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Old 09-02-2009, 11:36 AM #1
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Default Can't Get my brain out of my head

I am a man obsessed. In 2007 I had a craniotomy where they did a bypass of the basilar artery and clipped a 2nd aneurysm (such an overachiever this one) and I was supposed to be "fixed." Sure there was some residual bits of balance trouble, but I was working through that.

3 weeks ago I had a stroke and after the angiogram it appears that the clip on number 2 has slipped and the first one that was stented is growing again. Actually both are.

The surgeon said he would not recommend surgery yet, but if at my planned three year follow up they were still growing he would recommend doing another craniotomy and shutting down the basilar artery once and for all.

So now I live terrified that anything I do will pop them. Researching my brain and obsessing over it has become number 1 in my life over family and work. "Well, think about what you can do not what you can't" is what I am told. Pretty hard to do when things to remind me are jumping up and slapping me in the face all day long.

How do I know if they are leaking? What can I do? You guys "get it" and understand the he!!. Thanks for letting me whine.
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I've had brain surgery, what's your excuse?
2 brain sugeries (aneurysms) 5 strokes and 5 seizures in the last 10 years.
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Old 09-04-2009, 10:11 AM #2
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Default Hi there

Quote:
Originally Posted by SDFencer View Post
I am a man obsessed. In 2007 I had a craniotomy where they did a bypass of the basilar artery and clipped a 2nd aneurysm (such an overachiever this one) and I was supposed to be "fixed." Sure there was some residual bits of balance trouble, but I was working through that.

3 weeks ago I had a stroke and after the angiogram it appears that the clip on number 2 has slipped and the first one that was stented is growing again. Actually both are.

The surgeon said he would not recommend surgery yet, but if at my planned three year follow up they were still growing he would recommend doing another craniotomy and shutting down the basilar artery once and for all.

So now I live terrified that anything I do will pop them. Researching my brain and obsessing over it has become number 1 in my life over family and work. "Well, think about what you can do not what you can't" is what I am told. Pretty hard to do when things to remind me are jumping up and slapping me in the face all day long.

How do I know if they are leaking? What can I do? You guys "get it" and understand the he!!. Thanks for letting me whine.
I am worried also and feel for you. I've never experienced anything like this before. I am scared all the time I'm not gonna wake up. I still havent talked to the doctor and wont until Tuesday. I'm told i have an aneurysm and hydrocephalus but no body is in a hurry to help. I feel like a walking time bomb and gonna burst any second. The worse part is waiting for them to do something for you. I just pray and I encourage you to do the same. God will help us thru and fears if we ask him and trust in him. I dont even know what i'm allowed to do and not do so this thing wont rupture. It's in the basilar artery tip. Maybe if you ask around for another opinion. I am going to Cleveland Clinic in Cleveland Ohio. I heard they are the best. Maybe you should check into it. It's worth a shot.
Thanks. Cheri
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Old 09-04-2009, 01:42 PM #3
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Cheri:

Thanks for the note. From what I am told by Neurosurgeons my guy is the "God of Neurovascular Surgery" I have heard the Cleveland Clinic is also a good place to be. Now, about getting some coconut bars from Davis Bakery, but that is for another time.

I am scred to go to sleep and this morning I woke up terrified. Yesterday I saw my surgeon here in San Diego and my aneurysms could pop at any time. But the Guy who did my cranie wants to see if I have any incidents or if they grow by next summer when I have my planned angiogram. I just know a 2nd one is coming, it so cramps my plans. ;-) I hope the best for you as well.

Darryl
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2 brain sugeries (aneurysms) 5 strokes and 5 seizures in the last 10 years.
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