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05-09-2012, 07:19 AM | #1 | |||
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Young Senior Elder Member
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I guess I don't understand the difference between the two. Yes, I read about Picks ....googled it and I've been reading about Alzheimers for over a year. The end result is the same...isn't it? No cure, little hope.
I'm sorry for your heartbreak...I think you must be a wonderful caregiver. Have you read "Speaking Our Minds" by Lisa Snyder? I was fortunate to hear her speak at an all day Alzheimers conference here...bought her book and have learned a lot from it.
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"Thanks for this!" says: | Bobbi (05-11-2012) |
05-11-2012, 12:19 AM | #2 | |||
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Senior Member
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I think one of the distinguishing characteristics with Pick's is the age of onset and how (and how soon) the symptoms manifest. The age it strikes and how it does so is what flags doctors. Longevity is greatly shortened with Pick's -- the time-frame generally ranges from 2 to 10 years. But, yes, the outcome is still the same.
I've not heard of the title before, Alfee, but will make sure to get a copy.
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"Thanks for this!" says: | Alffe (05-11-2012) |
05-11-2012, 01:17 AM | #3 | |||
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Senior Member
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The following, Alffe, is a link to a NY Times article -- May 2012. It states that Pick's / FTD is:
".... is different from Alzheimer’s, the most common form of dementia. But it is perhaps even more devastating, because it strikes younger people, progresses faster and, unlike Alzheimer’s, does not attack memory at first but begins with silence, apathy or bizarre personality changes. It is thought to afflict at least 50,000 to 60,000 people in the United States...." http://www.nytimes.com/2012/05/06/he...pagewanted=all It's also all-too-often mis-diagnosed, initially. Hard to seek or obtain therapies and services when it's not recognized for what it is. Therefore, it advances, and, possibly, more quickly than might, otherwise, be possible.
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".... This world wasn't built for people in wheelchairs ...."
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"Thanks for this!" says: | Alffe (05-11-2012) |
05-11-2012, 07:36 AM | #4 | |||
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Young Senior Elder Member
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I guess, were I given a choice, I'd pick Alzheimers. Thanks Bobbi
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"Thanks for this!" says: | Bobbi (05-12-2012) |
05-12-2012, 01:29 AM | #5 | |||
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Senior Member
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Me, as well. But, I suppose not a single one of us gets to make a "selection." It's often the hand of nature that been doled, and trying to make it as painless and as comfortable for others.
Fortunately, the NY Times, as well as additional media in, i.e., Canada, have been writing series on this very topic and bringing light to the health issue, as well as to doctors and studies about to be undertaken, along with current understanding. Still, we all know what's gonna happen one day, but, having to think about it happening to another and to have to plan just totally bites and by bytes.
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".... This world wasn't built for people in wheelchairs ...."
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"Thanks for this!" says: | Alffe (05-12-2012) |
05-12-2012, 07:58 AM | #6 | |||
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Young Senior Elder Member
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This is a portion of roseblowers recent post: quote: "fear is a big part of the disease. Fear and emotional distress, because the person is still in there and altho they are more comfortable with their own reality, they know things are not right or normal, and it scares them." Unquote
This is soooo true...the book "Still Alice" is fictional but really captures a lot of the feelings of the "victim". My father died in a nursing home from Alzheimer's Disease so our family got a close up, personal look at a stranger who looked like our dad...but wasn't. "Speaking our minds" is not fictional...the author chronicles 7 patients dxed with Alzheimers from their point of view...from their losses.
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"Thanks for this!" says: | Bobbi (05-13-2012) |
05-13-2012, 01:18 AM | #7 | |||
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Senior Member
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I've downloaded the book, Alffe, from Bookshare, of which I'm also a member. Thank you for your insight, as well as the heads-up.
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".... This world wasn't built for people in wheelchairs ...."
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"Thanks for this!" says: | Alffe (05-16-2012) |
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