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ALS For support and discussion of Amyotrophic lateral sclerosis (ALS), also referred to as "Lou Gehrig's Disease." In memory of BobbyB. |
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Yappiest Elder Member
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heaven definitely has a new angel.
rest in peace stephen. my deepest sympathy for his family and friends.
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Junior Member
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My deepest sympathy to the Heywood family.
Alison |
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#3 | |||
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Member
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Stephen Update
This morning at 6:30 am Stephen went into surgery after being declared legally brain dead. Wendy quietly sang Arms of an Angel by Sarah McLachlan and then we walked him down as a group. His body fought for 2 days to enable him to donate his organs in the best way. As I write this two patients are receiving his kidneys and are being given a chance at life. Stephens’s heart stopped at 7:36 am. My family was all together at our parents. Stephen found a way even in death to help others. He gave so much strength to so many. This does not end here. Together with Stephens’s spirit continuing to guide us we will take this disease apart and destroy it. -jamie |
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In Remembrance
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A champion for ALS
The 2006 Sundance Film Festival documentary "So Much So Fast," about a Massachusetts man's battle with amyotrophic lateral sclerosis (Lou Gehrig's disease) and his family's reaction to the illness, will have a free screening Thursday at 7 p.m. at the Jim Santy Auditorium, Park City Library Center, 1255 Park Ave., Park City. Co-director Steven Ascher will take part in a post-screening discussion of the movie and its subject, Stephen Heywood, who died Sunday after an eight-year battle with ALS. The screening is part of the Sundance Institute's monthly documentary series.
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. ALS/MND Registry . |
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