ALS For support and discussion of Amyotrophic lateral sclerosis (ALS), also referred to as "Lou Gehrig's Disease." In memory of BobbyB.


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Old 07-17-2008, 11:18 AM #481
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Norm M. Phillips


PHILLIPS Norm M.
Age 51 of Chalfont, PA formerly of Horseheads, NY passed away on Tuesday July 15, 2008 with his loving family at his side after a courageous 3 ½ year battle with Lou Gehrig's Disease. Norm worked from home for the last 1 ½ years, even with a tremendous amount of difficulty, but was still determined to hang on and live life as positively as possible. Norm was born June 28, 1957 in Elmira, NY the son of Arland and Beverly Wheeler Phillips. He was a graduate of Horseheads High School Class of 1975 and attended Delhi University. Until recently he was a Computer Scientist Engineer for Boeing Aircraft. Norm is survived by his his wife of 19 years Cynthia M. Butler Phillips and their son Christopher at home; his daughter and son-in-law: Kira & Rob Gray and two lovely grandchildren Ashton and Samantha Gray of Dallas, Texas; loving parents: Arland & Beverly Phillips of Horseheads, NY; two very devoted sisters and brother-in-law: JoEllen Malinowski of Horseheads, NY and Allison & Ken Brooks of Cypress, Texas; father-in-law and mother-in-law: Carroll & Joyce Butler of Oklahoma; many special aunts, uncles, nieces, nephews, cousins, and a host of caring friends. Norm was pre-deceased by his maternal grandparents Norman and Josephine Wheeler, paternal grandparents Merrill and Leona Phillips, and a special uncle Roger. Norm dearly loved his brothers in Fraternity Theta Gamma Alumni of which he was president for the last 11 years as well as his sisters of Pi Nu Epsilon Sorority. He loved nice cars, swimming, skiing, and camping with his family and friends. He will be surely missed by all who knew and loved him. On June 28th The Third Annual Norm M. Phillips Charity Golf Tournament for ALS was held at Eagle Vale Golf Club in Fairport, NY for the purpose of raising funds for the continued research for ALS. Many of Norm's fraternity brothers and sorority sisters attended along with friends and family from the Horseheads area. Relatives and friends are invited to call at the Lynch Funeral Home 318 West Broad Street Horseheads, NY on Friday July 18, 2008 from 3-5 and 7-9 PM. Norm's Funeral Services will be held at the Funeral Home on Saturday July 19, 2008 at 11 AM with Norm's uncle, John Ford, officiating and assisted by Pastor Jeremiah Ayers. Interment in Maple Grove Cemetery in Horseheads, NY at the convenience of the family. In lieu of flowers memorial contributions may be made in Norm's name to The Robert Packard Center for ALS Research at John Hopkins University One Charles Center 100 North Charles Street Suite 408 Baltimore, Maryland 21201.
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Old 07-19-2008, 08:13 PM #482
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Ronald "Lou" Easton
Ronald "Lou" Easton, 42, of Andover, formerly of Manchester, died Wednesday, July 16, 2008, at home.

The Boston Red Sox have just lost one of their biggest fans and the family and friends of Ronald "Louie" Easton are left with an empty space in their hearts. Louie died peacefully at home after a long battle with ALS. At his bedside was Lori his loving wife, his best friend, and his dedicated caregiver. He is also survived by his stepsons, Mike Talaga and his wife, Jessica, and Ryan Talaga. He also leaves a brother, David and his wife, Kris; and Joe Baran, who has always been a father to Louie. He also leaves his two grandchildren, Justin and Olivia Louise Talaga; along with many, many wonderful friends. Louie was a vibrant and caring person who would put a smile on the face of anyone in his presence. One of his favorite pastimes was playing softball with his friends. He will be so sadly missed by all.

His family wishes to extend a special "thank you" to Helen Dumond of Hospice for her continuous guidance, support and kindness throughout Louie's illness.

Calling hours are at 1 p.m. at the Potter Funeral Home, 456 Jackson St., Rte. 195, in Willimantic.

A service celebrating Louie's life will follow at 2 p.m.

In lieu of flowers, memorial contributions may be made to the ALS Association (Lou Gehrig's disease) Development Dept. at www.alsa.org, or 27001 Agoura Road, Suite 250, Calabasas Hills, CA 91301-5104.

For online memorial guest book, please visit:

www.potterfuneralhome.com
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Old 07-19-2008, 09:39 PM #483
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To all of you who lost a loved one from or are suffering from ALS.
My heart goes out to you.
I have been reading Michael Zaslow's book "Not That Man Anymore"

I pray for you all that someday there will be answer to this.

I remember watching Michael as Roger on GL for many, many years. To read all he and his family went through is just heartbreaking and heartwarming at the same time.

Wishing you all the best.
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Old 07-23-2008, 07:18 AM #484
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Nicholas 'Nick' Aron Huber, 28
Hudson Star-Observer
Published Monday, July 21, 2008

Nicholas 'Nick' Aron Huber, age 28, of Alta, Iowa passed away Saturday morning, July 19, 2008 at Buena Vista Regional Medical Center from the result of injuries sustained in a motor vehicle accident and complications from ALS (Lou Gehrig's Disease).




Funeral services will be held on Tuesday, July 22 at 11:30 a.m. at Schaller Chapel on the Buena Vista University Campus. A visitation with the family present will be Monday evening, July 21 from 5-8 p.m. at the Nicklas Jensen Funeral Home of Alta. Nick has requested memorials be directed to the ALS - Therapy Development Institute or www.als.net.
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Old 07-23-2008, 08:41 PM #485
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God looked around his garden and found an empty place,
He then looked down upon the earth, and saw your tired face.
He put his arms around youand lifted you to rest.
God's garden must be beautifulhe always takes the best
He knew that you were suffering he knew you were in pain.
He knew that you would never get well on earth again.
He saw the road was getting rough and the hills were hard to climb
so he closed your weary eyelids, and whispered, "Peace be thine,"
It broke our hearts to lose you.
But you didn't go alone,
For part of us went with you the day God called you home.
Thomas Kinkade
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Old 07-24-2008, 06:15 PM #486
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Eugene Rutz

Eugene Harold Rutz was born on Dec. 29, 1942, in Lemmon, S.D., to Rev. Helmuth and his wife, Rhoda (nee Gerth) Rutz. He was baptized on Jan. 20, 1943. In the spring of 1956, Gene was confirmed at Our Savior's Lutheran Church by his father.

Gene attended high school at Northwestern Lutheran Academy in Mobridge, S.D., and graduated in 1960. He graduated from Immanuel Lutheran College in Mankato, Minn., in 1963 and from Immanuel Lutheran Seminary in Eau Claire in 1966. During several summers of his college years, he worked for the U.S. Forest Service as a firefighter in Missoula, Mont.

In 1964, Gene met Patricia Ann Sydow at ILC in Eau Claire. During that year his training for the ministry included several months of service as a vicar at Redeemer Lutheran Church in Cheyenne, Wyo. The Lord brought Gene and Pat together in holy matrimony on Aug. 28, 1965, at Our Savior's Lutheran Church in Jamestown, N.D. The service was officiated by both fathers, Revs. Helmuth Rutz and Gilbert Sydow. The Lord blessed them with two daughters and one son, Tammy (Jeff) Trippler of Indianapolis, Ind.; David (Dee) Rutz of Katy, Texas; and Heidi (Jim) Weaver of Yorba Linda, Calif. They were also blessed with eight grandchildren, Amanda, Brandon, Micah, Julia, Tori, Brittany, Corey and Alyssa.

Gene is survived by his wife, Pat; all his children and grandchildren; and his brothers and sisters, Gerald (Jane) Rutz and Barb (Bob) Ruegge of Cheyenne, Wyo.; Delbert (Pat) Rutz of Balaton, Minn.; and Nadine (Ron) Hatlewick of Leola, S.D.; and many nieces and nephews.

He was preceded in death by his parents.

Gene served the Lord as pastor of several congregations from 1966 to 1984: Holy Trinity in Missoula, Mont.; St. Peter's in Stambaugh, Mich.; and Bethel Lutheran in Spring, Texas.

He was diagnosed with multiple sclerosis in the mid-'80s. He began driving bus for the Houston transit system in 1984 and retired in November of 2005, after being diagnosed with ALS (Lou Gehrig's disease). In August 2007, Gene and Pat moved to Indianapolis in order to be closer to their oldest daughter.

Gene enjoyed get-togethers with family and friends, his church family, and working and playing on the computer. He will be remembered for his wit, attention to detail, dry sense of humor and especially his love for his wife, children and grandchildren.

His life serves as a good example for all of us. He endured his disease patiently, trusting in the Lord's gracious, good will for him. The Lord in His mercy answered his prayer and ours, delivering his soul from this world of tears and suffering to his home with Him in heaven on Saturday, July 19, 2008.

Memorial services will be held at 2 p.m. at Messiah Lutheran Church in Eau Claire on Friday, July 25, 2008.

The family and friends of Gene are thankful for his influence in their lives and thank all who have supported our family all these years.

Memorial contributions for Gene may be made to: Immanuel Lutheran College ILC Building Fund-Gene Rutz, 501 Grover Road, Eau Claire, WI 54701-7199.
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Old 07-27-2008, 07:35 AM #487
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Martin, Gary C.

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Gary C. Martin, age 60, of Appleton, passed away on Thurs., July 24, 2008, at Cherry Meadows with his family by his side after a one-year battle with ALS (Lou Gehrig's Disease). Gary was born on August 20, 1947, in Columbus, Ohio. He graduated from Oshkosh High School in 1965. He then attended UW-Oshkosh before being drafted into the U.S. Army in December of 1966. He was a Drill Sergeant at Fort Leonard Wood, Missouri, before serving in Vietnam. After being honorably discharged in November of 1968, he was married to Mary Kay Kampo on April 26, 1969. Gary started working for August Winter and Sons in January of 1970 as a plumbers' apprentice and retired as Executive Vice President in October of 2007 due to his illness. During his employment, he held master plumber licenses in various states. He served on local and state plumbing apprenticeship committees. He was past president of the Wisconsin Association of Plumbing, Heating and Cooling Contractors, being named WAPHCC Contractor of the Year in 1997. He served on the Board of Directors of the Mechanical Contractors Association of Wisconsin and was named the MCA Contractor of the Year in 2007. Gary enjoyed golfing, fishing, hunting, snowmobiling and traveling in his RV. He also enjoyed spending time with family and friends at the cottage in Three Lakes, Wis. In May of 2007, he began building his dream home on a golf course green in Hot Springs Village, Arkansas. The home was completed in January of 2008, and he enjoyed the time he had there. Gary was also looking forward to the birth of his first grandchild, due in September.
Gary is survived by his wife Mary Kay; his daughter, Sarah (Greg) Waters, Appleton; his mother, Mary Halley, Chillicothe, Ohio; his brothers, Victor (Geeta) Halley, Keith (Pam) Halley; his mother-in-law, Dorothy Kampo; brothers and sisters-in-law, Rick (Sue) Kampo, Cathy (Randy) Huebner, Jim (Nancy) Kampo, Joan (Dan) Kossel, Pam (Rick) Pomerenka, Paul (Tina Lausman) Kampo, many nieces, nephews, other relatives and special friends. Gary was preceded in death by his son, Matthew, his father, Clifford Martin, and his father-in-law, Roland Kampo.


A Funeral Mass will be held at 11 a.m. on Mon., July 28, 2008, at Ss. Peter and Paul Catholic Church, 105 N. Olk St., Hortonville, with Fr. David Funk and Fr. Jim Feely concelebrating. A gathering and celebration of Gary's life will be held on Sunday from 2 p.m. to 6 p.m. at the Wichmann Funeral Home, 537 N. Superior St., Appleton. Friends may also call at the church on Monday from 10 a.m. until the time of service. There will be a prayer service held at 5:30 p.m. on Sunday at the funeral home. In lieu of flowers, a memorial fund will be established.
Wichmann Funeral Home
537 N. Superior St.
Appleton 920-739-1231
Online Condolences
www.wichmannfargo.com
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Old 07-27-2008, 04:17 PM #488
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Linda Sutton
Sunday, July 27, 2008

EAST PRAIRIE -- Linda Carol Vinson Sutton, 65, died at 3:10 a.m. July 26, 2008, at her home, following a long battle with Lou Gehrig's Disease.
Born Aug. 12, 1942, in Hickman County, Ky. to the late James Henry and Nina Ferguson Vinson, she lived most of her life in Dorena. Seven years ago, she moved to East Prairie, and she was employed by the East Prairie Nutrition Center for 13 years. She was a member of the Dorena Baptist Church.

On Dec. 21, 1962, at East Prairie, she married John H. Sutton who survives of the home.

Other survivors include: four sons and three daughters-in-law, Hoyt Sutton, Craig and Jennifer Sutton, Benjie and Nikki Sutton and Chris and Cassie Sutton, all of East Prairie; one brother, Leslie Joseph Vinson of Fulton, Ky.; and 13 grandchildren.

One brother, James Vinson preceded her in death.

Visitation will be after 5 p.m. Sunday at the Shelby Funeral Home in East Prairie, where services are scheduled for 2 p.m. Monday. Thomas Griffin will officiate. Burial will follow in the East Prairie Memorial Park.
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Old 07-27-2008, 07:19 PM #489
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Peter Morrow Scott
Sunday, July 27, 2008 The Oregonian


A memorial service will be at 1 p.m. Monday, Aug. 4, 2008, in River View Cemetery for Peter Morrow Scott of Portland, who died July 24 of amyotrophic lateral sclerosis (Lou Gehrig's disease) at age 69.

Peter Morrow Scott was born Aug. 5, 1938, in Portland. He served in the Air Force and graduated from Oregon State University. He was a supervisor for Blount Industries. In 1960, he married Gail Heater.

Survivors include his wife; daughters, Sharon Dalton, Sheila Kelly and Cynthia Waddell; sister, Anne Coleman; and six grandchildren.


Remembrances to the ALS Association. Arrangements by River View Cemetery Funeral Home.
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Old 07-31-2008, 06:01 AM #490
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Jules R. Lodish; Doctor Showed Will to Live as He Battled With ALS

By Joe Holley
Washington Post Staff Writer
Thursday, July 31, 2008; Page B07

Jules Roy Lodish had been told he had only a couple of years to live. But he persevered for 15 years.


For many years during his busy career as a doctor, Jules Roy Lodish hardly had time to stop for death, although as an oncologist and hematologist, he was certainly aware of its presence.

Earlier in his career, he had focused on end-of-life issues and had created a nationally recognized hospice program for the terminally ill while serving as an assistant professor at the University of Wisconsin's medical school.

Death became a more familiar presence, albeit a lingering one, when he received a diagnosis of amyotrophic lateral sclerosis, also known as Lou Gehrig's disease. Well aware of the cruel and inexorable progress of the disease, he had to decide whether to live -- and why.

He answered in the affirmative for nearly 15 years, until he died July 14 of complications from the illness at his home in Bethesda. He was 63.

Dr. Lodish was born in Cleveland. He received an undergraduate degree in government from Harvard University in 1967 and his medical degree from Case Western Reserve University School of Medicine, where he was president of the Class of 1971 and recipient of the 1969 Roche Award for excellence in clinical medicine.

He completed an internship and residency at Beth Israel Hospital in Boston before moving in 1973 to Bethesda, where he served as a fellow and staff physician at the National Cancer Institute.

After teaching in Milwaukee from 1977 to 1984, he returned to Bethesda and joined a private practice that had offices in Olney and Rockville.

His first personal encounter with ALS came after he fell on ice in late 1993. He thought little of the incident, but in the ensuing months, he experienced hip pain and a lingering limp. When he had trouble turning the keys in his car ignition, despite trying with both hands, he suspected he might have ALS. The diagnosis came in May 1994.

In January 1996, when he could no longer breathe on his own, he had to decide whether he wanted a permanent breathing tube, which would require a tracheotomy. At first he said no, as do many ALS patients, but he changed his mind the next morning.

"He didn't want to leave yet," his wife told The Washington Post in 2000.

After five months in the hospital, he went home and established an exacting routine designed to allow him to live as long and as fully as he could. The routine included a 35-page manual for his nurses that laid out every procedure that had to be performed each day, the maintenance of every piece of equipment and the sterile techniques he required.

When he could no longer eat, he did the research that resulted in the recipe for the nutrient blend that flowed down his feeding tube. He was Jewish and ensured the ingredients were kosher.

His days were full. He stayed deeply involved with the swirling, busy lives of his wife and children. He read William Faulkner novels and other works he never had time for during his busy career. He also consulted informally with ALS patients and their families on how to organize their care and how to use the communication devices he had mastered.

He told the New York Times in 2004 that his determination to live came, in part, from his experience treating cancer patients, who he said often felt that their diagnosis was a death sentence.

"I spent my career getting people to live with their illnesses until they died," he said, "if they weren't cured."

Humor was a part of his caring regimen as physician and patient -- whether it was wearing big, impossibly ugly bow ties his wife made to entertain his patients during chemotherapy or to laugh in the face of his impending demise.

He was a better dancer in his wheelchair, he said, than when he could walk.

A decade after being told that he had only a couple of years to live, Dr. Lodish sent the e-mail that announced the birth of his first grandchild. Nearly 15 years after receiving his diagnosis, he helped celebrate the first birthday of his second grandson.

"I still look forward to every day," he told the Times in 2004.

Survivors include his wife of 39 years, Carolyn Wieder Lodish of Bethesda; three children, Elizabeth Lester of Rockville, Mark Lodish of Chappaqua, N.Y., and Emily Lodish of Phnom Penh, Cambodia; his mother, Naoma Lodish of Pembroke Park, Fla.; two brothers; four sisters; and two grandsons.

http://www.washingtonpost.com/wp-dyn...073003042.html
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