FAQ/Help |
Calendar |
Search |
Today's Posts |
|
ALS For support and discussion of Amyotrophic lateral sclerosis (ALS), also referred to as "Lou Gehrig's Disease." In memory of BobbyB. |
Reply |
|
Thread Tools | Display Modes |
|
09-10-2006, 11:50 PM | #1 | ||
|
|||
New Member
|
John 56,
Symptoms started March 04, dx August 05. limb onset arms and weak neck, can still walk abit. Live in Melbourne Australia. Take each day and live the best you can. |
||
Reply With Quote |
09-11-2006, 06:38 AM | #2 | |||
|
||||
Junior Member
|
Jeannie age 28
Limb Onset June 2000 Dxed July 2001 UK My blog http://jeannie-world.blogspot.com/ My website http://uk.geocities.com/jeannie_25als@btinternet.com/ ALS/MND CHATROOM http://client1.sigmachat.com/sc.pl?id=144320 |
|||
Reply With Quote |
10-05-2006, 09:53 PM | #3 | ||
|
|||
New Member
|
MarkNH
New Hampshire First Sx November 2002 Diagnosed March 2003 Severe leg muscle atrophy. Manual w/c and crutches. Fasc's overall including tongue. Still working, driving, living differently but fully! |
||
Reply With Quote |
10-07-2006, 09:57 AM | #4 | ||
|
|||
Member
|
Hello I'm Lisag wife of Gary..
Diagnosed 1999 with bulbar onset ALS Ventilator dependent since 2004 but can come off for showers etc.. |
||
Reply With Quote |
10-13-2006, 03:36 AM | #5 | ||
|
|||
New Member
|
tucker, Los Angeles CA
Limb onset (all), Symptoms 2004, dx. 2/2005 i have Stephen Hawking's Desease (everybody wants to call it lou gehrig's but lets face it - he's hardly a good role model - being dead and all)*my limbs aren't that hot - sadly my clever little hands went first - and since i already made my living on the computer,* i saw which way the wind was blowing and got iListen voice recognition,* smartnav headpointing gear and - keystrokes.* Voila!* back to work!* Now if only i could do handspring again! big love to you all! |
||
Reply With Quote |
01-03-2007, 05:08 PM | #6 | ||
|
|||
New Member
|
Hi, my name is Mark Sullivan, and I was dx'd with ALS last March. I knew what I had for several months, but didn't have the guts to face up to it.
Does anyone here remember Kevin or Kassie Sullivan from another chat room. I think it was Steve's, but not sure. Kevin was my dad, and he passed away, but he also had ALS. I know my mom got to know a lot of great people but I just didn't pay enough attention at the time. I'm glad I found this place. I looked for the other chat room, but couldn't find it. See you around. Mark |
||
Reply With Quote |
10-20-2011, 08:13 AM | #7 | ||
|
|||
Junior Member
|
Have had all the tests for MS and no go then went to have an EMG and low and behold the dr giving it asked if I ever heard of als well of course I had as my first nuero mentioned it speech is slurred from time to time and both thumbs are starting to atrophy still have grip just not good like it was. I intend to try and fight with all I have and hope my doc realizes that he needs to help if not another doctor will be here, I have heard so much and really know nothing much til I see him tomorrow but I am ready to hear it and get started on the work I need to do Hope everyone here is having the quality they need
|
||
Reply With Quote |
09-11-2006, 01:42 PM | #8 | |||
|
||||
New Member
|
DannyD
Leander, TX 47 y/o Bulbar onset, slow progression, still walking & driving: Mainly Upper Motor Neuron; Spasticity and No Balance Symptoms 3/97; Dx 12/00; Cane 1/03; BiPAP 9/03 AFO 4/05; Walker 5/05; "Strength does not come from physical capacity. It comes from indomitable will." Gandhi |
|||
Reply With Quote |
09-12-2006, 05:43 PM | #9 | ||
|
|||
New Member
|
Dave, Los Angeles CA
Limb onset (hands), Symptoms 2003, dx. 2/2006 Hands continue to weaken; some atrophy in arms and shoulders. Still walking, talking, eating and breathing. Living each day best I can. |
||
Reply With Quote |
09-14-2006, 04:07 AM | #10 | ||
|
|||
Junior Member
|
My name and more
Fotios Tzimas 46 years Hellas Greece dx march 2004 bulbar fast progress now is everywhere wheelchair 2005 since 22 april 2006 i write with head mouse smart nav and Skeleton Key keyboard more about me www.als-net.gr Geia hara Fotios Last edited by fotios; 09-14-2006 at 04:10 AM. |
||
Reply With Quote |
Reply |
|
|
Similar Threads | ||||
Thread | Forum | |||
RollCall! | Tourette Syndrome | |||
Monday Rollcall | Weight Loss & Healthy Living | |||
No Sunday Rollcall? | Fibromyalgia and Chronic Fatigue | |||
RollCall Wednesday 9-27 | Weight Loss & Healthy Living | |||
Rollcall Saturday 9-16 | Weight Loss & Healthy Living |