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ALS For support and discussion of Amyotrophic lateral sclerosis (ALS), also referred to as "Lou Gehrig's Disease." In memory of BobbyB.

RollCall for PALS

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Old 04-28-2007, 04:20 PM   #31
BillO
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Bill in Salt Lake City. First symptoms in 98 after I had an head injury.
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Old 07-17-2007, 10:56 AM   #32
BobbyB
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Cool

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Old 09-28-2007, 09:23 AM   #33
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Old 02-11-2008, 01:30 PM   #34
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Hello, i'm Cheryl from Salem, OR. 50 yrs
DX sept 06 bulbar onset
can't talk eat or walk
bipap 10/06
feeding tube 11/06
wheel chair 6/07
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"Thanks for this!" says:
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Old 02-12-2008, 06:15 AM   #35
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Hello, i'm Cheryl from Salem, OR. 50 yrs
DX sept 06 bulbar onset
can't talk eat or walk
bipap 10/06
feeding tube 11/06
wheel chair 6/07

Hi Cheryl and welcome to Neuro Talk..specifically to this ALS forum. I copied and pasted your introduction here so I could reply to it. This forum is read by multitudes of people...compassionate people and probably some curious people too.

I just wanted to say Hi and let you know that I "heard" you.
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Old 11-03-2008, 12:47 PM   #36
mompeach
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Smile I'm new to neurotalk

hi I've recently joined and want to introduce myself. I was diagnosed August of 06,my progression has been more or less quick. since around that time I have lost all use of my legs, my left arm is almost gone, my neck muscles can't hold up my head anymore, my swallowing is weak, I have a peg, I have to use my bipap 24/7 now. my speech is now getting weak. I try to keep positive and still do quite a bit of routine household chores in a powerchair and I still have use of my right arm with arm braces.
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Old 11-04-2008, 09:00 AM   #37
BobbyB
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still alive and well

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Old 10-04-2011, 02:24 AM   #38
kiwicafe
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Quote:
Originally Posted by Rama View Post
Rama Whitlock, female, 56
ALS symptoms appeared in 1977, it took another year to get dxd after the delivery a beautiful daughter. I deteriorated at a steady pace until my diet was radically altered to eliminate dairy, grains, except brown rice, and simple sugars and fats. When I added supplements I stabilized even though symptoms are ready to continue the deterioration any time I don't follow my regimen.
I am really interested to read the dietary issue. How would you or where would you suggest I go for guidance on this issue. Thanks for your post. I am totally new here, Richard.
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Old 10-04-2011, 02:35 AM   #39
kiwicafe
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Default New to the Game :)

Richard
Aotearoa NZ
09/2011
Love Ideas, Encouragement and Laughter.
Today, I am doing fine. I can ride my bike, just bought a stationary one It gets me exercising in the rain and cold and I love the aerobic work out.
I am continuing with my film, photography and writing. I am editing a feature length Doc but finding my hands don't always like the mouse. I continue to photograph but need to pay attention. My writing is a god send, I blog often and love it. Essays, my memoir and other 'stuff'. I am able to slowly walk round the block and do better on uneven surfaces such as grass. I can still drive but pay attention to tiredness.
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Old 10-17-2011, 10:56 PM   #40
kiwicafe
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many thanks for your posting rama, i am interested in the actual diet, i know i feel much better when I change my diet but I need some guidance, who did you approach? All the best and please, keep posting, Richard.
Quote:
Originally Posted by Rama View Post
Rama Whitlock, female, 56
ALS symptoms appeared in 1977, it took another year to get dxd after the delivery a beautiful daughter. I deteriorated at a steady pace until my diet was radically altered to eliminate dairy, grains, except brown rice, and simple sugars and fats. When I added supplements I stabilized even though symptoms are ready to continue the deterioration any time I don't follow my regimen.
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