ALS For support and discussion of Amyotrophic lateral sclerosis (ALS), also referred to as "Lou Gehrig's Disease." In memory of BobbyB.


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Old 02-12-2008, 07:15 AM #1
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Alffe Alffe is offline
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Alffe Alffe is offline
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Hello, i'm Cheryl from Salem, OR. 50 yrs
DX sept 06 bulbar onset
can't talk eat or walk
bipap 10/06
feeding tube 11/06
wheel chair 6/07

Hi Cheryl and welcome to Neuro Talk..specifically to this ALS forum. I copied and pasted your introduction here so I could reply to it. This forum is read by multitudes of people...compassionate people and probably some curious people too.

I just wanted to say Hi and let you know that I "heard" you.
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"Thanks for this!" says:
BobbyB (02-13-2008)
Old 11-16-2012, 11:54 AM #2
Katman Katman is offline
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Location: St. Louis, MO
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Katman Katman is offline
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Default Newly diagnosed

Reside in St. Louis area.
Diagnosed a little over 2 weeks ago after seeing one medical specialist after another and had cervical fusion surgery scheduled.
At this time, I have left leg and arm weakness and loss of dexterity in left hand.
In hindsight, symptom probably began mid-July with mild left sided limp subsequent to a fall. A step increase in balance issues began around mid October. Mostly stable since then except that fasciculations began about 2 weeks ago.
I get around fairly well with a cane and can manage stairs so far. Ordered a stair lift.
Trying to wrap my mind around it so that I can plan and not focus on it all the time.
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Old 10-08-2013, 07:17 PM #3
AnAyanami AnAyanami is offline
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Smile Aubrey

Hello, my husband has ALS. His name is Aubrey. I think he has what is known as bulber ALS. His symptoms started with slurred speech and progressed to difficulty drinking/swallowing. He was diagnosed this past August, 2013.
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