[Sharklady]

I just found these boards and hope that someone may be able to help me with a question.

I had a spinal cord stimulator implanted in 2009. I had to have it revised 2 months ago because the leads had migrated. Last week I was in a car accident and my stimulator stopped working. I saw my rep from Boston Scientific today and they did some tests on me. The stimulator finally came on at a VERY high level but is still not working on lower levels. There is no in between, it is either completely off or on at a VERY high level that is almost unbearable.

The rep believes that there may be swelling around my spine that is causing me to be ultra-sensitive to the stimulation but this doesnt explain to me why I'm not feeling it at all until that high level. I'm very upset about this because I love the relief that the stimulator gives me. They gave me anti-inflammatories annd want me to wait until the supposed swelling subsides. I dont believe that this is the problem and want to know if anyone else has had a similar situation. I want to ge this fixed as soon as possible, even if it involves another revision.

[Rrae]

Hi Sharklady!
I responded to your post over on the SCS forum!

Anxious to hear how this goes for you!
You'll get much support here. This is a fantastic place full of very informed, yet down to earth folks

Rae

[sargeisme]

Boston Scientific does not care after the fact , I have a broken remote and to get a new one is eighteen hundred dollars. The rep said he is a friend now and that all he is , was great prior to surgery. David

[Leesa]

If it's swollen, it makes sense that you would feel it at ALL settings as the leads would be pushed closer to the spine. I don't understand their thinking. They're just giving you a line of B.S. cause THEY don't know what's wrong.
Keep bugging them - they'll get tired of it and do something about it.

I wish you the very best. God bless and let us know what happens. Hugs, Lee