ALS For support and discussion of Amyotrophic lateral sclerosis (ALS), also referred to as "Lou Gehrig's Disease." In memory of BobbyB.

Reply
 
Thread Tools Display Modes
Old 10-18-2011, 12:02 AM #41
Jo*mar's Avatar
Jo*mar Jo*mar is offline
Co-Administrator
Community Support Team
 
Join Date: Aug 2006
Location: USA
Posts: 26,406
10 yr Member
Jo*mar Jo*mar is offline
Co-Administrator
Community Support Team
Jo*mar's Avatar
 
Join Date: Aug 2006
Location: USA
Posts: 26,406
My Mood: RollCall for PALS
10 yr Member
Default

Hello kiwicafe,
I copied your post to the main area of the ALS forum, here is the link to it -
http://neurotalk.psychcentral.com/forum6.html

You might also find other threads or posts there about diet suggestions for ALS.
__________________
These forums are for mutual support and information sharing only. The forums are not a substitute for medical advice, diagnosis or treatment provided by a qualified health care provider. Always consult your doctor before trying anything you read here.
Jo*mar is offline   Reply With QuoteReply With Quote
Old 10-20-2011, 08:13 AM #42
nemoslady3 nemoslady3 is offline
Junior Member
 
Join Date: Oct 2011
Posts: 6
8 yr Member
nemoslady3 nemoslady3 is offline
Junior Member
 
Join Date: Oct 2011
Posts: 6
My Mood: RollCall for PALS
8 yr Member
Default going to get the word tomorrow

Have had all the tests for MS and no go then went to have an EMG and low and behold the dr giving it asked if I ever heard of als well of course I had as my first nuero mentioned it speech is slurred from time to time and both thumbs are starting to atrophy still have grip just not good like it was. I intend to try and fight with all I have and hope my doc realizes that he needs to help if not another doctor will be here, I have heard so much and really know nothing much til I see him tomorrow but I am ready to hear it and get started on the work I need to do Hope everyone here is having the quality they need
nemoslady3 is offline   Reply With QuoteReply With Quote
Old 11-16-2012, 11:54 AM #43
Katman Katman is offline
New Member
 
Join Date: Nov 2012
Location: St. Louis, MO
Posts: 1
5 yr Member
Katman Katman is offline
New Member
 
Join Date: Nov 2012
Location: St. Louis, MO
Posts: 1
5 yr Member
Default Newly diagnosed

Reside in St. Louis area.
Diagnosed a little over 2 weeks ago after seeing one medical specialist after another and had cervical fusion surgery scheduled.
At this time, I have left leg and arm weakness and loss of dexterity in left hand.
In hindsight, symptom probably began mid-July with mild left sided limp subsequent to a fall. A step increase in balance issues began around mid October. Mostly stable since then except that fasciculations began about 2 weeks ago.
I get around fairly well with a cane and can manage stairs so far. Ordered a stair lift.
Trying to wrap my mind around it so that I can plan and not focus on it all the time.
Katman is offline   Reply With QuoteReply With Quote
Old 10-08-2013, 07:17 PM #44
AnAyanami AnAyanami is offline
New Member
 
Join Date: Oct 2013
Posts: 4
5 yr Member
AnAyanami AnAyanami is offline
New Member
 
Join Date: Oct 2013
Posts: 4
5 yr Member
Smile Aubrey

Hello, my husband has ALS. His name is Aubrey. I think he has what is known as bulber ALS. His symptoms started with slurred speech and progressed to difficulty drinking/swallowing. He was diagnosed this past August, 2013.
AnAyanami is offline   Reply With QuoteReply With Quote
Reply

Thread Tools
Display Modes

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off


Similar Threads
Thread Thread Starter Forum Replies Last Post
RollCall! Chemar Tourette Syndrome 3 06-22-2007 04:18 PM
Monday Rollcall Alffe Weight Loss & Healthy Living 13 03-28-2007 07:47 AM
No Sunday Rollcall? coyote Fibromyalgia and Chronic Fatigue 4 09-30-2006 04:24 PM
RollCall Wednesday 9-27 janster Weight Loss & Healthy Living 21 09-28-2006 10:11 PM
Rollcall Saturday 9-16 janster Weight Loss & Healthy Living 3 09-16-2006 03:15 PM


All times are GMT -5. The time now is 10:21 AM.

Powered by vBulletin • Copyright ©2000 - 2020, Jelsoft Enterprises Ltd.
Search Engine Optimisation provided by DragonByte SEO v2.0.31 (Lite) - vBulletin Mods & Addons Copyright © 2020 DragonByte Technologies Ltd.

vBulletin Optimisation provided by vB Optimise v2.7.1 (Lite) - vBulletin Mods & Addons Copyright © 2020 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.


Always consult your doctor before trying anything you read here.