Bill in Salt Lake City. First symptoms in 98 after I had an head injury.

Hello, i'm Cheryl from Salem, OR. 50 yrs
DX sept 06 bulbar onset
can't talk eat or walk
bipap 10/06
feeding tube 11/06
wheel chair 6/07

Hello, i'm Cheryl from Salem, OR. 50 yrs
DX sept 06 bulbar onset
can't talk eat or walk
bipap 10/06
feeding tube 11/06
wheel chair 6/07

Hi Cheryl and welcome to Neuro Talk..specifically to this ALS forum. I copied and pasted your introduction here so I could reply to it. This forum is read by multitudes of people...compassionate people and probably some curious people too. :wink:

I just wanted to say Hi and let you know that I "heard" you. :grouphug:

I'm new to neurotalk
 

hi I've recently joined and want to introduce myself. I was diagnosed August of 06,my progression has been more or less quick. since around that time I have lost all use of my legs, my left arm is almost gone, my neck muscles can't hold up my head anymore, my swallowing is weak, I have a peg, I have to use my bipap 24/7 now. my speech is now getting weak. I try to keep positive and still do quite a bit of routine household chores in a powerchair and I still have use of my right arm with arm braces.

still alive and well

http://www.patientslikeme.com/upload...7/DSC02661.jpg

Diet
 

I am really interested to read the dietary issue. How would you or where would you suggest I go for guidance on this issue. Thanks for your post. I am totally new here, Richard.

New to the Game :)
 

Richard
Aotearoa NZ
09/2011
Love :) Ideas, Encouragement and Laughter.
Today, I am doing fine. I can ride my bike, just bought a stationary one :) It gets me exercising in the rain and cold and I love the aerobic work out.
I am continuing with my film, photography and writing. I am editing a feature length Doc but finding my hands don't always like the mouse. I continue to photograph but need to pay attention. My writing is a god send, I blog often and love it. Essays, my memoir and other 'stuff'. I am able to slowly walk round the block and do better on uneven surfaces such as grass. I can still drive but pay attention to tiredness.

Diet
 

many thanks for your posting rama, i am interested in the actual diet, i know i feel much better when I change my diet but I need some guidance, who did you approach? All the best and please, keep posting, Richard.