Parkinson's Disease Tulip


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Old 09-15-2009, 11:15 AM #1
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Heart who amongst us w/ PD has been dxd 10 yrs or over??

I was dxd in 1994 finally, in those days they only believed this was a elderly
persons illness so my calculations sayy way over 10...

Bless your hearts ♥ ♥ ♥'s
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pd documentary - part 2 and 3

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Resolve to be tender with the young, compassionate with the aged, sympathetic with the striving, and tolerant with the weak and the wrong. Sometime in your life you will have been all of these.
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Old 09-15-2009, 01:59 PM #2
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Default Diagnosed in 1996

That makes 13 years.
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Old 09-15-2009, 05:08 PM #3
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Default diagnosed 1980---29 years

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Old 09-15-2009, 06:20 PM #4
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Default Dx March 2000

Nine and a half years.
Tremor from 1992.
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Born in 1953, 1st symptoms and misdiagnosed as essential tremor in 1992. Dx with PD in 2000.
Currently (2011) taking 200/50 Sinemet CR 8 times a day + 10/100 Sinemet 3 times a day. Functional 90% of waking day but fragile. Failure at exercise but still trying. Constantly experimenting. Beta blocker and ACE inhibitor at present. Currently (01/2013) taking ldopa/carbadopa 200/50 CR six times a day + 10/100 form 3 times daily. Functional 90% of day. Update 04/2013: L/C 200/50 8x; Beta Blocker; ACE Inhib; Ginger; Turmeric; Creatine; Magnesium; Potassium. Doing well.
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Old 09-15-2009, 08:37 PM #5
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1994...symptoms back to 1988

Yep, I was told by a general practice neurologist that PD was just for old people, then he rose from behind his desk and said, "this is what PD looks like." He then preceded to walk stooped with a shuffle.

I NEVER returned to that office again!!

Why do you ask Tena? Just curious.
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Old 09-16-2009, 01:36 AM #6
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Default 18 years

Also wondered why the question, alone it does not mean much. More useful if we added symptoms and stage of progression. I have suggested before we put date of diagnosis on our profile.
Dbiker2, you beat us all by a long way, how are you doing, what are your symptoms, 29 years is awesome.
After 18 years, My main problem is walking. Even medicated, I shuffle and can't turn around. My "off" is worse after my meds wear off, than it was before I took my meds, if you can understand what I mean. In the mornings, unmedicated, I can shower, dress and go down and put the dog out etc.
However, when I have taken my meds, if they wear off before I take more, I am jelly, could not do anything. Does anyone else find this?
On the positive side, I still drive, go on demanding holidays, (Venice by Orient Express this June), do yoga every week, and maintain a half acre garden.
Ron
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Old 09-16-2009, 04:42 AM #7
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Default 10 years or more

I first heard "parkinsons"in the early 80s when living in Houston.
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Old 09-16-2009, 05:22 AM #8
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symptoms at age 36 in 1987, diagnosed in 1988. 22 years of battle.
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Old 09-16-2009, 07:23 AM #9
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Ten years for me.

symptoms noticed in 1997 dx'ed in 1999 at 40 years old

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Old 09-16-2009, 08:49 AM #10
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Hi..back in the fold again....a.k.a.GeorgeAnn. Diagnosed 10 years ago in October, but symptomatic before that. Still learning about Mr. P.and praying for a cure. Having knee surgery Friday so please keep me in your thoughts. Thanks
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