ALS For support and discussion of Amyotrophic lateral sclerosis (ALS), also referred to as "Lou Gehrig's Disease." In memory of BobbyB.


advertisement
Reply
 
Thread Tools Display Modes
Old 04-28-2007, 04:20 PM #31
BillO BillO is offline
Junior Member
 
Join Date: Apr 2007
Posts: 35
15 yr Member
BillO BillO is offline
Junior Member
 
Join Date: Apr 2007
Posts: 35
15 yr Member
Default

Bill in Salt Lake City. First symptoms in 98 after I had an head injury.
BillO is offline   Reply With QuoteReply With Quote

advertisement
Old 07-17-2007, 10:56 AM #32
BobbyB's Avatar
BobbyB BobbyB is offline
In Remembrance
 
Join Date: Aug 2006
Location: North Carolina
Posts: 4,609
15 yr Member
BobbyB BobbyB is offline
In Remembrance
BobbyB's Avatar
 
Join Date: Aug 2006
Location: North Carolina
Posts: 4,609
15 yr Member
Cool

__________________

.

ALS/MND Registry

.
BobbyB is offline   Reply With QuoteReply With Quote
Old 09-28-2007, 09:23 AM #33
BobbyB's Avatar
BobbyB BobbyB is offline
In Remembrance
 
Join Date: Aug 2006
Location: North Carolina
Posts: 4,609
15 yr Member
BobbyB BobbyB is offline
In Remembrance
BobbyB's Avatar
 
Join Date: Aug 2006
Location: North Carolina
Posts: 4,609
15 yr Member
Default

__________________

.

ALS/MND Registry

.
BobbyB is offline   Reply With QuoteReply With Quote
Old 02-11-2008, 02:30 PM #34
cheryilyn cheryilyn is offline
New Member
 
Join Date: Nov 2007
Posts: 1
15 yr Member
cheryilyn cheryilyn is offline
New Member
 
Join Date: Nov 2007
Posts: 1
15 yr Member
Default

Hello, i'm Cheryl from Salem, OR. 50 yrs
DX sept 06 bulbar onset
can't talk eat or walk
bipap 10/06
feeding tube 11/06
wheel chair 6/07
cheryilyn is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
BobbyB (02-13-2008)
Old 02-12-2008, 07:15 AM #35
Alffe's Avatar
Alffe Alffe is offline
Young Senior Elder Member
 
Join Date: Aug 2006
Posts: 11,298
15 yr Member
Alffe Alffe is offline
Young Senior Elder Member
Alffe's Avatar
 
Join Date: Aug 2006
Posts: 11,298
15 yr Member
Default

Hello, i'm Cheryl from Salem, OR. 50 yrs
DX sept 06 bulbar onset
can't talk eat or walk
bipap 10/06
feeding tube 11/06
wheel chair 6/07

Hi Cheryl and welcome to Neuro Talk..specifically to this ALS forum. I copied and pasted your introduction here so I could reply to it. This forum is read by multitudes of people...compassionate people and probably some curious people too.

I just wanted to say Hi and let you know that I "heard" you.
__________________

.
Alffe is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
BobbyB (02-13-2008)
Old 11-03-2008, 01:47 PM #36
mompeach mompeach is offline
New Member
 
Join Date: Sep 2008
Posts: 1
15 yr Member
mompeach mompeach is offline
New Member
 
Join Date: Sep 2008
Posts: 1
15 yr Member
Smile I'm new to neurotalk

hi I've recently joined and want to introduce myself. I was diagnosed August of 06,my progression has been more or less quick. since around that time I have lost all use of my legs, my left arm is almost gone, my neck muscles can't hold up my head anymore, my swallowing is weak, I have a peg, I have to use my bipap 24/7 now. my speech is now getting weak. I try to keep positive and still do quite a bit of routine household chores in a powerchair and I still have use of my right arm with arm braces.
mompeach is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
BobbyB (11-04-2008)
Old 11-04-2008, 10:00 AM #37
BobbyB's Avatar
BobbyB BobbyB is offline
In Remembrance
 
Join Date: Aug 2006
Location: North Carolina
Posts: 4,609
15 yr Member
BobbyB BobbyB is offline
In Remembrance
BobbyB's Avatar
 
Join Date: Aug 2006
Location: North Carolina
Posts: 4,609
15 yr Member
Thumbs Up

still alive and well

__________________

.

ALS/MND Registry

.
BobbyB is offline   Reply With QuoteReply With Quote
Old 10-04-2011, 02:24 AM #38
kiwicafe kiwicafe is offline
Junior Member
 
Join Date: Oct 2011
Location: New Zealand
Posts: 7
10 yr Member
kiwicafe kiwicafe is offline
Junior Member
 
Join Date: Oct 2011
Location: New Zealand
Posts: 7
10 yr Member
Default Diet

Quote:
Originally Posted by Rama View Post
Rama Whitlock, female, 56
ALS symptoms appeared in 1977, it took another year to get dxd after the delivery a beautiful daughter. I deteriorated at a steady pace until my diet was radically altered to eliminate dairy, grains, except brown rice, and simple sugars and fats. When I added supplements I stabilized even though symptoms are ready to continue the deterioration any time I don't follow my regimen.
I am really interested to read the dietary issue. How would you or where would you suggest I go for guidance on this issue. Thanks for your post. I am totally new here, Richard.
kiwicafe is offline   Reply With QuoteReply With Quote
Old 10-04-2011, 02:35 AM #39
kiwicafe kiwicafe is offline
Junior Member
 
Join Date: Oct 2011
Location: New Zealand
Posts: 7
10 yr Member
kiwicafe kiwicafe is offline
Junior Member
 
Join Date: Oct 2011
Location: New Zealand
Posts: 7
10 yr Member
Default New to the Game :)

Richard
Aotearoa NZ
09/2011
Love Ideas, Encouragement and Laughter.
Today, I am doing fine. I can ride my bike, just bought a stationary one It gets me exercising in the rain and cold and I love the aerobic work out.
I am continuing with my film, photography and writing. I am editing a feature length Doc but finding my hands don't always like the mouse. I continue to photograph but need to pay attention. My writing is a god send, I blog often and love it. Essays, my memoir and other 'stuff'. I am able to slowly walk round the block and do better on uneven surfaces such as grass. I can still drive but pay attention to tiredness.
kiwicafe is offline   Reply With QuoteReply With Quote
Old 10-17-2011, 10:56 PM #40
kiwicafe kiwicafe is offline
Junior Member
 
Join Date: Oct 2011
Location: New Zealand
Posts: 7
10 yr Member
kiwicafe kiwicafe is offline
Junior Member
 
Join Date: Oct 2011
Location: New Zealand
Posts: 7
10 yr Member
Default Diet

many thanks for your posting rama, i am interested in the actual diet, i know i feel much better when I change my diet but I need some guidance, who did you approach? All the best and please, keep posting, Richard.
Quote:
Originally Posted by Rama View Post
Rama Whitlock, female, 56
ALS symptoms appeared in 1977, it took another year to get dxd after the delivery a beautiful daughter. I deteriorated at a steady pace until my diet was radically altered to eliminate dairy, grains, except brown rice, and simple sugars and fats. When I added supplements I stabilized even though symptoms are ready to continue the deterioration any time I don't follow my regimen.
kiwicafe is offline   Reply With QuoteReply With Quote
Reply


Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off


Similar Threads
Thread Thread Starter Forum Replies Last Post
RollCall! Chemar Tourette Syndrome 3 06-22-2007 04:18 PM
Monday Rollcall Alffe Weight Loss & Healthy Living 13 03-28-2007 07:47 AM
No Sunday Rollcall? coyote Fibromyalgia and Chronic Fatigue 4 09-30-2006 04:24 PM
RollCall Wednesday 9-27 janster Weight Loss & Healthy Living 21 09-28-2006 10:11 PM
Rollcall Saturday 9-16 janster Weight Loss & Healthy Living 3 09-16-2006 03:15 PM


All times are GMT -5. The time now is 12:53 PM.

Powered by vBulletin • Copyright ©2000 - 2024, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise v2.7.1 (Lite) - vBulletin Mods & Addons Copyright © 2024 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.


Always consult your doctor before trying anything you read here.