptoms 2003, dx. 2/2006
Hands continue to weaken; some atrophy in arms and shoulders. Still walking, talking, eating and breathing. Living each day best I can.

My name and more
Fotios Tzimas
46 years
Hellas Greece
dx march 2004 bulbar
fast progress now is everywhere
wheelchair 2005
since 22 april 2006 i write with head mouse smart nav and Skeleton Key
keyboard
more about me www.als-net.gr
Geia hara Fotios :cool:

Wally is 39 years old
living in Northeastern New York
dx'd 9/02 limb onset
Wally is also non-verbal autistic and has epilepsy
In wheelchair and on Bi-Pap and oxygen concentrator
taking Namenda and Lithium Carbonate to block glutamate
and on several vitamins and minerals
Also using Enemeez (Docusate sodium) everyday for severe constipation.

Hello from skimbrell2
 

Hi Fotios

Did you have the treatment in China back in 08/04?

Sheila Kimbrell
Daughter of Foye Thornton

Colin
dxd may 2006
bulbar onset may 2003
speech almost gone plus hands and right arm also legs very weak
still getting about have quality of life....yahoo...:)

MarkNH
New Hampshire
First Sx November 2002
Diagnosed March 2003
Severe leg muscle atrophy. Manual w/c and crutches.
Fasc's overall including tongue.
Still working, driving, living differently but fully!

Hello I'm Lisag wife of Gary..
Diagnosed 1999 with bulbar onset ALS
Ventilator dependent since 2004 but can come off for showers etc..

first symptoms-- May 2001
lots of tests
three different neurologists
blah blah blah -- yada yada yada
wheelchair -- January 2004
bi pap-- March 2005
today -- great family and friends, things could be worse, on the whole my life -- o-- meter is still registering on the plus side.