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Old 07-14-2015, 08:40 AM #1
brainfreeze brainfreeze is offline
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Bio based, where are you at with this? I'm hoping you're making progress. Until you get things taken care of, that will be ALL you think about. Very stressful. People do travel to find the best care. Are you located near a respected large medical center?
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BioBased (07-18-2015)
Old 07-14-2015, 10:12 AM #2
Cheryl1818 Cheryl1818 is offline
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Hi Biobased,
This sounds like a very scary situation for you and I hope you can get to a doctor soon to get the information you need to proceed.

Am I right that your only head images were two CTs? You might want to talk to a doctor about an MRA. This is done in the MRI machine and can show what's going on with your arteries. It might give you and your doctor some good information before you proceed to more invasive procedures. I'm just guessing here, you would have to speak to a doctor. I just know I was given a MRI and MRA for a sudden, severe headache. They were both done at the same time and took about 40 minutes total. In my case, these two tests were enough for my doctor to rule out aneurysm and brain bleeding. Of course, your case is quite different from mine because you already know "annie" is there.

Do you have someone to go to your appointments with you? Discuss all your questions with this special someone, write them down, and tell them that their job is to make sure everything gets answered to your satisfaction. Sometimes I feel better when someone else asks questions on my behalf and it's nice to have someone to talk to after the visit to help you absorb and understand everything that was discussed.

I hope you find a good team of doctors SOON so you can learn more and decide on a course of treatment. Good luck with everything!
Cheryl
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BioBased (07-15-2015)
Old 07-15-2015, 10:01 AM #3
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Quote:
Originally Posted by brainfreeze View Post
Bio based, where are you at with this? I'm hoping you're making progress. Until you get things taken care of, that will be ALL you think about. Very stressful. People do travel to find the best care. Are you located near a respected large medical center?
I am in the Boston area. Basically I am doing nothing, because I do not know what to do.
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Old 07-16-2015, 03:45 PM #4
Cheryl1818 Cheryl1818 is offline
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Do you have a primary care doctor? He or she should be able to see you right away and steer you in the right direction. I don't mean to sound pushy, but I think it would be better to do something than to do nothing.

Good luck, Cheryl
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BioBased (07-18-2015)
Old 07-17-2015, 09:50 PM #5
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I agree, you need to seek help now. I'm sure there's a number of good hospitals in the Boston area. News like that is hard to get, you've probably been absorbing it, now it's time to take some action. Good luck to you and keep us up to date.
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BioBased (07-18-2015)
Old 02-09-2016, 07:44 AM #6
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Thank you Cheryl, brain freeze, Synnove, for your responses. I have had terrible angst and pain from my CRPS that I could not think rationally or plan ahead until recently. I only started to walk again just before Christmas, but I still cannot walk up and downstairs easily or run, jump, hop, etc.

It is almost a year later since the aneurysm was first found and I have finally moved forward to deal with it. Two weeks ago I had an angiogram (severe headache afterward and a night in the hospital) the aneurysm is slightly smaller at 7.3mm, but it does have a wide base which will require a stent to hold the coils in place. I have scheduled the endovascular coiling surgery for later this month at a top hospital. OMG. You who have done this are braver than I am.
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