ALS For support and discussion of Amyotrophic lateral sclerosis (ALS), also referred to as "Lou Gehrig's Disease." In memory of BobbyB.


advertisement
 
 
Thread Tools Display Modes
Prev Previous Post   Next Post Next
Old 07-02-2009, 06:25 PM #1
J.M.C. J.M.C. is offline
Junior Member
 
Join Date: Feb 2009
Posts: 11
15 yr Member
J.M.C. J.M.C. is offline
Junior Member
 
Join Date: Feb 2009
Posts: 11
15 yr Member
Post ALS Newly Diagnosed

Dead End Ahead?
Contracting ALS (amyotrophic lateral sclerosis) is among one of life's most troubling diagnosis, it has no cure. Even a veteran neurologist has a tough time reaching this dreadful conclusion. When the testing begins, your surroundings turn to black and white followed by long sleepless nights. Your stomach is put on notice and your appetite disappears. You're hoping for something to go wrong or a medical error that produces a blessing. After two weeks of searching, hoping, and investigating, you're ready for the torture to stop. To relieve the stress you anxiously beg for any decision. All the while you are asking, "How could this be happening to me?"

This alarming decision has taken on the new look of a crisis and will take you to a new crossroad. You have just been diagnosed with a terminal illness, ALS. Your search for answers has only begun and probably by now you have already pushed the panic button. No one is sure what journey they will have or what their suffering level will be. Could it be that you have been harboring this illness for the last several years? This is your new battle, one you have never fought, but one you seriously need to prepare for.

That old adage "The Truth Will Set You Free" is the sword revealing two blades. You will load your mind with tons of medical information and a majority of that may not even apply to you. The progression of ALS and length of survival after disease onset are both highly variable from one person to the other. All this information may be detrimental to our health and can create an unnecessary lethal panic. We wrap ourselves in emotional fear but we forget one important fact. We still must live our life and we need to hope for better days, whatever the age. How is living life going to be possible?

Your first action plan is based solely on knowledge. How can I mentally prepare to take charge of every change that will affect me? There is a long string of medical definitions related to ALS and questions surround all of them. You should start with two basic categories, what are my physical and medical needs going to be in the next few months.

Action plan number two is based on the fact that you still need to live. The life basics are that you need to, sleep, eat, breathe and laugh. Maybe you have family and friends that will support you as long as possible, maybe you don't. You'll need close ties to a support network, if not you should find one quickly. In your search you'll find that a small percentage of ALS patients have lived more than 10 years. You may even have goals and dreams that haven't been met yet. There are ALS patients alive today that have overcome all kinds of odds and each day of life has had a new beginning.

It's not uncommon for you to be stuck at this crossroad but understand soon you must make choices. The real solution is a peaceful mind followed by your choice of religion or spirituality. If it's any consolation, God is not going anywhere, and he'll always be there when you need his consultation and guidance. Believe in Hope.
J.M.C. is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
Alffe (07-03-2009), amader (01-13-2011), Bobbi (12-01-2009), Chemar (07-03-2009), kiwicafe (10-04-2011), Koala77 (07-04-2009), slaughter17 (06-17-2011), tamiloo (05-19-2010)
 


Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off


Similar Threads
Thread Thread Starter Forum Replies Last Post
Newly diagnosed sailprice Peripheral Neuropathy 8 12-16-2008 05:01 PM
newly diagnosed tomkat143 New Member Introductions 5 04-03-2008 09:43 PM
newly diagnosed pintorl Myasthenia Gravis 6 03-29-2008 10:34 PM
Newly Diagnosed raeggiebaby New Member Introductions 4 04-29-2007 04:13 PM
Newly diagnosed but.... fiberowendy2000 Bipolar Disorder 9 11-23-2006 03:21 AM


All times are GMT -5. The time now is 03:58 PM.

Powered by vBulletin • Copyright ©2000 - 2024, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise v2.7.1 (Lite) - vBulletin Mods & Addons Copyright © 2024 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.


Always consult your doctor before trying anything you read here.