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ALS For support and discussion of Amyotrophic lateral sclerosis (ALS), also referred to as "Lou Gehrig's Disease." In memory of BobbyB. |
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11-22-2009, 08:11 PM | #1 | ||
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Hello - I'm Dave and was diagnosed with ALS Aug. 20
1997 -- and yes I went thru all the difficult feelings (& anger) that you mentioned -- and fought to live another month. The Doctors gave me 18 months to live -- went for a 2nd opinion and went thru the tests twice - and vowed never again. Then left Traditional Med and entered the vast world of Alternative Med --- mainly vitamins & therapy -- no prescriptions. Now it is 12 years and 4 months later -- I'm not cured - but still lead a fairly normal life -- have to use a cane to walk. If you are interested - I have some good info that worked for me. Happy Holidays, dave |
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"Thanks for this!" says: |
01-05-2010, 06:00 PM | #2 | ||
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My fiancee was just diagnosed yesterday (1/4/10) with ALS. I would be interested in what non-traditional medicines you are taking. He is the love of my life and I cannot bear to think of my world without him in it. Thanks so much for your time. Patricia |
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10-20-2010, 09:01 AM | #3 | ||
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i had lyme for the 2nd time so they thought and then my legs got stiff and i could barely walk on my own i ended at yale before my dr. after being tested for 2 yrs i found out i had als so he sent me to NIH in maryland to find out who else in my family had als my dad feels bad he is my carrier but has no systems i have have nerve pain for 4 months now they keep chaning my drugs hoping one will work none has so far i wish u luck and ill pray for u
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06-06-2011, 09:21 PM | #4 | ||
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I'd really like to know what suppliments and therapies you are using. Thanks, Oliver |
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