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ALS For support and discussion of Amyotrophic lateral sclerosis (ALS), also referred to as "Lou Gehrig's Disease." In memory of BobbyB. |
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09-10-2006, 10:56 AM | #1 | ||
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Rama Whitlock, female, 56
ALS symptoms appeared in 1977, it took another year to get dxd after the delivery a beautiful daughter. I deteriorated at a steady pace until my diet was radically altered to eliminate dairy, grains, except brown rice, and simple sugars and fats. When I added supplements I stabilized even though symptoms are ready to continue the deterioration any time I don't follow my regimen. |
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09-10-2006, 12:29 PM | #2 | ||
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Joel Cutler, 54
Symptoms started Dec04 or Jan05 DX Aug 05 limb onset. Left hand first then right. I was monitored and given 2 years. Found Glutathione and still kicking! Deterioration slowed down immensely, was supposed to be immobile Dec05 - still functioning quite well. Down to 1 finger on each hand to type, but still getting around on my own! |
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09-10-2006, 02:30 PM | #3 | ||
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03-25-2007, 11:17 AM | #4 | ||
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What is glutathione?
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04-28-2007, 04:20 PM | #5 | ||
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Bill in Salt Lake City. First symptoms in 98 after I had an head injury.
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11-03-2008, 01:47 PM | #6 | ||
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hi I've recently joined and want to introduce myself. I was diagnosed August of 06,my progression has been more or less quick. since around that time I have lost all use of my legs, my left arm is almost gone, my neck muscles can't hold up my head anymore, my swallowing is weak, I have a peg, I have to use my bipap 24/7 now. my speech is now getting weak. I try to keep positive and still do quite a bit of routine household chores in a powerchair and I still have use of my right arm with arm braces.
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"Thanks for this!" says: | BobbyB (11-04-2008) |
11-04-2008, 10:00 AM | #7 | |||
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In Remembrance
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still alive and well
__________________
. ALS/MND Registry . |
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10-04-2011, 02:35 AM | #8 | ||
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Junior Member
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Richard
Aotearoa NZ 09/2011 Love Ideas, Encouragement and Laughter. Today, I am doing fine. I can ride my bike, just bought a stationary one It gets me exercising in the rain and cold and I love the aerobic work out. I am continuing with my film, photography and writing. I am editing a feature length Doc but finding my hands don't always like the mouse. I continue to photograph but need to pay attention. My writing is a god send, I blog often and love it. Essays, my memoir and other 'stuff'. I am able to slowly walk round the block and do better on uneven surfaces such as grass. I can still drive but pay attention to tiredness. |
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10-04-2011, 02:24 AM | #9 | ||
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10-17-2011, 10:56 PM | #10 | ||
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many thanks for your posting rama, i am interested in the actual diet, i know i feel much better when I change my diet but I need some guidance, who did you approach? All the best and please, keep posting, Richard.
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