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07-25-2007, 08:33 PM | #1 | ||
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Junior Member
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I have been looking for a forum for information on dementia which I am new to. My mother, who is 86, was doing pretty good, living in an assisted living facility in Canada by my brother. Her hips had degeneraged to the point of her being confined to a wheel chair. I knew she had a mild form of dementia, but was still pretty good, played bridge, particpated in activites with the groups at the home, had her routine hair appt, and was generally happy and very very health, except she couldn't walk anymore. We had her looked at by an orthopeadic surgeon who was shocked that her hips were so bad and decided, because of her great health (no BP, diabetes..nothing) that hip replacements would really improve her quality of life and get rid of the constant increasing pain she was in. Her first hip was done the beginning of may, under a spinal, no general anesthesia, and she did wonderful, was walking with a walker, and progressing great. You could hear the bone grinding in her other hip and decided (with her) to do the other one. The surgery was performed 3 weeks ago, and was successful. Two days after the surgery, she started vomiting green and couldn't stop..this went on for a couple of days, she became severely dehydrated, and delerious, would pull out the IV tube etc. 6 days after her hip surgery, I was told I needed to fly to Ottawa from Colorado, she was not expected to make it through the night, she did, but barely in ICU. On my 2 hour layover in chicago I got a call from a dr. saying I needed to authorize emergency abdominal surgery because a CT scan had revealed a portion of her small intestine had died. They would open her up, determine if they could successfully perform the surgery, do it, or if not, close her up and keep her comfortable. They did the surgery, it was a "success" she was on a ventilator in ICU for 3 days..then down on the gastro floor (no colostomy).
After all this trauma (2 major surgeries, one with general anesthesia, and severe deyhdration prior) my mother's mild dementia is so bad now. This isn't even my mother anymore. She is confined to a bed, goes to the bathroom in a diaper, spits her food out at the nurses, is on a feeding tube, refusing to eat or take medicine. She knows who we are but there is no conversation, just yes or no answers, and doesn't not understand she needs to eat to live. I just don't understand what is happening. She is still in the hospital. She has recovered from the gastric surgery and hip, but has NO motivation to move or eat or anything, and is mean. Our hope now is that we are going to try and get her back to the assisted living place she lived in (they are willing to take her and take care of her at a higher level) in hopes that if she is happier and things are more familiar that she will slowly come back to us...I have my doubts...then we are looking at a Long term Care Facility that is better able to handle her not being able to do ANYTHING. It will be 3 weeks tomorrow, I am flying back in 3 weeks..and I hope to see my mom again.. Has anyone had experience with this, severe dementia after surgery and trauma..and coming back from it. We are willing to pay whatever it takes at this point to give her a chance to come back, everyday physical therapist, hand feeding, etc...we can't pay for the private care for ever though..and we will have to transfer her to LTC in Canada that is funded by the government if there is no improvement. We love were her home is now, and our hope is that she will respond to that. Please let me know if anyone has similar experience with the dementia, I just can't believe my mother went form being my mom..to this person in a 3 week period...I know it has taken a toll on her..... Thanks c |
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07-25-2007, 09:25 PM | #2 | |||
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Community Support Team
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Dear Carrie
I dont have answers for you but I did want to let you know how very sad it was to read what has happened to your mom. I do hope and pray that she will come out of this once she is back in familiar surroundings Perhaps the toxic effects from all that happened may have contributed to all this and hopefully as her system recovers and stabilizes things will get better This must be so very hard on you Please know there will always be someone here if you need a shoulder. Cheri
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~Chemar~ * . * . These forums are for mutual support and information sharing only. The forums are not a substitute for medical advice, diagnosis or treatment provided by a qualified health care provider. Always consult your doctor before trying anything you read here. |
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07-25-2007, 10:40 PM | #3 | |||
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Senior Member
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Dear Carrie --
(((((((Carrie))))))) Gosh, this must be so hard for you. I am so sorry this is all happening like this. What I want to say is that the trauma of the operation, followed by being sick and vomiting so much, may have used up all of your mother's vitamin B12. Dementia is a symptom of severe vitamin B12 deficiency. I'm not saying that all dementia can be cured by vitamin B12, but some of it can. If your mother has been given a vitamin B12 test, and her level is low, perhaps you can ask them to give her B12 replacement therapy. (I had a very stressful day and I'm having a bit of trouble remembering myself... but I think my favorite article talks about recovery from dementia... I have to go read it because I can't quite remember...) Yes... it is in the article, though the case history in the article is dementia that took a longer time to advance. the thing is, from my experience, stress really depletes B12. I had such a stressful thing to do today, and when I came home I kept almost falling down because my right leg where I have the worst nerve damage kept buckling... but after a B12 shot and rest it was better... so I had a second shot because I really cannot afford to fall. Take a look at the article (my favorite) http://www.health-boundaries-bite.co...B12-Level.html (((((((((Carrie)))))))))
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Do you know the symptoms of low vitamin B12.... ? |
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07-26-2007, 08:37 AM | #4 | ||
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Junior Member
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Thank you for your responses, I just sent a note to the case worker on my mom, asking them to test the B12 level, its totally worth a shot...I want my mom back the way she was 3 weeks ago, and have so much guilt for having her have her 2nd hip done...ugh
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07-27-2007, 10:38 AM | #5 | |||
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Administrator
Community Support Team
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Dear Carrie
I do hope you are able to help her. Have you taken a read through some of the other threads here to see if there are any clues to other things that may be helpful thinking of you and your mom Cheri
__________________
~Chemar~ * . * . These forums are for mutual support and information sharing only. The forums are not a substitute for medical advice, diagnosis or treatment provided by a qualified health care provider. Always consult your doctor before trying anything you read here. |
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07-27-2007, 11:15 AM | #6 | |||
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New Member
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My grandmother is in the a similar situation right now. She was fine with her memory before this past January - when she underwent extensive surgery for bladder cancer. Since then she hasn't been the same, and it really worries my mom and myself. I will have to ask my mom to mention this to her doctor. I understand where you are coming from Carrie. I hope everything turns out okay for your mom!
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08-07-2007, 02:42 PM | #7 | |||
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Senior Member
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Quote:
I didn't see your reply. (((((((((Carrie))))))))))
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