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ALS For support and discussion of Amyotrophic lateral sclerosis (ALS), also referred to as "Lou Gehrig's Disease." In memory of BobbyB. |
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01-19-2010, 02:16 PM | #1 | ||
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If your worried you have ALS, there is another condition that has the same symptoms in the beginning. I can fool doctors at first.
The condition is Beneign Fasciculation Syndrome (BFS). there's a wiki definition and a forum. I was told I didn't have ALS 30 years ago, but they couldn't explain why I had early symptoms of it. Now days more and more neurologist know about it (but defintely not all). If your getting checked for ALS or your neurologist think its unlikely, then ask about BFS |
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"Thanks for this!" says: | Annie59 (01-20-2011), Teacher123 (08-20-2011) |
07-03-2010, 10:42 AM | #2 | |||
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01-05-2011, 06:31 PM | #3 | ||
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I was diagnosed with myasthenia gravis when I was admitted from a neuro appointment in 08. The 'usual' tests came back negative. But my breathing is an obvious sign of something. I have degraded alot and saw an ENT last week for what is happening my my throat, aournd losing ability to talk and that swallow is worse. He asked me if I was tested for bulbar ALS. I have to admit this scared me.
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01-20-2011, 06:00 PM | #4 | ||
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I looked this up and honestly it doesnt fit. I had cogntive testing last year and no signs of anxiety or depression were found to respond to the anxiety issue. The pieces that fit with ALS are the very serious and real restrictive breathing disorder, muscles weakness and swallow talking problems that have recently taken a dive. Also Mayo clinic found that half my diaphrgam is paralyzed in Dec 08 which I why they questioned a diagnosis of MG.
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