[conor]

Going into assisted living next week, If I can get an internet connex I’ll send news. Have developed extensive PD disease. Diag 2000, inherited from mother; Docs say they can’t do anything more for me. Maybe if I’d been nicer rather than publically criticisizing her treatment things would be different,

Severe rigidity, hard to breathe, hard to focus. At best, can walk alone l walk not much tremor, Every time I feel decent, the next dose of Sinimit makes me feel awful. I fall asleep all the time. Next med will be Provigil, to keep me alert. I want to stay here with my cats. Children want me to stay safeL. I want to stay home and look for some help. I an 68 year old woman. Want to get a second opinion Boston area, Any suggestions appreciated, I know there are typos in this Message, hard to focus.

I 6 AM 1.5 Carbidopa and Levodopa 25/100
1 Comtan 200mg
1 Dicyclomine 10 mg
1 Requip .25 mg
1 Provigil 100mg

9 AM 1 Carbidopa and Levodopa 25/100
1 Dicyclomine 10 mg
1 Levothyroxine 75 mcg
1 Protonix 40 mg
1 Nefedical 30 mg
1 Cymbalta 60mg
1 Multivitamin

12 PM 1.5 Carbidopa and Levodopa 25/100
1 Comtan 200 mg
1 Requip .25 mg

3 PM 1 Carbidopa and Levodopa 25/100
1 Dicyclomine 10mg


6 PM 1.5 Carbidopa and Levodopa 25/100
1 Comtan 200mg
1 Requip .25 mg
9 PM
(take as late as possible, not before 8:30PM) 1 Carbidopa and Levodopa 25/100
1 Dicyclomine 10 mg
1 Lipitor 10 mg (not on Sat or Sun)

[BEMM]

You are taking a lot of medicine, I think you would be very wise to get a second opinion with a fresh approach to your medications. It sounds to me as if your doctor may have prescribed medicines to counteract medicine effects. Our PD medicines are so powerful that they can make us feel worse at times instead of better. And since you seem to not get along with your doctor as well as you might, it is a very good idea to find a new doctor that you like, a doctor who will work with you.
Don't stick with a doctor who feels you have offended her. Make a new start with a new doctor. You are still young - I should know, I'm the same age as you - there is still a lot of life left in us somewhat aged ladies.
Good luck.

birte

[boann]

hi conor,

this may not be helpful since this gentleman specializes in neuromuscular disease rather than movement disorders, but probably the most attentive, thoughtful, diligent, caring neurologist i have ever seen was Dr. Seward Rutkove at Beth israel Deaconess in Boston. I would recommend trying to see him even if all he ends up doing is recommending someone else - the recommendation he gave me for the city i was moving to when i left boston was excellent - i am sure he could recommend an excellent movement diisordr specialist in Boston if he felt a movement disorder specialist would be better suited than he to treat you.

Department of Neurology
Beth Israel Deaconess Medical Center
330 Brookline Avenue, TCC-810
Boston, MA 02215
Phone: (617) 667-8130
Fax: (617) 667-8747
Email: srutkove@bidmc.harvard.edu

boann

[michael7733]

I see you are being treated for Hypothyroidism as well. How long have you had this prooblem? Perhaps the problem is that addressing the two together is more than your present doctor is able to do unless he specializes in such matters.

michael b.

[chasmo]

get a second opinion from the best Movement Disorder Specialist you can find.
You are really on a "who's who" of drugs. I'm sure you are having some bad interactions there. Be prepared to possibly get worse before you get better. I think, however, an integrated approach to drug management, would do you a world of good.

IF none of the above works for you, you might want to consider a Deep Brain Stimulation screening.

tell us the area where you live and we can reccomend good MDS's nearby.

Charlie